ALS Focus Wave 3 – Caregiver Needs Survey (doi:10.7910/DVN/KLJPJL)

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Part 1: Document Description
Part 2: Study Description
Part 3: Data Files Description
Part 4: Variable Description
Part 5: Other Study-Related Materials
Entire Codebook

Document Description

Citation

Title:

ALS Focus Wave 3 – Caregiver Needs Survey

Identification Number:

doi:10.7910/DVN/KLJPJL

Distributor:

Harvard Dataverse

Date of Distribution:

2022-01-21

Version:

1

Bibliographic Citation:

The ALS Association, 2022, "ALS Focus Wave 3 – Caregiver Needs Survey", https://doi.org/10.7910/DVN/KLJPJL, Harvard Dataverse, V1, UNF:6:158A3MLuSx9o9o5oJhnSLg== [fileUNF]

Study Description

Citation

Title:

ALS Focus Wave 3 – Caregiver Needs Survey

Identification Number:

doi:10.7910/DVN/KLJPJL

Authoring Entity:

The ALS Association

Other identifications and acknowledgements:

The ALS Association

Other identifications and acknowledgements:

Neurological Clinical Research Institute, Massachusetts General Hospital

Producer:

The ALS Association

Distributor:

Harvard Dataverse

Access Authority:

Sherman, Alexander

Depositor:

Sherman, Alexander

Date of Deposit:

2022-01-17

Holdings Information:

https://doi.org/10.7910/DVN/KLJPJL

Study Scope

Keywords:

Medicine, Health and Life Sciences, Medicine, Health and Life Sciences

Topic Classification:

ALS, Survey, Focus, Caregivers, Care, Needs, Programs, Quality of life, Concerns

Abstract:

The NeuroVERSE record contains the following files: <ol> <li>ALSFocusWave3_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 3. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns).</li> <li>ALSFocusWave3_CaregiverNeeds.csv – This file contains responses to the Caregiver Needs survey for current and past caregivers. This survey was available in Wave 3.</li> <li>ALSFocusWave3_Demographics.csv – This file contains responses to the About Me demographics survey since ALS Focus launched in February 2020. This survey is designed for current caregivers, past caregivers, and participants with ALS.</li> <li>ALSFocusWave 3_ALSFRSandVC.csv – This data file contains responses to questions on ALSFRS-R and Vital Capacity scores, which opened in Wave 1 for participants with ALS. Starting in Wave 2, participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.</li> <li>ALSFocusWave3_HealthStatus.csv – This data file contains responses to the Health Status survey, which opened for participants with ALS in Wave 2. Participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.</li> </ol>

Methodology and Processing

Sources Statement

Data Access

Restrictions:

The Amyotrophic Lateral Sclerosis Association (“The Association”) grants a non-exclusive, non-assignable, non-transferable, royalty free license to use Data for educational and research analyses purposes (“Secondary Analyses”). Data shall not be used for any purpose other than Secondary Analyses. Data Requestor shall not disclose, release, sell, rent, lease, loan, or otherwise grant access to Data to any third party without the prior written consent of The Association. You acknowledge the importance of data privacy of individuals to whom accessed Data may relate, and, accordingly, commit to comply with all applicable data privacy protection laws, not to attempt to identify subjects, and not to combine accessed Data with other sources of data that would lead to the deliberate identification of any individual.

Access Authority:

Sarah Parvanta<br/> ALSFocus@als.org<br/> 202-464-8847

Citation Requirement:

The Association must be acknowledged as the source of Data in all written, visual, or oral public disclosures concerning Your research using Data, and a link to the Direct Object Identifier (DOI) must be included in all written disclosures concerning Your research using Data. Additionally, You are permitted to disclose Data to a journal publication that will be publishing or disseminating discoveries derived from Data as long as a link to the DOI is included in the written discoveries. See the data citation, generated by the Dataverse.

Disclaimer:

The Association reserves the right to withhold, remove, and/or discard Data from the Dataverse without notice to You. Except to the extent prohibited by law, You assume all liability for damages which may arise from Your use, storage, disclosure, or disposal of Data. The Association will not be liable to You for any loss, claim, or demand You make, or made against You by any other party, due to or arising from the use of Data by You, except to the extent permitted by law when caused by the gross negligence or willful misconduct of The Association.

Notes:

<p><b>DATA SHARING TERMS</b></p> <p>These Data Sharing Terms ("Terms") are effective as of the date of Your acceptance ("Effective Date") and are between you ("You" or "Your") and The Amyotrophic Lateral Sclerosis Association ("The Association"), which specifically states the license terms, liability, limitations and warranty relating to Your use of the ALS Focus Data and corresponding Data Dictionary ("Data").</p> <p><b>I. Limited Rights of Use and Restrictions</b></p> <p><b>a.</b> By accepting these Terms, The Association grants You a non-exclusive, non-assignable, non-transferable, royalty free license to use Data for educational and research analyses purposes ("Secondary Analyses"). You agree that all rights, titles, and interests relating to Data belong to The Association, or to the owner of Data you use. Furthermore, you agree that you do not assert any title or interest in Data other than the rights and license granted in these Terms. </p> <p><b>b.</b> You agree that you do not have any rights to copyright, rights to trademark ownership or patents, or any other rights or licenses that belong either to The Association, or to the owner of Data, other than those given in these Terms. </p> <p><b>c.</b> Data shall not be used for any purpose other than Secondary Analyses. You acknowledge the importance of data privacy of individuals to whom accessed Data may relate, and, accordingly, commit to comply with all applicable data privacy protection laws, not to attempt to identify subjects, and not to combine accessed Data with other sources of data that would lead to the deliberate identification of any individual. </p> <p><b>d.</b> Except as set forth in Section III.a., You agree that You will be the only one to retain control over Data and shall not disclose, release, sell, rent, lease, loan, or otherwise grant access to Data to any third party without the prior written consent of The Association. </p> <p><b>e.</b> You agree to use Data in compliance with all applicable laws, rules, and regulations, as well as all professional standards applicable to such research, including the completion of any Institutional Review Board (IRB) or ethics review or approval that may be required. It is Your responsibility to determine whether IRB or ethics review or approval is needed and what laws, rules, regulations, and professional standards apply to You. </p> <p><b>f.</b> You shall promptly report to The Association any use or disclosure of Data not provided for by these Terms of which You become aware. </p> <p><b>g.</b> You are not authorized in any manner to use The Association's name, logos, web graphics, or trademarks without express written permission from The Association except as permitted under Section III below. </p> <p><b>II. Termination of these Terms</b></p> <p><b>a.</b> You agree that The Association may terminate these Terms at any time without notice if Data were used by you in violation of any law or of any terms or limitations imposed by these Terms. </p> <p><b>b.</b> If these Terms are terminated, the license granted under these Terms will be revoked, and you must either destroy Data or return to The Association. </p> <p><b>III. Publication and Citation Requirements</b></p> <p>You are encouraged to publish and disseminate discoveries derived from Data. You must acknowledge The Association as the source of Data in all written, visual, or oral public disclosures concerning Your research using Data and include a link to the Direct Object Identifier (DOI) in all written disclosures concerning Your research using Data. Additionally, You are permitted to disclose Data to a journal publication that will be publishing or disseminating discoveries derived from Data as long as a link to the DOI is included in the written discoveries. See the data citation, generated by the Dataverse. </p> <p><b>IV. Acceptance of Risk</b> </p> <p>YOU AGREE THAT USING DATA IS ENTIRELY AT YOUR OWN RISK. DATA ARE PROVIDED "AS IS" WITHOUT ANY WARRANTY OR FITNESS FOR ANY PURPOSE WHATSOEVER, EITHER EXPRESSLY OR IMPLIED OR THAT THE USE OF DATA WILL NOT INFRINGE ANY PATENT, COPYRIGHT, TRADEMARK, OR OTHER PROPRIETARY RIGHTS. THE ASSOCIATION DISCLAIMS ALL AND ANY RESPONSIBILITY FOR WARRANTY OR FITNESS FOR A PARTICULAR PURPOSE. YOU AGREE AND UNDERSTAND THAT DATA MAY CONTAIN ERRORS, OMISSIONS AND/OR INACCURACIES. NOTWITHSTANDING, THE ASSOCIATION, TO THE BEST OF ITS KNOWLEDGE AND BELIEF, HAS THE RIGHT AND AUTHORITY TO PROVIDE DATA TO YOU FOR SECONDARY ANALYSES. </p> <p><b>V. Indemnity</b></p> <p> You agree to indemnify, defend and hold blameless The Association, its officers, directors, employees, agents, successors, assigns, contractors, and grantees (the "Association Indemnitees") against any and all damages or loss incurred by you, including without limitation any legal fees, as a result of or in connection with Your use of Data. </p>

<p> <b>TERMS OF ACCESS</b> </p> <p> <b>When you download a file:</b> </p> <p> The ALS Association and Harvard Dataverse administrators collects your personal information, specifically name, email address, institution, and position. </p> <p> <b>How we use this information:</b> </p> <p> The ALS Association and Harvard Dataverse administrators use the information you provide to fulfill online requests, understand which research fields are utilizing ALS Focus data, follow publications, reports, and presentations that use ALS Focus data, or in other ways as allowed by law. </p> <p> <b>We may use your information:</b> </p> <ul> <li>To respond to your requests</li> <li>To communicate changes to our terms of use</li> </ul> <b>Access to your information:</b> <p> Only those who need the provided information to perform a specific task have access to your information. These are authorized members of The ALS Association and Harvard Dataverse administrators. </p> <p> The ALS Association keeps personal information on file, but does not share, sell, license or transmit this information to third parties or external vendors unless required to do so by legal, judicial or governmental proceedings. </p>

Other Study Description Materials

File Description--f5745491

File: ALSFocusWave3_ALSFRSandVC.tab

  • Number of cases: 642

  • No. of variables per record: 18

  • Type of File: text/tab-separated-values

Notes:

UNF:6:HMSxkidxCSONjTfJ3pzidA==

File Description--f5745492

File: ALSFocusWave3_CaregiverNeeds.tab

  • Number of cases: 620

  • No. of variables per record: 138

  • Type of File: text/tab-separated-values

Notes:

UNF:6:Z43QrsBGaer2IS8T9JQ7Ew==

File Description--f5745488

File: ALSFocusWave3_DataDictionary.tab

  • Number of cases: 71

  • No. of variables per record: 9

  • Type of File: text/tab-separated-values

Notes:

UNF:6:YHmPeRGv/hPpTCeeo56A4g==

File Description--f5745493

File: ALSFocusWave3_Demographics.tab

  • Number of cases: 1420

  • No. of variables per record: 69

  • Type of File: text/tab-separated-values

Notes:

UNF:6:ELs4OXJiJ1XtAu5QfcGBuQ==

File Description--f5745489

File: ALSFocusWave3_HealthStatus.tab

  • Number of cases: 496

  • No. of variables per record: 29

  • Type of File: text/tab-separated-values

Notes:

UNF:6:GxdBWJtDQHTgHEEH8vtVxg==

Variable Description

List of Variables:

Variables

Subject_ID

f5745491 Location:

Summary Statistics: Min. 5.0; Max. 2084.0; StDev 493.5273580715459; Mean 635.8769470405014; Valid 642.0

Variable Format: numeric

Notes: UNF:6:BoxW7n7bR21W4IiaVWLNQg==

NeuroStamp

f5745491 Location:

Variable Format: character

Notes: UNF:6:21FXPbTbpop17b/01pa/Tw==

Group

f5745491 Location:

Variable Format: character

Notes: UNF:6:IkOLBOQzwlkodSNeMytPiA==

wave

f5745491 Location:

Summary Statistics: StDev 0.6429558590012532; Max. 3.0; Mean 1.7352024922118365; Valid 642.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:k/MHDfZh6o6fSzyIwyIvUQ==

time

f5745491 Location:

Summary Statistics: Valid 642.0; Min. 1.0; Mean 1.3208722741433017; StDev 0.6975556962273898; Max. 5.0

Variable Format: numeric

Notes: UNF:6:ewnTXd5WHxhBtVLy5hZr+g==

o1_aslfrsr_score

f5745491 Location:

Variable Format: character

Notes: UNF:6:PURBJqQX/iTlqerk0rLv6A==

o1_alsfrsr_month

f5745491 Location:

Variable Format: character

Notes: UNF:6:JjUjZE7kV4+1xBy5HmxAwg==

o1_alsfrsr_year

f5745491 Location:

Summary Statistics: Min. 20.0; Valid 214.0; StDev 192.916244449883; Max. 2020.0; Mean 2000.728971962617

Variable Format: numeric

Notes: UNF:6:tgwr5dcnEjR+hwYVJM5QIQ==

o1_alsfrsr_dk

f5745491 Location:

Variable Format: character

Notes: UNF:6:kk34qVA3m79RP4kKeLb36Q==

o1_alsfrsr_pnta

f5745491 Location:

Summary Statistics: Min. 1.0; Valid 1.0; StDev 0.0; Mean 1.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:ENO/XM2Na76YTuBFjPlgZQ==

o1_alsfrsr_nh

f5745491 Location:

Variable Format: character

Notes: UNF:6:yF4Q8oK1hCzUHqiE+tUr2g==

o2_vc_indication

f5745491 Location:

Variable Format: character

Notes: UNF:6:WpD/EKfMj8ZuBAp0u3rtBg==

o2_vc_percent

f5745491 Location:

Variable Format: character

Notes: UNF:6:SoivkVOi/x5GgOtitn38IA==

o2_vc_month

f5745491 Location:

Summary Statistics: StDev 3.9250784810894834; Valid 222.0; Mean 5.968468468468469; Min. 1.0; Max. 12.0;

Variable Format: numeric

Notes: UNF:6:hxnsBmrfuMC/QIZ44g7iNA==

o2_vc_year

f5745491 Location:

Variable Format: character

Notes: UNF:6:bnuVRg4zIvu3Y1aJ+9deXg==

o2_vc_dk

f5745491 Location:

Variable Format: character

Notes: UNF:6:zBQCZHKxU/v0gdyo6Mg4Lw==

o2_vc_pnta

f5745491 Location:

Summary Statistics: Max. 1.0; Min. 1.0; Mean 1.0; StDev 0.0; Valid 1.0

Variable Format: numeric

Notes: UNF:6:pBtmTD20t4ynwu6idb5EbQ==

o2_vc_nh

f5745491 Location:

Variable Format: character

Notes: UNF:6:xACYCZRPJpF5G6CcQPCDHA==

Subject_ID

f5745492 Location:

Summary Statistics: Valid 620.0; StDev 578.3744154150415; Max. 2070.0; Mean 1324.5806451612873; Min. 6.0;

Variable Format: numeric

Notes: UNF:6:NYtCBk6ynItlOXSyDHRXbg==

NeuroStamp

f5745492 Location:

Variable Format: character

Notes: UNF:6:QHLqm+EpBJcoc09CJ3v0+A==

Group

f5745492 Location:

Variable Format: character

Notes: UNF:6:6G/zDveyp6CneyLgscvkkA==

cn1_carehours

f5745492 Location:

Variable Format: character

Notes: UNF:6:cylj6DcxtfJqv338Ktyoow==

cn2_walk

f5745492 Location:

Variable Format: character

Notes: UNF:6:Xx4gCzZfXB/5CvDUWqAEFQ==

cn2_wheelchair

f5745492 Location:

Variable Format: character

Notes: UNF:6:RQ3chAD4xSO1JnYN1YfzwQ==

cn2_hands

f5745492 Location:

Variable Format: character

Notes: UNF:6:cTKzv6nxmGNGeAutw7xkRw==

cn2_breathe

f5745492 Location:

Variable Format: character

Notes: UNF:6:PfpcE3J2FXEpG4m5Q20vpg==

cn2_vent_sleep

f5745492 Location:

Variable Format: character

Notes: UNF:6:7y3kw1tVSlUqhnPi43Mznw==

cn2_vent_day

f5745492 Location:

Variable Format: character

Notes: UNF:6:lOX5DKaJGEf+E1ZtqO9qtg==

cn2_voice

f5745492 Location:

Variable Format: character

Notes: UNF:6:En0yCGoZEZCrvwhcDyTGQw==

cn2_speechdev

f5745492 Location:

Variable Format: character

Notes: UNF:6:bFfEXgnP2FjRAqbndBNN/Q==

cn2_eyegaze

f5745492 Location:

Variable Format: character

Notes: UNF:6:tHVKj1rEa/hjrdTJyVcwlA==

cn2_chew

f5745492 Location:

Variable Format: character

Notes: UNF:6:rcunRuKPQ/nkUiBoqanuNQ==

cn2_tube

f5745492 Location:

Variable Format: character

Notes: UNF:6:+9k76n8fdo80azSYmSHefA==

cn2_caregiver

f5745492 Location:

Variable Format: character

Notes: UNF:6:KEeq5KwzzdXXFz6ZZrUvZg==

cn2_functions_none

f5745492 Location:

Variable Format: character

Notes: UNF:6:X+JO9LtRW5pyVusIjJx3ug==

cn2_functions_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:ZSuEWmNUIseKV2sk3PWznA==

cn3_training_general

f5745492 Location:

Variable Format: character

Notes: UNF:6:m+qa/JRhBZC9oJenGCGPMA==

cn3_training_feed

f5745492 Location:

Variable Format: character

Notes: UNF:6:puX3cCAyxXnzdNQy0ez9qg==

cn3_training_tech

f5745492 Location:

Variable Format: character

Notes: UNF:6:HOziUXWRWA/l6BoPbcClMw==

cn3_multi_clinic

f5745492 Location:

Variable Format: character

Notes: UNF:6:ef13Fc1TvtSMVcBm9OaOOw==

cn3_casemanage

f5745492 Location:

Variable Format: character

Notes: UNF:6:PhB2WtgLkIFWkT5aE7n/Pg==

cn3_navigator

f5745492 Location:

Variable Format: character

Notes: UNF:6:+7mvqaIocB7UBx4i0Ij6MQ==

cn3_visit_medical

f5745492 Location:

Variable Format: character

Notes: UNF:6:h1jMTVh0soZsWNaWun4yeg==

cn3_visit_chapter

f5745492 Location:

Variable Format: character

Notes: UNF:6:j08i35xrujfp0cPHZEA4UA==

cn3_hospice

f5745492 Location:

Variable Format: character

Notes: UNF:6:rmXBTYrgKozoXlau9AedEg==

cn3_respite

f5745492 Location:

Variable Format: character

Notes: UNF:6:vDfuMKnn8J96hmWtTntOug==

cn3_counseling_cg

f5745492 Location:

Variable Format: character

Notes: UNF:6:jA0+/Zm1R0SQK9mWdcy0Bg==

cn3_counseling_pals

f5745492 Location:

Variable Format: character

Notes: UNF:6:G5xl7bEhTgj6oAnGgOeo8Q==

cn3_support_cg

f5745492 Location:

Variable Format: character

Notes: UNF:6:XBN4EYC8vUn6izvDmUSY+Q==

cn3_support_youth

f5745492 Location:

Variable Format: character

Notes: UNF:6:71VcePpt/lBNM++fRygHxw==

cn3_support_bereave

f5745492 Location:

Variable Format: character

Notes: UNF:6:HRTGuXKIbGGwnl4aEHHuDQ==

cn3_finance_health

f5745492 Location:

Variable Format: character

Notes: UNF:6:VxsUfpCYbGST5A0BJxXBcA==

cn3_finance_general

f5745492 Location:

Variable Format: character

Notes: UNF:6:EIubUwMYEAmT1V2o4gWTiA==

cn3_equip_loan

f5745492 Location:

Variable Format: character

Notes: UNF:6:5jFAT5cJTrGuqTuSycLpcw==

cn3_modifyhome

f5745492 Location:

Variable Format: character

Notes: UNF:6:34nW02xFrW5keBdMwc3l9A==

cn3_volunteer

f5745492 Location:

Variable Format: character

Notes: UNF:6:jXn/2mJW8aX4fOgQ8AOgIg==

cn3_nutrition

f5745492 Location:

Variable Format: character

Notes: UNF:6:2+E9jPsRyh6jxZYPTLBNqg==

cn3_transport

f5745492 Location:

Variable Format: character

Notes: UNF:6:MvtEj1+W4OqZn5X4obt/tw==

cn3_va_programs

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Variable Format: character

Notes: UNF:6:mPMtW/zSwV3jfC/Sa0PVeQ==

cn3_programs_other

f5745492 Location:

Variable Format: character

Notes: UNF:6:TjF2n2tdk/iPyrCHcPcyqQ==

cn3_programs_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:MIYLRK7d7iWJO5p2cZPD4Q==

cn3_programs_oe

f5745492 Location:

Variable Format: character

Notes: UNF:6:CHCSAiiFF9DhtRSCUYImbQ==

cn4_prepared

f5745492 Location:

Variable Format: character

Notes: UNF:6:ILc4q/Da3lm69xHmcYgZcg==

cn4_prepared_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:fTZU9RW19rHz2VpkYBwDoA==

cn5_training_general

f5745492 Location:

Variable Format: character

Notes: UNF:6:p0ZzznPR581iSje4kkd4cw==

cn5_training_feed

f5745492 Location:

Variable Format: character

Notes: UNF:6:ANvUABPhF5a2hJn5DqgbLA==

cn5_training_tech

f5745492 Location:

Variable Format: character

Notes: UNF:6:RX+R/NwVR2r5IioJkjockA==

cn5_multi_clinic

f5745492 Location:

Variable Format: character

Notes: UNF:6:xP7bDvjSqIUuM9yozdyo1A==

cn5_casemanage

f5745492 Location:

Variable Format: character

Notes: UNF:6:B0HNtAgWfWRsRiqHv1q56Q==

cn5_navigator

f5745492 Location:

Variable Format: character

Notes: UNF:6:5BMuiMa4I0sR64GogM61Jg==

cn5_visit_medical

f5745492 Location:

Variable Format: character

Notes: UNF:6:+MJL9G5pFxdoz72M9R+ylw==

cn5_visit_chapter

f5745492 Location:

Variable Format: character

Notes: UNF:6:7Eruri2hYGrhyQrnwclerA==

cn5_hospice

f5745492 Location:

Variable Format: character

Notes: UNF:6:6QPtQB6+shxwgfSuDNjewg==

cn5_respite

f5745492 Location:

Variable Format: character

Notes: UNF:6:iNzxv5o4A1ja2qPJYYaZyg==

cn5_counseling_cg

f5745492 Location:

Variable Format: character

Notes: UNF:6:Czyt17XcGXDL3zAuImfbDQ==

cn5_counseling_pals

f5745492 Location:

Variable Format: character

Notes: UNF:6:0r1VoAKJUXmUKJ8fm1GFfw==

cn5_support_cg

f5745492 Location:

Variable Format: character

Notes: UNF:6:fDBg8vLDhKqbePx6Aylsog==

cn5_support_youth

f5745492 Location:

Variable Format: character

Notes: UNF:6:ITibW3JMVLKaigM5n4tRyg==

cn5_support_bereave

f5745492 Location:

Variable Format: character

Notes: UNF:6:jmgl1RcXd2jYxcnhJTrXDA==

cn5_finance_health

f5745492 Location:

Variable Format: character

Notes: UNF:6:zAJQFhSyKGx6xfUD9fyYwQ==

cn5_finance_general

f5745492 Location:

Variable Format: character

Notes: UNF:6:BN1KxRRpTNYYY1Ez9nRqIw==

cn5_equip_loan

f5745492 Location:

Variable Format: character

Notes: UNF:6:HEznT315Rtp+PjldCOnClg==

cn5_modifyhome

f5745492 Location:

Variable Format: character

Notes: UNF:6:71U7CpapYIGKW6X3mfsW7Q==

cn5_volunteer

f5745492 Location:

Variable Format: character

Notes: UNF:6:hZYQRhLQ/876tvBBtqZQBg==

cn5_nutrition

f5745492 Location:

Variable Format: character

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cn5_transport

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Variable Format: character

Notes: UNF:6:q1d1M55UnTgv35S53vGCVw==

cn5_va_programs

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Variable Format: character

Notes: UNF:6:0wfYHZDZihvLqzF3vMnpTA==

cn5_programs_other

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Variable Format: character

Notes: UNF:6:n9LgerOU8xjNdTG80wDBAw==

cn5_programs_pnta

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Variable Format: character

Notes: UNF:6:ZJmrc1PicW6n97QCOv7bHw==

cn5_programs_oe

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Variable Format: character

Notes: UNF:6:OlqlEFT4s02YJyvkvTvjHQ==

cn6_bathing

f5745492 Location:

Variable Format: character

Notes: UNF:6:vaO/BD+azCA3tRfc9m8G6w==

cn6_hygiene

f5745492 Location:

Variable Format: character

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cn6_physicaltherapy

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Variable Format: character

Notes: UNF:6:HS4bRBPqb0Sn0gQxd5q+1Q==

cn6_bandage

f5745492 Location:

Variable Format: character

Notes: UNF:6:FN4oLdyR4uobsq+J5thHYg==

cn6_cleantube

f5745492 Location:

Variable Format: character

Notes: UNF:6:Je1QUFYZGTTHoRfNc7UnKg==

cn6_familycare

f5745492 Location:

Variable Format: character

Notes: UNF:6:2gCuLR83IopN/5qqNgXYDQ==

cn6_communicate

f5745492 Location:

Variable Format: character

Notes: UNF:6:A/sCoDYxvHW19Xw4hTnXcw==

cn6_drive

f5745492 Location:

Variable Format: character

Notes: UNF:6:rRx5+BjA84GPlgFJmm7Yzw==

cn6_feed

f5745492 Location:

Variable Format: character

Notes: UNF:6:08OMIYGlkw5YiaOXHvMg9w==

cn6_outsidecare

f5745492 Location:

Variable Format: character

Notes: UNF:6:1/kjK859WtWKtXkj9TpVww==

cn6_grocery

f5745492 Location:

Variable Format: character

Notes: UNF:6:0ryTygtDiAR2gnd0XTfS2w==

cn6_bed

f5745492 Location:

Variable Format: character

Notes: UNF:6:gkf6exxgBBHhVarxNJUYDw==

cn6_lifting

f5745492 Location:

Variable Format: character

Notes: UNF:6:bMnTDUUyNAWntxZe6LNoZA==

cn6_clincaltrial

f5745492 Location:

Variable Format: character

Notes: UNF:6:I+9LFPqMbaZJPWh44P3kqQ==

cn6_paperwork

f5745492 Location:

Variable Format: character

Notes: UNF:6:bOR6nxnRiJNmu5e4DRInHg==

cn6_operate

f5745492 Location:

Variable Format: character

Notes: UNF:6:R3ZxUal1+vbs1rF8drdP/Q==

cn6_mealprep

f5745492 Location:

Variable Format: character

Notes: UNF:6:M+mYNwmoXl1j1YA3Fp/9cw==

cn6_companion

f5745492 Location:

Variable Format: character

Notes: UNF:6:ZSXltiTMRWONMm5qNhdpgA==

cn6_emotionalsupport

f5745492 Location:

Variable Format: character

Notes: UNF:6:KPJvDcfXOi18bUbTwmTKLQ==

cn6_caretype_other

f5745492 Location:

Variable Format: character

Notes: UNF:6:l/VM8BeyaUfMbTB/M6/SBQ==

cn6_caretype_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:QAg834npL59Lcz1ttPH2gw==

cn6_caretype_oe

f5745492 Location:

Variable Format: character

Notes: UNF:6:pP54Pqwtidf5bxjgiysVug==

cn7_hobbies

f5745492 Location:

Variable Format: character

Notes: UNF:6:YRawRApZag9BGbC4tWcxag==

cn7_depression

f5745492 Location:

Variable Format: character

Notes: UNF:6:mYE6piOviHAgCmkeMVKlcA==

cn7_work

f5745492 Location:

Variable Format: character

Notes: UNF:6:OQKd6t3CuEtYE2xd6J2TZA==

cn7_financial_stress

f5745492 Location:

Variable Format: character

Notes: UNF:6:f8h9sGt+2JL8vP0HUfxlGQ==

cn7_harmhealth

f5745492 Location:

Variable Format: character

Notes: UNF:6:XWZGDD+JJeRI8SQj3wB/fw==

cn7_injury

f5745492 Location:

Variable Format: character

Notes: UNF:6:nlDuzpCRf7mAGSgFRJ3XOQ==

cn7_selfcare

f5745492 Location:

Variable Format: character

Notes: UNF:6:/+wSTRB1iV42D8yPkFM1ZQ==

cn7_family_support

f5745492 Location:

Variable Format: character

Notes: UNF:6:NLKUUNStK2QE5LibEdzGaQ==

cn7_faith

f5745492 Location:

Variable Format: character

Notes: UNF:6:10RPSl8pAG0NWBIo/tIemQ==

cn7_friendship

f5745492 Location:

Variable Format: character

Notes: UNF:6:Ew09+1axCAZxAsU2A5+RXQ==

cn7_loneliness

f5745492 Location:

Variable Format: character

Notes: UNF:6:Ft/18OfwafC5uwGIhp9bmw==

cn7_children

f5745492 Location:

Variable Format: character

Notes: UNF:6:SNCDmIIm+PIZYSrpTcUXgg==

cn7_future

f5745492 Location:

Variable Format: character

Notes: UNF:6:N+taLEKo9JXZ4wGw0ro7hA==

cn7_family_wellbeing

f5745492 Location:

Variable Format: character

Notes: UNF:6:1xdA1kld7MlNcHZYsA3cmw==

cn7_concerns_other

f5745492 Location:

Variable Format: character

Notes: UNF:6:hMFOVVpFc+KkAoE6VN7suw==

cn7_concerns_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:vc8SVRl1rBdcwr8/IJrcjg==

cn7_concerns_oe

f5745492 Location:

Variable Format: character

Notes: UNF:6:Y3LbyVbQXYXSr+LbyZKUwA==

cn8_qualitylife

f5745492 Location:

Variable Format: character

Notes: UNF:6:bPlC45Vri6wolOPDv8oBaQ==

cn8_qualitylife_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:8nvTYjT8v+yot5jiP+5O2Q==

cn9_diag_date

f5745492 Location:

Variable Format: character

Notes: UNF:6:FQz6MH9RvFvleIwCa8s9WQ==

cn9_diag_date_dk

f5745492 Location:

Variable Format: character

Notes: UNF:6:FQz6MH9RvFvleIwCa8s9WQ==

cn9_diag_date_pnta

f5745492 Location:

Summary Statistics: Min. NaN; StDev NaN; Valid 0.0; Mean NaN; Max. NaN

Variable Format: numeric

Notes: UNF:6:WzDXb2YTt8ZwYfAaSKdMTw==

cn10_veteran

f5745492 Location:

Variable Format: character

Notes: UNF:6:T/SySFGiJKT3Zrlg/X8uuw==

cn10_veteran_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:hQTZGsuqHP6vGjniVPv3Mg==

cn11_medicare

f5745492 Location:

Variable Format: character

Notes: UNF:6:ULlB9iGf+nxSXcbpmW+Log==

cn11_va_insur

f5745492 Location:

Variable Format: character

Notes: UNF:6:xk8/R/n8f/GdKmWkpddQEA==

cn11_tricare

f5745492 Location:

Variable Format: character

Notes: UNF:6:e8jEXkULYDqGCba7FFSdJg==

cn11_medicaid

f5745492 Location:

Variable Format: character

Notes: UNF:6:G4rTi7XmwA7O799uJkmJUg==

cn11_employer

f5745492 Location:

Variable Format: character

Notes: UNF:6:3JCdxkmf3iokUOfUeWoy9Q==

cn11_private

f5745492 Location:

Variable Format: character

Notes: UNF:6:Q5pam96tVp+1HbKOX9mjFw==

cn11_tribal

f5745492 Location:

Variable Format: character

Notes: UNF:6:BleEDBz0O71bXuttN5np3A==

cn11_insur_other

f5745492 Location:

Variable Format: character

Notes: UNF:6:QjSBWyYa309u2aEZC7ZmDw==

cn11_insur_none

f5745492 Location:

Variable Format: character

Notes: UNF:6:8473X0RcyHWbFr5F7EyO2w==

cn11_insur_dk

f5745492 Location:

Variable Format: character

Notes: UNF:6:ah0qR8NoWipeGTr/nPj8iw==

cn11_insur_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:eoiRJqYZYVJqnSw4q2vxQg==

cn11_insur_oe

f5745492 Location:

Variable Format: character

Notes: UNF:6:DfJa9X/yiiDcpukrLNlFpw==

cn12_feeforservice

f5745492 Location:

Variable Format: character

Notes: UNF:6:CJdmpDyPVBp1HacfuDf6Sg==

cn12_part_d

f5745492 Location:

Variable Format: character

Notes: UNF:6:zFXbt66Yv6zsa5v7SOx8DQ==

cn12_supplement

f5745492 Location:

Variable Format: character

Notes: UNF:6:2Xe/A/YO4EFmszZNoR8MkA==

cn12_advantage

f5745492 Location:

Variable Format: character

Notes: UNF:6:Ii8zgmqcFg7U6vukG2Ra+A==

cn12_dk

f5745492 Location:

Variable Format: character

Notes: UNF:6:T/nrtqYv1xninsqBi7CADA==

cn12_pnta

f5745492 Location:

Summary Statistics: Min. NaN; StDev NaN; Mean NaN; Valid 0.0; Max. NaN

Variable Format: numeric

Notes: UNF:6:WzDXb2YTt8ZwYfAaSKdMTw==

cn13_survey

f5745492 Location:

Variable Format: character

Notes: UNF:6:oc72A2hQQbEJ+rdV8EW6kA==

cn13_pnta

f5745492 Location:

Variable Format: character

Notes: UNF:6:Nx0Yf6atEbFvhUcGlTR/vg==

Variablename

f5745488 Location:

Variable Format: character

Notes: UNF:6:yCrRUcJ1rPzZeo0deljPnQ==

Description

f5745488 Location:

Variable Format: character

Notes: UNF:6:Yk2HuMNHgoajg3LqTzRGyw==

Variablevaluesandlabels

f5745488 Location:

Variable Format: character

Notes: UNF:6:cW62lrjKGtJwXoOaCH/d4w==

Notes

f5745488 Location:

Variable Format: character

Notes: UNF:6:fNoIO6L0tUXtx6NkffymlQ==

PersonwithALS

f5745488 Location:

Variable Format: character

Notes: UNF:6:OnYNphAMAJFjSs1uWKZ35g==

CurrentCaregiver

f5745488 Location:

Variable Format: character

Notes: UNF:6:p3bjQTgtpHQtej/i2JSEtA==

PastCaregiver

f5745488 Location:

Variable Format: character

Notes: UNF:6:d60tkTrfyWvhsywTnB6ajg==

Citation

f5745488 Location:

Variable Format: character

Notes: UNF:6:UzAW4Dt93ee3iyVMijxhmA==

Oldvariablenameforreference

f5745488 Location:

Variable Format: character

Notes: UNF:6:L8a8qBWcrMx3g4qO2gd1jQ==

Subject_ID

f5745493 Location:

Summary Statistics: Valid 1420.0; Min. 5.0; Mean 1005.9542253521146; Max. 2093.0; StDev 610.9445626652306

Variable Format: numeric

Notes: UNF:6:GM4WmhnXVED1wEHol3QgHg==

NeuroStamp

f5745493 Location:

Variable Format: character

Notes: UNF:6:gjmVQize7s6S7kMXFUpZYA==

Group

f5745493 Location:

Variable Format: character

Notes: UNF:6:Wg4eSdJRo++GbdQOP/6Xuw==

d1_age

f5745493 Location:

Variable Format: character

Notes: UNF:6:cxtJZ+V6qi9sxI10dUO1+Q==

d2_gender

f5745493 Location:

Variable Format: character

Notes: UNF:6:S4GfOZjAfhJ4eBTKxf5/Aw==

d2_gender_oe

f5745493 Location:

Variable Format: character

Notes: UNF:6:KXBRlkOZf0XP7rhA6i9otw==

d3_sex

f5745493 Location:

Variable Format: character

Notes: UNF:6:vhwyroR6Dy3Jh/VPalRIcw==

d4_ethnicity

f5745493 Location:

Variable Format: character

Notes: UNF:6:1vUO/Q2n6u2+oUBSb3ieUw==

d5_amerind_alaskan

f5745493 Location:

Variable Format: character

Notes: UNF:6:dMnky6dw5x5Mymcb39VA0g==

d5_asian

f5745493 Location:

Variable Format: character

Notes: UNF:6:NaTFl1ed5aiBnPn/aJiNyw==

d5_black

f5745493 Location:

Variable Format: character

Notes: UNF:6:I4WEGszZmVs7fsQpywbGCw==

d5_hawaii_pacific

f5745493 Location:

Variable Format: character

Notes: UNF:6:afQmndvMHGv6KnkXWhDpKA==

d5_white

f5745493 Location:

Variable Format: character

Notes: UNF:6:kaL0debtKjpVJcxg9E4IAQ==

d5_race_pnta

f5745493 Location:

Variable Format: character

Notes: UNF:6:q1AhfUj8ETvWxQqAVbJ05g==

d6_veteran

f5745493 Location:

Variable Format: character

Notes: UNF:6:OZKqizvkdMiWree7gNg/Vg==

d7_education

f5745493 Location:

Variable Format: character

Notes: UNF:6:WIX9un6yGNOPvlw/9BE3Qw==

d8_language

f5745493 Location:

Variable Format: character

Notes: UNF:6:qUvsQJmy1Qqmpu0ts0gTHg==

d8_language_oe

f5745493 Location:

Variable Format: character

Notes: UNF:6:3s7FGmXEPBBDMD3SnUmAOg==

d9_zip_pnta

f5745493 Location:

Variable Format: character

Notes: UNF:6:cwvj640gRz3/VRMieGbH4Q==

d10_marital

f5745493 Location:

Variable Format: character

Notes: UNF:6:xsI95pShNGvqcBfMcgOyFQ==

p1_alstype

f5745493 Location:

Variable Format: character

Notes: UNF:6:jlg/zi+w9QW9ilC0u+4kwA==

p2_genetest

f5745493 Location:

Variable Format: character

Notes: UNF:6:nWxxnqO5nOysHc2x+gdy0w==

p2_2_geneinterest

f5745493 Location:

Variable Format: character

Notes: UNF:6:E8+g/rStWwseWjdaoI9OCA==

p3_onset_location

f5745493 Location:

Variable Format: character

Notes: UNF:6:wjTxLuJ/ytuQX3Gj8AFyjw==

p4_onset_month

f5745493 Location:

Variable Format: character

Notes: UNF:6:IAIIZUH+V0vsSWCLA5eSBw==

p4_onset_year

f5745493 Location:

Summary Statistics: Mean 2000.5944055944055; Valid 429.0; Min. 3.0; StDev 162.1311444664862; Max. 2020.0

Variable Format: numeric

Notes: UNF:6:QA3/5IbJ1ZvdpCTGHKIrxA==

p4_onset_pnta

f5745493 Location:

Variable Format: character

Notes: UNF:6:Ijs+g92TVPeOjd/cw3qvlQ==

p4_onset_dk

f5745493 Location:

Variable Format: character

Notes: UNF:6:e2ubr2L8DbrJyxhAUTYP/A==

p5_diag_month

f5745493 Location:

Variable Format: character

Notes: UNF:6:NiRe7Fvw+YaaqaQ+ENdX8Q==

p5_diag_year

f5745493 Location:

Summary Statistics: Valid 448.0; Max. 3019.0; Min. 18.0; Mean 2014.1049107142858; StDev 105.82176638014052

Variable Format: numeric

Notes: UNF:6:LMUgNULOXs5ao8MdKI4Ilg==

p5_diag_pnta

f5745493 Location:

Variable Format: character

Notes: UNF:6:AcfnfdHBt/Pu49zPZX4v0Q==

p5_diag_dk

f5745493 Location:

Variable Format: character

Notes: UNF:6:KHpPBERJXRozbeke5bw8Dg==

p6_inc_pre

f5745493 Location:

Variable Format: character

Notes: UNF:6:dSmiqJ0u+wFaq/zF83AXOQ==

p7_inc_curr

f5745493 Location:

Variable Format: character

Notes: UNF:6:WHoZZCB2Y2Vozx2iCatWBw==

p8_employ_pre

f5745493 Location:

Variable Format: character

Notes: UNF:6:TjYRSoMU9TYODLXgH255Dw==

p8_employ_pre_oe

f5745493 Location:

Variable Format: character

Notes: UNF:6:68+ktHfLTkZ8zjIrHTXN4w==

p9_employ_curr

f5745493 Location:

Variable Format: character

Notes: UNF:6:k9vjxyyDSL8+4sKVaiyg3w==

p9_employ_curr_oe

f5745493 Location:

Variable Format: character

Notes: UNF:6:P8TZ8gHg3AdcSPe1hQuiPg==

p10_nocare

f5745493 Location:

Variable Format: character

Notes: UNF:6:/KjPdk2oHQjuZNQ4cO6R4A==

p10_carevisit

f5745493 Location:

Variable Format: character

Notes: UNF:6:JUWqqg6eltyOXPFK1hOIlw==

p10_share_home

f5745493 Location:

Variable Format: character

Notes: UNF:6:/Rbot7/3x9UTJXr2oTZsJA==

p10_facility

f5745493 Location:

Variable Format: character

Notes: UNF:6:FpvFyeuqkLuIfA5zxXGWdA==

p10_living_other

f5745493 Location:

Variable Format: character

Notes: UNF:6:zvBl7p6VvxUuMn90T1Dtbw==

p10_living_pnta

f5745493 Location:

Variable Format: character

Notes: UNF:6:l+0UayG8DcbnY0IxyhAAcA==

p10_living_oe

f5745493 Location:

Variable Format: character

Notes: UNF:6:AkxoHWFmCGcksElqlmRGMA==

p11_multi_clinic

f5745493 Location:

Variable Format: character

Notes: UNF:6:MRBuoTtTF5hOJxK6ZC4UuQ==

p12_commute_clinic

f5745493 Location:

Variable Format: character

Notes: UNF:6:89UOK1Aj1TQo9L2i0exYGQ==

p13_medicare

f5745493 Location:

Variable Format: character

Notes: UNF:6:Nhox/fuOFUfLldHP4ORSIQ==

p13_va_insur

f5745493 Location:

Variable Format: character

Notes: UNF:6:81MOh3GUTkWaNuo6cOzpgA==

p13_tricare

f5745493 Location:

Variable Format: character

Notes: UNF:6:gvG1a8wEc0qZp8gVq+7mIg==

p13_medicaid

f5745493 Location:

Variable Format: character

Notes: UNF:6:A0P4A00ylLrTW6ng2+g+Ug==

p13_employer

f5745493 Location:

Variable Format: character

Notes: UNF:6:+FXpMRb73vcdMwrw6cQ9kQ==

p13_private

f5745493 Location:

Variable Format: character

Notes: UNF:6:aqaDGb0o6Z+jXuq8+YGtQw==

p13_tribal

f5745493 Location:

Summary Statistics: Min. NaN; Max. NaN; Valid 0.0; Mean NaN; StDev NaN;

Variable Format: numeric

Notes: UNF:6:a/1qIviRUe2svNsvDth5uQ==

p13_insur_other

f5745493 Location:

Variable Format: character

Notes: UNF:6:1K44WlS+TnyWonusqwjQ7Q==

p13_insur_none

f5745493 Location:

Variable Format: character

Notes: UNF:6:H1I9H7LPcEvj8Lpy/BcXFg==

p13_insur_dk

f5745493 Location:

Summary Statistics: StDev NaN; Min. NaN; Mean NaN; Valid 0.0; Max. NaN;

Variable Format: numeric

Notes: UNF:6:a/1qIviRUe2svNsvDth5uQ==

p13_insur_oe

f5745493 Location:

Variable Format: character

Notes: UNF:6:72EHYlhlUv646i7EHTDs1g==

c0_professional

f5745493 Location:

Variable Format: character

Notes: UNF:6:e3EU2BVFioGczUgDQzh8zg==

cg1_employ_curr

f5745493 Location:

Variable Format: character

Notes: UNF:6:e5HfRSmfm5py1PseGtTZDw==

cg1_employ_curr_oe

f5745493 Location:

Variable Format: character

Notes: UNF:6:1uxgeQPMw7vsDERCdoAdKg==

cg2_living

f5745493 Location:

Variable Format: character

Notes: UNF:6:6g+hAX7AOsXcRCKA8UiloQ==

cg2_living_oe

f5745493 Location:

Variable Format: character

Notes: UNF:6:02tUwwbnC5GCYpO4JAzDdg==

cg3_inc_curr

f5745493 Location:

Variable Format: character

Notes: UNF:6:Exwa0VSJa2WQ5OqEeZ0N5w==

cg4_last_care

f5745493 Location:

Variable Format: character

Notes: UNF:6:Z61IF5eG6oKtjDsuqxi5ZQ==

d9_state

f5745493 Location:

Variable Format: character

Notes: UNF:6:YvwQYRbkXsbRDd6imIXjYg==

d9_urban_rural

f5745493 Location:

Variable Format: character

Notes: UNF:6:Cvh32JuwM+gjO6j+LanlNQ==

p4_onset_date

f5745493 Location:

Variable Format: character

Notes: UNF:6:qpzZ04UYKmfvmh3jBF9ShA==

p5_diag_date

f5745493 Location:

Variable Format: character

Notes: UNF:6:c2MT3Od3pNkwXzqFLT6Ekg==

Subject_ID

f5745489 Location:

Summary Statistics: Valid 496.0; StDev 533.9525248468468; Min. 9.0; Max. 2084.0; Mean 797.1108870967754;

Variable Format: numeric

Notes: UNF:6:EgIy3NpmvnSHp1gBRJcxxA==

NeuroStamp

f5745489 Location:

Variable Format: character

Notes: UNF:6:xrqkP+l/8eo0WN7gBeuI7w==

Group

f5745489 Location:

Variable Format: character

Notes: UNF:6:QkkNHyoiPIc1uFSVATwqKg==

wave

f5745489 Location:

Summary Statistics: Min. 2.0; Mean 2.165322580645162; StDev 0.3718464665979863; Max. 3.0; Valid 496.0

Variable Format: numeric

Notes: UNF:6:48AYShAM/lRsjOmdB5q51g==

time

f5745489 Location:

Summary Statistics: Max. 6.0; Mean 1.4737903225806455; StDev 0.7883742050953291; Min. 1.0; Valid 496.0

Variable Format: numeric

Notes: UNF:6:H6Q6Si2xWKgH2Mm+h4B3og==

q1_speech

f5745489 Location:

Variable Format: character

Notes: UNF:6:WM97aveybcD2eK1S/KKPiA==

q2_resp

f5745489 Location:

Variable Format: character

Notes: UNF:6:qUG/AWP8zaSPAIYmy0sVsw==

q3_hours

f5745489 Location:

Variable Format: character

Notes: UNF:6:4YohiGmPDts4tB6lXTk4bg==

q4_invasive

f5745489 Location:

Variable Format: character

Notes: UNF:6:VZr2/Y8gD5SsmqekJ4W5Kw==

q5_respdev

f5745489 Location:

Variable Format: character

Notes: UNF:6:iPBzfe4gMTNiqVSVngyrgw==

q5_respdev_oe

f5745489 Location:

Variable Format: character

Notes: UNF:6:0qCYlEMLHcrNaw1iLyZHeg==

q6_mobile_none

f5745489 Location:

Variable Format: character

Notes: UNF:6:fmEekLtvZQ4YPFSTdvPk/A==

q6_cane

f5745489 Location:

Variable Format: character

Notes: UNF:6:FQ6VRJ+9JTySryGo0UoKvg==

q6_walker

f5745489 Location:

Variable Format: character

Notes: UNF:6:6VkdBxkJ39FSQq8x2CEHiw==

q6_manualwc

f5745489 Location:

Variable Format: character

Notes: UNF:6:WAi9Qu4kbY6/uTnN5ScH1g==

q6_motorwc

f5745489 Location:

Variable Format: character

Notes: UNF:6:6bwyobAGk6tHbl7snc/sBg==

q6_mobile_other

f5745489 Location:

Variable Format: character

Notes: UNF:6:BAG6zRhChVueZhnW+qwAZw==

q6_mobile_pnta

f5745489 Location:

Variable Format: character

Notes: UNF:6:WHmttZtuH2oPsE15QdKyaA==

q6_mobile_oe

f5745489 Location:

Variable Format: character

Notes: UNF:6:HatBDZPrOsUZALmgM5OI/A==

q7_joystick

f5745489 Location:

Variable Format: character

Notes: UNF:6:qLe7q1D+zFTvzuuTsvfVMw==

q7_headchin

f5745489 Location:

Variable Format: character

Notes: UNF:6:INMLSj3pWIGL2ndxphx80w==

q7_sippuff

f5745489 Location:

Variable Format: character

Notes: UNF:6:38W+mfH3pwBCstmiwaitQA==

q7_eyecontrol

f5745489 Location:

Variable Format: character

Notes: UNF:6:bsG7OSSUBIfXXEPJIztPXA==

q7_caregiver

f5745489 Location:

Variable Format: character

Notes: UNF:6:crsMZWSrj/Jk15FvD0Yy1g==

q7_wc_other

f5745489 Location:

Variable Format: character

Notes: UNF:6:3kFFDCs8u2Jhaj1z3OywCQ==

q7_wc_pnta

f5745489 Location:

Summary Statistics: Valid 0.0; Max. NaN; Mean NaN; StDev NaN; Min. NaN;

Variable Format: numeric

Notes: UNF:6:iqAaq8ktsvkP8a13O0HTnw==

q7_wc_oe

f5745489 Location:

Variable Format: character

Notes: UNF:6:NJZ7x2S+GqQgOplrWrMN7A==

q8_tube

f5745489 Location:

Variable Format: character

Notes: UNF:6:m2YM3gluQJnNG9hFeqIDdg==

q8_tube_oe

f5745489 Location:

Variable Format: character

Notes: UNF:6:7Q9fBYP0UQKh4PleFF/gOA==

Other Study-Related Materials

Label:

ALSFocusWave3_FilesDescription.docx

Text:

Description of Public Data Files

Notes:

application/vnd.openxmlformats-officedocument.wordprocessingml.document