ALS Focus Wave 4 – Telehealth Survey (doi:10.7910/DVN/RMBES9)

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Part 1: Document Description
Part 2: Study Description
Part 3: Data Files Description
Part 4: Variable Description
Part 5: Other Study-Related Materials
Entire Codebook

Document Description

Citation

Title:

ALS Focus Wave 4 – Telehealth Survey

Identification Number:

doi:10.7910/DVN/RMBES9

Distributor:

Harvard Dataverse

Date of Distribution:

2022-09-06

Version:

1

Bibliographic Citation:

The ALS Association, 2022, "ALS Focus Wave 4 – Telehealth Survey", https://doi.org/10.7910/DVN/RMBES9, Harvard Dataverse, V1, UNF:6:FTk27cD93UByLgbMwh6O6A== [fileUNF]

Study Description

Citation

Title:

ALS Focus Wave 4 – Telehealth Survey

Identification Number:

doi:10.7910/DVN/RMBES9

Authoring Entity:

The ALS Association

Other identifications and acknowledgements:

The ALS Association

Other identifications and acknowledgements:

Neurological Clinical Research Institute, Massachusetts General Hospital

Producer:

The ALS Association

Distributor:

Harvard Dataverse

Access Authority:

Sherman, Alexander

Depositor:

Katsovskiy, Igor

Date of Deposit:

2022-09-01

Holdings Information:

https://doi.org/10.7910/DVN/RMBES9

Study Scope

Keywords:

Medicine, Health and Life Sciences, Medicine, Health and Life Sciences, ALS, Survey, Focus, Telehealth, Virtual, Internet, Video, Cost, Clinical trial

Topic Classification:

ALS

Abstract:

The NeuroVERSE record contains the following files: <ol> <li>ALSFocusWave4_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 4.</li> <li>ALSFocusWave4_Telehealth.csv – This file contains responses to the Telehealth survey for people with ALS and current caregivers. This survey was available in Wave 4. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.</li> <li>ALSFocusWave4_Demographics.csv – This file contains responses to the Demographics survey since ALS Focus launched in February 2020. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.</li> <li>ALSFocusWave4_ALSFRSandVC.csv – This data file contains responses to questions on ALSFRS-R and Vital Capacity scores since Wave 1. Starting in Wave 2, participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.</li> <li>ALSFocusWave4_HealthStatus.csv – This data file contains responses to the Health Status survey since Wave 2 when the Health Status survey opened. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.</li> </ol>

Methodology and Processing

Sources Statement

Data Access

Restrictions:

The Amyotrophic Lateral Sclerosis Association (“The Association”) grants a non-exclusive, non-assignable, non-transferable, royalty free license to use Data for educational and research analyses purposes (“Secondary Analyses”). Data shall not be used for any purpose other than Secondary Analyses. Data Requestor shall not disclose, release, sell, rent, lease, loan, or otherwise grant access to Data to any third party without the prior written consent of The Association. You acknowledge the importance of data privacy of individuals to whom accessed Data may relate, and, accordingly, commit to comply with all applicable data privacy protection laws, not to attempt to identify subjects, and not to combine accessed Data with other sources of data that would lead to the deliberate identification of any individual.

Access Authority:

Sarah Parvanta<br/> ALSFocus@als.org<br/> 202-464-8847<br/>

Citation Requirement:

The Association must be acknowledged as the source of Data in all written, visual, or oral public disclosures concerning Your research using Data, and a link to the Direct Object Identifier (DOI) must be included in all written disclosures concerning Your research using Data. Additionally, You are permitted to disclose Data to a journal publication that will be publishing or disseminating discoveries derived from Data as long as a link to the DOI is included in the written discoveries. See the data citation, generated by the Dataverse.

Disclaimer:

The Association reserves the right to withhold, remove, and/or discard Data from the Dataverse without notice to You. Except to the extent prohibited by law, You assume all liability for damages which may arise from Your use, storage, disclosure, or disposal of Data. The Association will not be liable to You for any loss, claim, or demand You make, or made against You by any other party, due to or arising from the use of Data by You, except to the extent permitted by law when caused by the gross negligence or willful misconduct of The Association.

Notes:

<p><b>DATA SHARING TERMS</b></p> <p>These Data Sharing Terms (&quot;Terms&quot;) are effective as of the date of Your acceptance (&quot;Effective Date&quot;) and are between you (&quot;You&quot; or &quot;Your&quot;) and The Amyotrophic Lateral Sclerosis Association (&quot;The Association&quot;), which specifically states the license terms, liability, limitations and warranty relating to Your use of the ALS Focus Data and corresponding Data Dictionary (&quot;Data&quot;).</p> <p><b>I. Limited Rights of Use and Restrictions</b></p> <p><b>a.</b> By accepting these Terms, The Association grants You a non-exclusive, non-assignable, non-transferable, royalty free license to use Data for educational and research analyses purposes (&quot;Secondary Analyses&quot;). You agree that all rights, titles, and interests relating to Data belong to The Association, or to the owner of Data you use. Furthermore, you agree that you do not assert any title or interest in Data other than the rights and license granted in these Terms. </p> <p><b>b.</b> You agree that you do not have any rights to copyright, rights to trademark ownership or patents, or any other rights or licenses that belong either to The Association, or to the owner of Data, other than those given in these Terms. </p> <p><b>c.</b> Data shall not be used for any purpose other than Secondary Analyses. You acknowledge the importance of data privacy of individuals to whom accessed Data may relate, and, accordingly, commit to comply with all applicable data privacy protection laws, not to attempt to identify subjects, and not to combine accessed Data with other sources of data that would lead to the deliberate identification of any individual. </p> <p><b>d.</b> Except as set forth in Section III.a., You agree that You will be the only one to retain control over Data and shall not disclose, release, sell, rent, lease, loan, or otherwise grant access to Data to any third party without the prior written consent of The Association. </p> <p><b>e.</b> You agree to use Data in compliance with all applicable laws, rules, and regulations, as well as all professional standards applicable to such research, including the completion of any Institutional Review Board (IRB) or ethics review or approval that may be required. It is Your responsibility to determine whether IRB or ethics review or approval is needed and what laws, rules, regulations, and professional standards apply to You. </p> <p><b>f.</b> You shall promptly report to The Association any use or disclosure of Data not provided for by these Terms of which You become aware. </p> <p><b>g.</b> You are not authorized in any manner to use The Association's name, logos, web graphics, or trademarks without express written permission from The Association except as permitted under Section III below. </p> <p><b>II. Termination of these Terms</b></p> <p><b>a.</b> You agree that The Association may terminate these Terms at any time without notice if Data were used by you in violation of any law or of any terms or limitations imposed by these Terms. </p> <p><b>b.</b> If these Terms are terminated, the license granted under these Terms will be revoked, and you must either destroy Data or return to The Association. </p> <p><b>III. Publication and Citation Requirements</b></p> <p>You are encouraged to publish and disseminate discoveries derived from Data. You must acknowledge The Association as the source of Data in all written, visual, or oral public disclosures concerning Your research using Data and include a link to the Direct Object Identifier (DOI) in all written disclosures concerning Your research using Data. Additionally, You are permitted to disclose Data to a journal publication that will be publishing or disseminating discoveries derived from Data as long as a link to the DOI is included in the written discoveries. See the data citation, generated by the Dataverse. </p> <p><b>IV. Acceptance of Risk</b> <p>YOU AGREE THAT USING DATA IS ENTIRELY AT YOUR OWN RISK. DATA ARE PROVIDED &quot;AS IS&quot; WITHOUT ANY WARRANTY OR FITNESS FOR ANY PURPOSE WHATSOEVER, EITHER EXPRESSLY OR IMPLIED OR THAT THE USE OF DATA WILL NOT INFRINGE ANY PATENT, COPYRIGHT, TRADEMARK, OR OTHER PROPRIETARY RIGHTS. THE ASSOCIATION DISCLAIMS ALL AND ANY RESPONSIBILITY FOR WARRANTY OR FITNESS FOR A PARTICULAR PURPOSE. YOU AGREE AND UNDERSTAND THAT DATA MAY CONTAIN ERRORS, OMISSIONS AND/OR INACCURACIES. NOTWITHSTANDING, THE ASSOCIATION, TO THE BEST OF ITS KNOWLEDGE AND BELIEF, HAS THE RIGHT AND AUTHORITY TO PROVIDE DATA TO YOU FOR SECONDARY ANALYSES. </p> <p><b>V. Indemnity</b><p> <p> You agree to indemnify, defend and hold blameless The Association, its officers, directors, employees, agents, successors, assigns, contractors, and grantees (the &quot;Association Indemnitees&quot;) against any and all damages or loss incurred by you, including without limitation any legal fees, as a result of or in connection with Your use of Data. </p>

<p> <b>TERMS OF ACCESS</b> </p> <p> <b>When you download a file:</b> </p> <p> The ALS Association and Harvard Dataverse administrators collects your personal information, specifically name, email address, institution, and position. </p> <p> <b>How we use this information:</b> </p> <p> The ALS Association and Harvard Dataverse administrators use the information you provide to fulfill online requests, understand which research fields are utilizing ALS Focus data, follow publications, reports, and presentations that use ALS Focus data, or in other ways as allowed by law. <p> <b>We may use your information:</b> <ul> <li>To respond to your requests</li> <li>To communicate changes to our terms of use</li> </ul> <b>Access to your information:</b> <p> Only those who need the provided information to perform a specific task have access to your information. These are authorized members of The ALS Association and Harvard Dataverse administrators. </p> <p> The ALS Association keeps personal information on file, but does not share, sell, license or transmit this information to third parties or external vendors unless required to do so by legal, judicial or governmental proceedings. </p>

Other Study Description Materials

File Description--f6445410

File: ALSFocusWave4_ALSFRSandVC.tab

  • Number of cases: 892

  • No. of variables per record: 18

  • Type of File: text/tab-separated-values

Notes:

UNF:6:yp6uMUCj9aoy1tygpjoWZw==

File Description--f6445407

File: ALSFocusWave4_Demographics.tab

  • Number of cases: 1545

  • No. of variables per record: 70

  • Type of File: text/tab-separated-values

Notes:

UNF:6:hk+aUDDMTninlo6LPZvU6Q==

File Description--f6445409

File: ALSFocusWave4_HealthStatus.tab

  • Number of cases: 778

  • No. of variables per record: 29

  • Type of File: text/tab-separated-values

Notes:

UNF:6:9mNDL+sEgLqw+JVxH7KBFA==

File Description--f6445408

File: ALSFocusWave4_Telehealth.tab

  • Number of cases: 386

  • No. of variables per record: 217

  • Type of File: text/tab-separated-values

Notes:

UNF:6:uiv0uxYieEVcDdAr7LemQQ==

Variable Description

List of Variables:

Variables

Subject_ID

f6445410 Location:

Summary Statistics: Min. 5.0; Max. 2283.0; StDev 636.7549527561857; Valid 892.0; Mean 820.2937219731027

Variable Format: numeric

Notes: UNF:6:PTQiL9VGJog6GEQgHef32Q==

NeuroStamp

f6445410 Location:

Variable Format: character

Notes: UNF:6:FGkk+RvU7v8wUPmPQuK3MQ==

Group

f6445410 Location:

Variable Format: character

Notes: UNF:6:eGyhJJZ/rnSGB//G2DmKSw==

wave

f6445410 Location:

Summary Statistics: Max. 4.0; Mean 2.4002242152466446; Min. 1.0; Valid 892.0; StDev 1.1730799940560295

Variable Format: numeric

Notes: UNF:6:szglSUZISSfTYGPGzl9yuA==

time

f6445410 Location:

Summary Statistics: StDev 0.8960978172796233; Min. 1.0; Mean 1.4585201793721954; Valid 892.0; Max. 8.0

Variable Format: numeric

Notes: UNF:6:VLheZ6H/jEFiY2MPtt0jnw==

o1_aslfrsr_score

f6445410 Location:

Variable Format: character

Notes: UNF:6:TJWS6+dnLKk5oQyD6NCe9A==

o1_alsfrsr_month

f6445410 Location:

Variable Format: character

Notes: UNF:6:vhpu2acq+JaAJLEaSIB6iQ==

o1_alsfrsr_year

f6445410 Location:

Summary Statistics: Valid 306.0; StDev 161.4785205212608; Mean 2006.6993464052289; Min. 20.0; Max. 2021.0;

Variable Format: numeric

Notes: UNF:6:2jtSSJ9JIzCiRdXzkG7AKw==

o1_alsfrsr_dk

f6445410 Location:

Variable Format: character

Notes: UNF:6:y83Eig9g9EsuFod2QTvm+w==

o1_alsfrsr_pnta

f6445410 Location:

Summary Statistics: Min. 1.0; StDev 0.0; Valid 1.0; Max. 1.0; Mean 1.0;

Variable Format: numeric

Notes: UNF:6:gXzu2jEV/rUWxgjB6GcHgw==

o1_alsfrsr_nh

f6445410 Location:

Variable Format: character

Notes: UNF:6:lnv0tXpsX5LsRmM4kKPGwQ==

o2_vc_indication

f6445410 Location:

Variable Format: character

Notes: UNF:6:smZydc4QRwXRnmybUeLLqA==

o2_vc_percent

f6445410 Location:

Variable Format: character

Notes: UNF:6:FPmq2iKT9lwCh/eowCabyA==

o2_vc_month

f6445410 Location:

Summary Statistics: StDev 3.5809656824084524; Min. 1.0; Mean 5.897350993377483; Valid 302.0; Max. 12.0

Variable Format: numeric

Notes: UNF:6:1amYAyrJCsFfAXHMcUJz/w==

o2_vc_year

f6445410 Location:

Variable Format: character

Notes: UNF:6:piU1yansfdbcfdGZrG5siQ==

o2_vc_dk

f6445410 Location:

Variable Format: character

Notes: UNF:6:XpMKbtSmlI1VADwmGFwWrw==

o2_vc_pnta

f6445410 Location:

Summary Statistics: Max. 1.0; StDev 0.0; Min. 1.0; Mean 1.0; Valid 1.0;

Variable Format: numeric

Notes: UNF:6:LyWtdj8HeeydJ7EW0IG0nA==

o2_vc_nh

f6445410 Location:

Variable Format: character

Notes: UNF:6:gZzwoyG+/eUBVvS3JIVlnA==

Subject_ID

f6445407 Location:

Summary Statistics: Valid 1545.0; Max. 2284.0; StDev 660.6562946228015; Min. 5.0; Mean 1093.2427184466096

Variable Format: numeric

Notes: UNF:6:T0KNrPmnngVqCgKyrQ0fig==

NeuroStamp

f6445407 Location:

Variable Format: character

Notes: UNF:6:vN9ne0TiL8pHtjPCnrFvkg==

Group

f6445407 Location:

Variable Format: character

Notes: UNF:6:CHPz16ME5qu73vXE8ICBfQ==

dyad_id

f6445407 Location:

Summary Statistics: Mean 1381.2399999999984; Max. 4518.0; Valid 200.0; StDev 1233.046251236523; Min. 11.0;

Variable Format: numeric

Notes: UNF:6:wVXntwze1v8qE/DqtTuZTw==

d1_age

f6445407 Location:

Variable Format: character

Notes: UNF:6:yA641JbFsW5WCT7/wd5gvw==

d2_gender

f6445407 Location:

Variable Format: character

Notes: UNF:6:Z4ErbUqLn3KOhkD8txc5sA==

d2_gender_oe

f6445407 Location:

Variable Format: character

Notes: UNF:6:/YKF7BwFDVvwTD50nT1iAw==

d3_sex

f6445407 Location:

Variable Format: character

Notes: UNF:6:bu9hqT3hzZMiBmko8p0tJw==

d4_ethnicity

f6445407 Location:

Variable Format: character

Notes: UNF:6:JmErE+sofLwT/ksjFeWN5w==

d5_amerind_alaskan

f6445407 Location:

Variable Format: character

Notes: UNF:6:06XPSYah1wIedyT+5PTLyw==

d5_asian

f6445407 Location:

Variable Format: character

Notes: UNF:6:CU4h/ooocIp7kkOfzvmgqQ==

d5_black

f6445407 Location:

Variable Format: character

Notes: UNF:6:PsDKf0Xj1UihJbxp7aWvxw==

d5_hawaii_pacific

f6445407 Location:

Variable Format: character

Notes: UNF:6:YkN5iCzfLRZRzpUOhxbVTw==

d5_white

f6445407 Location:

Variable Format: character

Notes: UNF:6:63Oy2EpLMu6Z5mdbXL+d4A==

d5_race_pnta

f6445407 Location:

Variable Format: character

Notes: UNF:6:z4Z86/yXi8UkeuadRC188A==

d6_veteran

f6445407 Location:

Variable Format: character

Notes: UNF:6:Le/1yr9iG1y5qwAkU6vzfw==

d7_education

f6445407 Location:

Variable Format: character

Notes: UNF:6:I7cbVYkr+o7xTagq2AI/Jg==

d8_language

f6445407 Location:

Variable Format: character

Notes: UNF:6:oGgiIRjEiLNxjztHk0H48A==

d8_language_oe

f6445407 Location:

Variable Format: character

Notes: UNF:6:selrfH3ps2HlvgWFSYsZwA==

d9_zip_pnta

f6445407 Location:

Variable Format: character

Notes: UNF:6:n9Q02DF5eKFNLv1yfGBECA==

d10_marital

f6445407 Location:

Variable Format: character

Notes: UNF:6:w/GzeWg5i4zruoWydTEaKA==

p1_alstype

f6445407 Location:

Variable Format: character

Notes: UNF:6:247uMQjK9z7f/SI08Fktpw==

p2_genetest

f6445407 Location:

Variable Format: character

Notes: UNF:6:3hj3lCC/grakYZNzRGlcWQ==

p2_2_geneinterest

f6445407 Location:

Variable Format: character

Notes: UNF:6:ghZMsXtxjhVOD/gI1r8XQQ==

p3_onset_location

f6445407 Location:

Variable Format: character

Notes: UNF:6:cu66hTvuqGEXxAoGAuUI1g==

p4_onset_month

f6445407 Location:

Variable Format: character

Notes: UNF:6:ZsG0K9JkRMumPxNdqi8fQw==

p4_onset_year

f6445407 Location:

Summary Statistics: Mean 2006.3265720081135; StDev 127.7953332442048; Min. 3.0; Valid 493.0; Max. 2021.0

Variable Format: numeric

Notes: UNF:6:XCuX9Rr9YkmSPwBAejZOdw==

p4_onset_pnta

f6445407 Location:

Variable Format: character

Notes: UNF:6:GZmxJezpZzHa4XPRoanM0g==

p4_onset_dk

f6445407 Location:

Variable Format: character

Notes: UNF:6:vUjmn2BDY+55dZYS1kFnWg==

p5_diag_month

f6445407 Location:

Variable Format: character

Notes: UNF:6:DzpTdBCmz4QGMHVXf/XVvw==

p5_diag_year

f6445407 Location:

Summary Statistics: Valid 511.0; StDev 99.08925423022615; Min. 18.0; Max. 3019.0; Mean 2014.59686888454

Variable Format: numeric

Notes: UNF:6:2hLl3XhzHO/3WmaOu4B5HQ==

p5_diag_pnta

f6445407 Location:

Variable Format: character

Notes: UNF:6:19Dz89hrvCSI+wHBtnpjvg==

p5_diag_dk

f6445407 Location:

Variable Format: character

Notes: UNF:6:rmDump7VjWrfrMibI3gOog==

p6_inc_pre

f6445407 Location:

Variable Format: character

Notes: UNF:6:ElOsACARLzjTooxwyCzAtQ==

p7_inc_curr

f6445407 Location:

Variable Format: character

Notes: UNF:6:jN25ipJM8blDYb0E7H0Kfg==

p8_employ_pre

f6445407 Location:

Variable Format: character

Notes: UNF:6:CdC/oh+YKHE/vTNJ6cu8Tw==

p8_employ_pre_oe

f6445407 Location:

Variable Format: character

Notes: UNF:6:o4fnGBIsLLbvm58Iu1N3cg==

p9_employ_curr

f6445407 Location:

Variable Format: character

Notes: UNF:6:hvoJpYMvEHeuP2Jo8/j6Yg==

p9_employ_curr_oe

f6445407 Location:

Variable Format: character

Notes: UNF:6:5zXSgmtqExctE1nFroiMfA==

p10_nocare

f6445407 Location:

Variable Format: character

Notes: UNF:6:F5pid/1rCpSsCfmxw9f6hQ==

p10_carevisit

f6445407 Location:

Variable Format: character

Notes: UNF:6:Twx0GN53Dqs+PH6KbFCulQ==

p10_sharehome

f6445407 Location:

Variable Format: character

Notes: UNF:6:r3nPBkODXxCHrV6VEl8GGQ==

p10_facility

f6445407 Location:

Variable Format: character

Notes: UNF:6:wzhOwkWx4W2M8LbvomK/5g==

p10_living_other

f6445407 Location:

Variable Format: character

Notes: UNF:6:D6mLw5zmPJS4NxC6xJ6IPg==

p10_living_pnta

f6445407 Location:

Variable Format: character

Notes: UNF:6:vLz6nsH2X9+K2yqdCG5pBg==

p10_living_oe

f6445407 Location:

Variable Format: character

Notes: UNF:6:QB6+RJqzIkU0HXOYCAmaTg==

p11_multi_clinic

f6445407 Location:

Variable Format: character

Notes: UNF:6:8+eE0K2sqG2kn0nmsMwVRw==

p12_commute_clinic

f6445407 Location:

Variable Format: character

Notes: UNF:6:MSGj+qPD6dhyt/jnKmBPyw==

p13_medicare

f6445407 Location:

Variable Format: character

Notes: UNF:6:HoJyTnQne0i8JJgMEX9Xzw==

p13_va_insur

f6445407 Location:

Variable Format: character

Notes: UNF:6:6FTJBAYelAlBy55sZU8vug==

p13_tricare

f6445407 Location:

Variable Format: character

Notes: UNF:6:pUkoqRUHdSpHoIzwtrqFRw==

p13_medicaid

f6445407 Location:

Variable Format: character

Notes: UNF:6:6NyAIhi2hYJqF4PZXnpOmQ==

p13_employer

f6445407 Location:

Variable Format: character

Notes: UNF:6:cesS33kK6csMZOoTmEKtxQ==

p13_private

f6445407 Location:

Variable Format: character

Notes: UNF:6:AP1UWg7LhzoSHxYZ6xgBjQ==

p13_tribal

f6445407 Location:

Summary Statistics: Max. NaN; Mean NaN; StDev NaN; Valid 0.0; Min. NaN

Variable Format: numeric

Notes: UNF:6:tdCDC3DrSHHLEASI9FyAXQ==

p13_insur_other

f6445407 Location:

Variable Format: character

Notes: UNF:6:20175vxOgqJaY48Mcuv6Pg==

p13_insur_none

f6445407 Location:

Variable Format: character

Notes: UNF:6:8RNvqoK4MRXhwYh1OmBeUg==

p13_insur_dk

f6445407 Location:

Summary Statistics: Min. NaN; Mean NaN; Valid 0.0; Max. NaN; StDev NaN;

Variable Format: numeric

Notes: UNF:6:tdCDC3DrSHHLEASI9FyAXQ==

p13_insur_oe

f6445407 Location:

Variable Format: character

Notes: UNF:6:fPKIXTZK1kEFQuyvafLkYQ==

cg0_professional

f6445407 Location:

Variable Format: character

Notes: UNF:6:q6xwRoBg6fXa8X47JOMNEQ==

cg1_employ_curr

f6445407 Location:

Variable Format: character

Notes: UNF:6:WHmw60fovfr6IpaVnuIMjw==

cg1_employ_curr_oe

f6445407 Location:

Variable Format: character

Notes: UNF:6:Wp3dMLQQaC3ZSNUXHZmGjA==

cg2_living

f6445407 Location:

Variable Format: character

Notes: UNF:6:7T34xO9J/eiVk4fiC6vC0Q==

cg2_living_oe

f6445407 Location:

Variable Format: character

Notes: UNF:6:DgyO0j6TpuzFBoqSGDC17A==

cg3_inc_curr

f6445407 Location:

Variable Format: character

Notes: UNF:6:igJjWaTvjmIb89aRkNJmMQ==

cg4_last_care

f6445407 Location:

Variable Format: character

Notes: UNF:6:BM604a+lP2pM3ic63b5dhg==

d9_state

f6445407 Location:

Variable Format: character

Notes: UNF:6:dxmLCrS3dfi9JBDQBBGgbQ==

d9_urban_rural

f6445407 Location:

Variable Format: character

Notes: UNF:6:dvc+aG5z6KrbwZyl3MH/xw==

p4_onset_date

f6445407 Location:

Variable Format: character

Notes: UNF:6:6OQA3Lqyg4yPtO2wc9vM/A==

p5_diag_date

f6445407 Location:

Variable Format: character

Notes: UNF:6:w0jAdMpXrflBApSO++LZ5A==

Subject_ID

f6445409 Location:

Summary Statistics: Min. 9.0; Valid 778.0; Max. 2283.0; StDev 666.6854002319886; Mean 984.3071979434433

Variable Format: numeric

Notes: UNF:6:ekeNSSFMlnLU8rdyfHyElg==

NeuroStamp

f6445409 Location:

Variable Format: character

Notes: UNF:6:v+sbVhbJmPKV6GlXzBDJTw==

Group

f6445409 Location:

Variable Format: character

Notes: UNF:6:K5gUUZzlqbFDVTdYBJ2yLA==

wave

f6445409 Location:

Summary Statistics: StDev 0.9310904147839927; Min. 2.0; Valid 778.0; Mean 2.830334190231363; Max. 4.0

Variable Format: numeric

Notes: UNF:6:uhoUulLZK2Gj98Od0ICbQw==

time

f6445409 Location:

Summary Statistics: StDev 0.8640064034908157; Mean 1.524421593830334; Valid 778.0; Max. 6.0; Min. 1.0

Variable Format: numeric

Notes: UNF:6:Dl0VDMQbZOxwWxNFbQUlmw==

q1_speech

f6445409 Location:

Variable Format: character

Notes: UNF:6:3jkW65MFLuNGai8FIxmTPw==

q2_resp

f6445409 Location:

Variable Format: character

Notes: UNF:6:42BzZBx1DGYpCcvbDkqkBA==

q3_hours

f6445409 Location:

Variable Format: character

Notes: UNF:6:DxE92VgrVNLgNLIrDdsXFA==

q4_invasive

f6445409 Location:

Variable Format: character

Notes: UNF:6:BxfRi6nXxvt5cnt0m+m2Tw==

q5_respdev

f6445409 Location:

Variable Format: character

Notes: UNF:6:B5gMts0/7rfDyzOL3EsQPw==

q5_respdev_oe

f6445409 Location:

Variable Format: character

Notes: UNF:6:FPiqLCAh7rWFqYV8EMdZeA==

q6_mobile_none

f6445409 Location:

Variable Format: character

Notes: UNF:6:XvD+Q/0doMNMMKilgkt1VA==

q6_cane

f6445409 Location:

Variable Format: character

Notes: UNF:6:Ey58ohUdZaXuRbkQkkvV7g==

q6_walker

f6445409 Location:

Variable Format: character

Notes: UNF:6:ABD0ASTVcDUV9O3PJYZ9FQ==

q6_manualwc

f6445409 Location:

Variable Format: character

Notes: UNF:6:gC9BL9D4AnlNWLmaz98enQ==

q6_motorwc

f6445409 Location:

Variable Format: character

Notes: UNF:6:oOFCxnthPOFkLU//VeTRGg==

q6_mobile_other

f6445409 Location:

Variable Format: character

Notes: UNF:6:vx8cM/Jr3K9s1jJltF5OzA==

q6_mobile_pnta

f6445409 Location:

Variable Format: character

Notes: UNF:6:Ot86evH40r3I0T+9YIawUA==

q6_mobile_oe

f6445409 Location:

Variable Format: character

Notes: UNF:6:/b7i2xiCFirE635BccDzUA==

q7_joystick

f6445409 Location:

Variable Format: character

Notes: UNF:6:9BE1eu4KP9HSYo4HeT7ZdQ==

q7_headchin

f6445409 Location:

Variable Format: character

Notes: UNF:6:5MSRXcbC7Xt8UMU1gvmffA==

q7_sippuff

f6445409 Location:

Variable Format: character

Notes: UNF:6:AGBgTF2gXGNC93kZHrDPvQ==

q7_eyecontrol

f6445409 Location:

Variable Format: character

Notes: UNF:6:mCtvWET4nM6Hk7dl7e6o8A==

q7_caregiver

f6445409 Location:

Variable Format: character

Notes: UNF:6:bSyXaUJalWb/qAKSZ/Dcdw==

q7_wc_other

f6445409 Location:

Variable Format: character

Notes: UNF:6:0KD7uenyEpLsMnAb7uCh5A==

q7_wc_pnta

f6445409 Location:

Summary Statistics: Max. NaN; Min. NaN; Mean NaN; Valid 0.0; StDev NaN

Variable Format: numeric

Notes: UNF:6:lMhmWNKFu6TWeprBFri+wA==

q7_wc_oe

f6445409 Location:

Variable Format: character

Notes: UNF:6:H1ioIvLpy47c/SVqlhPG+A==

q8_tube

f6445409 Location:

Variable Format: character

Notes: UNF:6:9TrUMt6gs8bBbZ8fpyFrPw==

q8_tube_oe

f6445409 Location:

Variable Format: character

Notes: UNF:6:+jk8keLL8DVkTTMyZf73kQ==

Subject_ID

f6445408 Location:

Summary Statistics: Max. 2280.0; Mean 1274.3911917098444; StDev 710.9426117633644; Valid 386.0; Min. 12.0;

Variable Format: numeric

Notes: UNF:6:vhdABHWWPiHWmVBDGmJDjw==

NeuroStamp

f6445408 Location:

Variable Format: character

Notes: UNF:6:a3/QqJHhNsAzTqcazuNI8Q==

Group

f6445408 Location:

Variable Format: character

Notes: UNF:6:qdI1Gj847h2NdZQuIEnW3g==

dyad_id

f6445408 Location:

Summary Statistics: Valid 64.0; Max. 4518.0; Min. 38.0; StDev 1489.2806128462169; Mean 1792.046875

Variable Format: numeric

Notes: UNF:6:BeQTSS+YOn2kiPoy5XRSsw==

t1_appt

f6445408 Location:

Variable Format: character

Notes: UNF:6:C1mScGN+9wo5LaULbH5r0g==

t2_not_offered

f6445408 Location:

Variable Format: character

Notes: UNF:6:s9/RdnlgSr3HURLC2bGcyw==

t2_in_person

f6445408 Location:

Variable Format: character

Notes: UNF:6:BH4tqTCeBBk9AQu5ykFVFw==

t2_cost

f6445408 Location:

Variable Format: character

Notes: UNF:6:PVFlw3gXMcnEX4zr5K1I2w==

t2_quality

f6445408 Location:

Variable Format: character

Notes: UNF:6:ll+x+T8exJri6E0ZbV11SQ==

t2_comfort

f6445408 Location:

Variable Format: character

Notes: UNF:6:ZtqK5S583CGQvrUM5gI17A==

t2_communicate

f6445408 Location:

Variable Format: character

Notes: UNF:6:lnLHvPok6bPTqRw6AYgiNw==

t2_privacy

f6445408 Location:

Variable Format: character

Notes: UNF:6:AITFeE47S5arXxI/9yHOAg==

t2_equipment

f6445408 Location:

Variable Format: character

Notes: UNF:6:efsHqC4Dsgb3ZA9NNhIhIQ==

t2_knowledge

f6445408 Location:

Variable Format: character

Notes: UNF:6:ns6xFE2gv2gAE7XIqibFXg==

t2_reason_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:dxeklUxevXgY/wCRl3htNQ==

t2_reason_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:YzNc7PW/8feesy5Tt1DJow==

t2_reason_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:4vmv6cL2CqAhpksespAjdQ==

t3_pcp

f6445408 Location:

Variable Format: character

Notes: UNF:6:ZwQJXfqjcdQPB9mSt8R5hw==

t3_neurologist

f6445408 Location:

Variable Format: character

Notes: UNF:6:++XKum0VJbC1gfa6LuXcAA==

t3_physiatrist

f6445408 Location:

Variable Format: character

Notes: UNF:6:jcG3VYmIr3KhGsucyCNZFw==

t3_nurse

f6445408 Location:

Variable Format: character

Notes: UNF:6:c/PaD5AV6nV8qSwbjNkc3w==

t3_ot

f6445408 Location:

Variable Format: character

Notes: UNF:6:g/zmEop2rIzhMUx/z4yUKw==

t3_pt

f6445408 Location:

Variable Format: character

Notes: UNF:6:8I3BoEY/PheyNeN8B/3oBA==

t3_speech_pathol

f6445408 Location:

Variable Format: character

Notes: UNF:6:FHr2wTbwz0dZYMpawS0qHA==

t3_dietician

f6445408 Location:

Variable Format: character

Notes: UNF:6:zHQ4WNZfALDESU/EZD/UBQ==

t3_resp_pulmo

f6445408 Location:

Variable Format: character

Notes: UNF:6:LmMKmxa3o47q0CHVSkbAFQ==

t3_gene_counsel

f6445408 Location:

Variable Format: character

Notes: UNF:6:OUsdip5Eo/yN+hfZv2jOGA==

t3_mental_health

f6445408 Location:

Variable Format: character

Notes: UNF:6:scFZpLsON06JlxIq4jYmUQ==

t3_social_work

f6445408 Location:

Variable Format: character

Notes: UNF:6:0rs+mmJB1AEQJKjXto369Q==

t3_hospice

f6445408 Location:

Variable Format: character

Notes: UNF:6:Qi7Y58r2KbWnAkhLAxYLSg==

t3_chapter

f6445408 Location:

Variable Format: character

Notes: UNF:6:qtsBtTfMSqAbeTL4dND8yA==

t3_video_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:aRz02lnCEcS6MB6OAMfprw==

t3_video_none

f6445408 Location:

Summary Statistics: Valid 0.0; Max. NaN; Mean NaN; Min. NaN; StDev NaN;

Variable Format: numeric

Notes: UNF:6:b/+PIekA6a7UcH7p9kqwdQ==

t3_video_dk

f6445408 Location:

Summary Statistics: Valid 0.0; Mean NaN; Min. NaN; StDev NaN; Max. NaN

Variable Format: numeric

Notes: UNF:6:b/+PIekA6a7UcH7p9kqwdQ==

t3_video_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:bNZAUq3mxa4q07DO79TVJQ==

t4_pcp

f6445408 Location:

Variable Format: character

Notes: UNF:6:nAFD0LyEqmVGcEarfqE6ug==

t4_neurologist

f6445408 Location:

Variable Format: character

Notes: UNF:6:wj98ZKnyDLpDgR5TWD2X1w==

t4_physiatrist

f6445408 Location:

Variable Format: character

Notes: UNF:6:0Pda8y0kujAKyxceIS8GCQ==

t4_nurse

f6445408 Location:

Variable Format: character

Notes: UNF:6:uQl2Zjxg8QgBY+8EkSweVA==

t4_ot

f6445408 Location:

Variable Format: character

Notes: UNF:6:saJa2bI/dKFWXXnfNht84g==

t4_pt

f6445408 Location:

Variable Format: character

Notes: UNF:6:j2E8dkhjzpCEjaMFy/99Qw==

t4_speech_pathol

f6445408 Location:

Variable Format: character

Notes: UNF:6:j/ANY7nflg1cU1UR6hl1+w==

t4_dietician

f6445408 Location:

Variable Format: character

Notes: UNF:6:eMS1R99ri6dUbYdEEapB5Q==

t4_resp_pulmo

f6445408 Location:

Variable Format: character

Notes: UNF:6:csERhhobqJ+GDEFvFdR6lw==

t4_gene_counsel

f6445408 Location:

Variable Format: character

Notes: UNF:6:iwVZ6CnFCo1oIw4KF8ZXpg==

t4_mental_health

f6445408 Location:

Variable Format: character

Notes: UNF:6:FiCVzj/2GDvnajlI9+3DSQ==

t4_social_work

f6445408 Location:

Variable Format: character

Notes: UNF:6:agPGHA5U/m9JL4eP+CHunw==

t4_hospice

f6445408 Location:

Variable Format: character

Notes: UNF:6:K9Y7UNIlggQ4WV0qCjtU3w==

t4_chapter

f6445408 Location:

Variable Format: character

Notes: UNF:6:ucKN+HDua4y5xr6G45jz9Q==

t4_phone_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:xgNKE0cSi9gaihJ4VMqn5g==

t4_phone_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:03zAxHCkvyxIY2z8d+ry1Q==

t4_phone_dk

f6445408 Location:

Variable Format: character

Notes: UNF:6:vMeJoCjNEuicTqjSwtlt3w==

t4_phone_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:mGbzPBiof9WGHppHeanmHQ==

t5_pcp

f6445408 Location:

Variable Format: character

Notes: UNF:6:3gXCr6OZO3wUMojkKpMnrw==

t5_neurologist

f6445408 Location:

Variable Format: character

Notes: UNF:6:aj8hqiSptdxxsPOFNLri3g==

t5_physiatrist

f6445408 Location:

Variable Format: character

Notes: UNF:6:b9OgZH4cNqvahiALBkpG6Q==

t5_nurse

f6445408 Location:

Variable Format: character

Notes: UNF:6:NF7xDng1OHRvQgT9sGFhxQ==

t5_ot

f6445408 Location:

Variable Format: character

Notes: UNF:6:fCI0v49b7XnOAIm/eCNvwQ==

t5_pt

f6445408 Location:

Variable Format: character

Notes: UNF:6:ZoS5EwvDqSV7IgoqPHhh5g==

t5_speech_pathol

f6445408 Location:

Variable Format: character

Notes: UNF:6:ihA2yXcQDFfl2umm5ePb2A==

t5_dietician

f6445408 Location:

Variable Format: character

Notes: UNF:6:0ToLfs0cQOeHLaOwHF0GXg==

t5_resp_pulmo

f6445408 Location:

Variable Format: character

Notes: UNF:6:OmTReYNL+1Gqf2h9lWXMfw==

t5_gene_counsel

f6445408 Location:

Variable Format: character

Notes: UNF:6:760ltSkIVEHp0VsNWNmwGg==

t5_mental_health

f6445408 Location:

Variable Format: character

Notes: UNF:6:yYDRS2PKt1dr2NURMAu9kg==

t5_social_work

f6445408 Location:

Variable Format: character

Notes: UNF:6:Uh5ZE/y4vHvuyiYvL7hgsA==

t5_hospice

f6445408 Location:

Variable Format: character

Notes: UNF:6:XuOOK8OgwBwzBOJn1iXc9g==

t5_chapter

f6445408 Location:

Variable Format: character

Notes: UNF:6:GSCAsgSnjfUez3DpMM9tPg==

t5_person_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:Bo2W2zi89B6Je1+r5dFtYw==

t5_person_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:kPR+dh7fZosZB++WwKSung==

t5_person_dk

f6445408 Location:

Summary Statistics: Min. NaN; Max. NaN; Valid 0.0; Mean NaN; StDev NaN;

Variable Format: numeric

Notes: UNF:6:b/+PIekA6a7UcH7p9kqwdQ==

t5_person_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:4RTwuwZllBJmZ0XnZhrX4Q==

t6_new_provider

f6445408 Location:

Variable Format: character

Notes: UNF:6:z1UtRjcPQFThi8nwxCc7Kw==

t7_pcp

f6445408 Location:

Variable Format: character

Notes: UNF:6:VXBheI1+0eto9bnQVIwiVQ==

t7_neurologist

f6445408 Location:

Variable Format: character

Notes: UNF:6:xhmf6JkQO5Z+4wh4u6Fy9g==

t7_physiatrist

f6445408 Location:

Variable Format: character

Notes: UNF:6:LfjmbloyRd5Z8Xj/Ur8p1w==

t7_nurse

f6445408 Location:

Variable Format: character

Notes: UNF:6:1OteRyWcMAbvsDB80aTbjg==

t7_ot

f6445408 Location:

Variable Format: character

Notes: UNF:6:oybY7m+C0WnoUjK9G2+PNg==

t7_pt

f6445408 Location:

Variable Format: character

Notes: UNF:6:F7PGs0cRahtUPXuxqebZvg==

t7_speech_pathol

f6445408 Location:

Variable Format: character

Notes: UNF:6:o6OnH8Ic8dxhumOUFESOMA==

t7_dietician

f6445408 Location:

Variable Format: character

Notes: UNF:6:Bt4lGaSa2yU8X9lcGGhjXQ==

t7_resp_pulmo

f6445408 Location:

Variable Format: character

Notes: UNF:6:VQ9gfhEF04Fb95gXIAGmDw==

t7_gene_counsel

f6445408 Location:

Summary Statistics: Max. NaN; StDev NaN; Min. NaN; Mean NaN; Valid 0.0;

Variable Format: numeric

Notes: UNF:6:b/+PIekA6a7UcH7p9kqwdQ==

t7_mental_health

f6445408 Location:

Variable Format: character

Notes: UNF:6:wDsuz8R/vVnre4GCBS+HSw==

t7_social_work

f6445408 Location:

Variable Format: character

Notes: UNF:6:ySJtZCZkw9U41eo71ljwtQ==

t7_hospice

f6445408 Location:

Variable Format: character

Notes: UNF:6:BQmW/BUKDw4qJ0NS8ESleg==

t7_chapter

f6445408 Location:

Variable Format: character

Notes: UNF:6:yx5svdkXB2th2YnEH8QhwQ==

t7_new_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:xxqKP0nYYJtSH0+tUbkCwA==

t7_new_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:wWsPDjATMMZIsj6Hbajw4g==

t7_new_dk

f6445408 Location:

Variable Format: character

Notes: UNF:6:wz0EdTcTlj0APudXVQ4c3A==

t7_new_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:/OjeiOLmLvepRIM/kWFwlA==

t8_state

f6445408 Location:

Variable Format: character

Notes: UNF:6:GvKSXGx0/7uMw9e/P4Q/DA==

t9_oximetry

f6445408 Location:

Summary Statistics: Valid 72.0; Min. 1.0; Mean 1.0; StDev 0.0; Max. 1.0;

Variable Format: numeric

Notes: UNF:6:5dCeFWmdoIhumROFl91xFg==

t9_alsfrs

f6445408 Location:

Variable Format: character

Notes: UNF:6:hb9i8C8gG0+CbDFj+CmoZQ==

t9_spirometry

f6445408 Location:

Variable Format: character

Notes: UNF:6:ToyBGgYda8nKQt0hxYbOpA==

t9_single_breath

f6445408 Location:

Variable Format: character

Notes: UNF:6:4t+YRq10zEJoOj0/TxzktQ==

t9_vocalizing

f6445408 Location:

Variable Format: character

Notes: UNF:6:ylSFgzlSa/lpQdISex457g==

t9_neuro

f6445408 Location:

Variable Format: character

Notes: UNF:6:BqO5DnmpnOp+eQFhsJnh3w==

t9_cognitive

f6445408 Location:

Variable Format: character

Notes: UNF:6:JzktM8fncGOJSAtIQW38Tw==

t9_muscle_bulk

f6445408 Location:

Variable Format: character

Notes: UNF:6:nCUX1G3LAirAf3Ygbd8Fbw==

t9_muscle_manual

f6445408 Location:

Variable Format: character

Notes: UNF:6:qFFX3lVR2WmiJRL/v18aEA==

t9_grip

f6445408 Location:

Variable Format: character

Notes: UNF:6:pg3uKHt9QCFwY838fZm1lA==

t9_record_voice

f6445408 Location:

Variable Format: character

Notes: UNF:6:u2iSibbShbCnUtpl85YrRw==

t9_test_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:gxSe26R7VUKrI9D4fdMW0Q==

t9_test_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:fsqK4V0VWy0Geu8as/Efvg==

t9_test_dk

f6445408 Location:

Variable Format: character

Notes: UNF:6:FvgBH6+W0yjYLsE56S7xkw==

t9_test_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6://9sNE8bspIbOFdeb/VoDw==

t10_oximetry

f6445408 Location:

Summary Statistics: Min. 1.0; StDev 0.0; Valid 33.0; Mean 1.0; Max. 1.0

Variable Format: numeric

Notes: UNF:6:mA2zFL0Hn0wW4yu3fjIk9A==

t10_alsfrs

f6445408 Location:

Variable Format: character

Notes: UNF:6:s0D2CWHIbUneoHD3FiKf1A==

t10_spirometry

f6445408 Location:

Variable Format: character

Notes: UNF:6:5iFh16PypA3ZXgporH+YUw==

t10_single_breath

f6445408 Location:

Variable Format: character

Notes: UNF:6:xNsK+ftZQFF5VwbxBUOmkg==

t10_vocalizing

f6445408 Location:

Variable Format: character

Notes: UNF:6:23LtARcXUffHm+g/2qqiEQ==

t10_neuro

f6445408 Location:

Variable Format: character

Notes: UNF:6:3sQmq2LQ5eOh5vfvsNU0XA==

t10_cognitive

f6445408 Location:

Variable Format: character

Notes: UNF:6:01xpZgUL+lkaqPM6oQ4/mA==

t10_muscle_bulk

f6445408 Location:

Variable Format: character

Notes: UNF:6:mbH5ZpG/okSZkEvzBb7F6Q==

t10_muscle_manual

f6445408 Location:

Variable Format: character

Notes: UNF:6:sRUVAwdbcC0jND4Jwm6wjw==

t10_grip

f6445408 Location:

Variable Format: character

Notes: UNF:6:MGdscOMTFUipBu4aY4E20w==

t10_record_voice

f6445408 Location:

Variable Format: character

Notes: UNF:6:V+KWa4lg2RhEeHtxx1Tchg==

t10_test_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:fDsgf+Dqi0IF5pKU6wxBdQ==

t10_test_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:+t22ZqPkXjR5D431oJalnA==

t10_test_dk

f6445408 Location:

Variable Format: character

Notes: UNF:6:GXxISYIeXvtaGXktERtEIA==

t10_test_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:rp2MJYYonI/TdZic9b5a2g==

t11_money

f6445408 Location:

Variable Format: character

Notes: UNF:6:ASeNt1bueK4bfAVCK186CA==

t12_time

f6445408 Location:

Variable Format: character

Notes: UNF:6:IdsxAID3geF9aSPYL5SSjw==

t13_money_cg

f6445408 Location:

Variable Format: character

Notes: UNF:6:9DrnrvEImX6H7kAcKtLyAw==

t14_time_cg

f6445408 Location:

Variable Format: character

Notes: UNF:6:H6n1TfgosItnXO0/eJanSg==

t15_concerns

f6445408 Location:

Variable Format: character

Notes: UNF:6:fX7s5NpPkeAmxJ9i+tsD2w==

t16_guidance

f6445408 Location:

Variable Format: character

Notes: UNF:6:MCO/mCGGJokfWMitfxS/AQ==

t17_confidence

f6445408 Location:

Variable Format: character

Notes: UNF:6:ahq7oFrYswj1sTA321H2Rw==

t18_qualitylife

f6445408 Location:

Variable Format: character

Notes: UNF:6:+kaVCT6lQUnJ810zhKFeVQ==

t19_willing

f6445408 Location:

Variable Format: character

Notes: UNF:6:jdsU2Ek9Dfr3xEASg5UmiQ==

t20_pcp

f6445408 Location:

Variable Format: character

Notes: UNF:6:NI5msMs1c63z3Pmuf9ygWg==

t20_neurologist

f6445408 Location:

Variable Format: character

Notes: UNF:6:PlVmXNHBHBqYNoNMBjdajQ==

t20_physiatrist

f6445408 Location:

Variable Format: character

Notes: UNF:6:wdyx32VxXyaI5BJsyiWTfQ==

t20_nurse

f6445408 Location:

Variable Format: character

Notes: UNF:6:3ck+hXmhklv3hY+ER+iJ9g==

t20_ot

f6445408 Location:

Variable Format: character

Notes: UNF:6:s3MQW7LXUMjUaC37FRXOHw==

t20_pt

f6445408 Location:

Variable Format: character

Notes: UNF:6:uvyu89gLWaxyjNxbsFV4nA==

t20_speech_pathol

f6445408 Location:

Variable Format: character

Notes: UNF:6:fTQ0IAXUrRa9DZfAqlo6wQ==

t20_dietician

f6445408 Location:

Variable Format: character

Notes: UNF:6:vqQm7SGiTfg5Wx8tl66+MQ==

t20_resp_pulmo

f6445408 Location:

Variable Format: character

Notes: UNF:6:ke43/gse+XemkfGmvsKipQ==

t20_gene_counsel

f6445408 Location:

Variable Format: character

Notes: UNF:6:ZWfH0N9alYtaRXYvNbWFPQ==

t20_mental_health

f6445408 Location:

Variable Format: character

Notes: UNF:6:f2h3dUPq9t3zWZliZYOWOQ==

t20_social_work

f6445408 Location:

Variable Format: character

Notes: UNF:6:marLlxg+feG23ibHNamjDA==

t20_hospice

f6445408 Location:

Variable Format: character

Notes: UNF:6:oJhi5AjEsvUhBwIcDd9m5g==

t20_chapter

f6445408 Location:

Variable Format: character

Notes: UNF:6:5sLAQtwCFT8gnw5Xcrceww==

t20_willing_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:tVMlLEgYyj9tSJcrIr3SUQ==

t20_willing_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:kgVaOivpm8Q6SRoXdQLT3Q==

t20_willing_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:cUC8mtw+0nKKvQs/YUW9Bw==

t21_quality

f6445408 Location:

Variable Format: character

Notes: UNF:6:+0/eZt+X3OWAa47o7q5PxA==

t21_comfort

f6445408 Location:

Variable Format: character

Notes: UNF:6:h2241YQKwOJa1A9iZSxsKw==

t21_communicate

f6445408 Location:

Variable Format: character

Notes: UNF:6:yK8wofQY/h7yAFrDrCmCeg==

t21_privacy

f6445408 Location:

Summary Statistics: Min. NaN; Valid 0.0; Mean NaN; StDev NaN; Max. NaN;

Variable Format: numeric

Notes: UNF:6:b/+PIekA6a7UcH7p9kqwdQ==

t21_equipment

f6445408 Location:

Variable Format: character

Notes: UNF:6:iERTi6HZ0bdia6d6EMCj+Q==

t21_knowledge

f6445408 Location:

Variable Format: character

Notes: UNF:6:QAlkGET/jiw84nl08zzRSg==

t21_unwilling_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:vmLuK0NN/HJoT8WgmjftyA==

t21_unwilling_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:yGDEPvW0qbqCxv/EzZ41bg==

t21_unwilling_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:/d0W5Y8uVDxzC4WOhYDMyg==

t22_feeding

f6445408 Location:

Variable Format: character

Notes: UNF:6:EjekNfNLaQb6v6RAuVTcBg==

t22_technology

f6445408 Location:

Variable Format: character

Notes: UNF:6:tgsRUBTnn3CyEgPXcL8RXg==

t22_casemanage

f6445408 Location:

Variable Format: character

Notes: UNF:6:UZH61wyzUg8+kze24DGzbA==

t22_navigator

f6445408 Location:

Variable Format: character

Notes: UNF:6:JLCKtl+rjmXjHisw8BDhog==

t22_support_ALS

f6445408 Location:

Variable Format: character

Notes: UNF:6:/dpGk3lm5+STAV0BV7tWnA==

t22_support_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:mjqo7Yt/Pd5WPeaDq87s/Q==

t22_finance

f6445408 Location:

Variable Format: character

Notes: UNF:6:9BnKF0PMzmYbe2Z9iqrViA==

t22_virtual_visit

f6445408 Location:

Variable Format: character

Notes: UNF:6:mu6mnRpChRFiyIAcvQtHhw==

t22_virtual_dme

f6445408 Location:

Variable Format: character

Notes: UNF:6:ZekxjPr8nREZ3+Kt1V6tIg==

t22_virtual_modify

f6445408 Location:

Variable Format: character

Notes: UNF:6:HJECTAvqDIuh/QtG4/HmKg==

t22_program_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:+JrL7j8tj/ly4HCIIy+dqw==

t22_program_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:zY3moojSgN85dJ4T3meIIQ==

t22_program_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:8OxFgzeS7rc/px1WLKsuwA==

t23_general

f6445408 Location:

Variable Format: character

Notes: UNF:6:WQ4TVegSuq2J2xbKyrFGzQ==

t23_feeding

f6445408 Location:

Variable Format: character

Notes: UNF:6:txZgJBeEYDtddth/H34pfw==

t23_technology

f6445408 Location:

Variable Format: character

Notes: UNF:6:V9PhS0SO6rZQcgpeyYuDSQ==

t23_casemanage

f6445408 Location:

Variable Format: character

Notes: UNF:6:mxarYVssgPs0mJQIexrEhg==

t23_navigator

f6445408 Location:

Variable Format: character

Notes: UNF:6:/JE5L2zj9uK9uSRSV8xUUQ==

t23_counseling_cg

f6445408 Location:

Variable Format: character

Notes: UNF:6:RCwRLJ9BpmoCPhaeMquhhQ==

t23_support_cg

f6445408 Location:

Variable Format: character

Notes: UNF:6:tWm0ZvO8F/KZr3LF4M5pfA==

t23_support_youth

f6445408 Location:

Variable Format: character

Notes: UNF:6:Pq681xQXudlOXoPu77wJOQ==

t23_support_bereave

f6445408 Location:

Variable Format: character

Notes: UNF:6:yixPPMlhGxFkWfyGS2riKA==

t23_finance

f6445408 Location:

Variable Format: character

Notes: UNF:6:zLHDIGswJrNJyl8qd2rbuA==

t23_virtual_visit

f6445408 Location:

Variable Format: character

Notes: UNF:6:tra8f4YwhQpwYYo17d3KhA==

t23_virtual_dme

f6445408 Location:

Variable Format: character

Notes: UNF:6:hl3ugLavLDLsyxFhOHgisQ==

t23_virtual_modify

f6445408 Location:

Variable Format: character

Notes: UNF:6:LoFRvnaYgXdlDSmBLpCOLw==

t23_va_cg

f6445408 Location:

Variable Format: character

Notes: UNF:6:vK34PUr2micS7dYpnJlPUg==

t23_program_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:ej56j7YhtIibMJRG4O+g1g==

t23_program_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:6mcqHtBotjAf2CNqvbfvTw==

t23_program_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:mfXzkIAECjwoYen9o8vDZw==

t24_trial

f6445408 Location:

Variable Format: character

Notes: UNF:6:HTjBaizxvhGwm+jGgjsZZQ==

t25_trial_video

f6445408 Location:

Variable Format: character

Notes: UNF:6:n2d9PT7SIMqrMAJb/tS5UA==

t25_trial_phone

f6445408 Location:

Variable Format: character

Notes: UNF:6:+h83NXPaQfJDaZvUm5nDYg==

t25_trial_person

f6445408 Location:

Variable Format: character

Notes: UNF:6:1A2ClGgpUy6xD0n+uUabqg==

t25_trial_dk

f6445408 Location:

Summary Statistics: Valid 0.0; StDev NaN; Mean NaN; Max. NaN; Min. NaN

Variable Format: numeric

Notes: UNF:6:b/+PIekA6a7UcH7p9kqwdQ==

t26_trial_state

f6445408 Location:

Variable Format: character

Notes: UNF:6:IcINVksSbKRIOjLKqGjmMg==

t27_trial_access

f6445408 Location:

Variable Format: character

Notes: UNF:6:pEICc1w3q9+t2mnVZk1gNA==

t28_internet_dial

f6445408 Location:

Summary Statistics: Mean NaN; StDev NaN; Min. NaN; Valid 0.0; Max. NaN

Variable Format: numeric

Notes: UNF:6:b/+PIekA6a7UcH7p9kqwdQ==

t28_internet_broad

f6445408 Location:

Variable Format: character

Notes: UNF:6:iXcDk5vmaozuLLMhJ7gz0A==

t28_internet_cell

f6445408 Location:

Variable Format: character

Notes: UNF:6:UHCHHVOEEJFARd4nl4KxNQ==

t28_internet_wire

f6445408 Location:

Variable Format: character

Notes: UNF:6:4HhckdPTTEqeQSmRVcgtgA==

t28_internet_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:yCQ1+nVmj0BJGh2h+FvS+Q==

t28_internet_dk

f6445408 Location:

Variable Format: character

Notes: UNF:6:UTq8/XFj3SnJzqSsA1SuiQ==

t28_internet_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:5BiY6RvAbb7sZmIeBvwAog==

t29_connect

f6445408 Location:

Variable Format: character

Notes: UNF:6:LroI9G5B0LBRK6ajFqOnGA==

t30_medicare

f6445408 Location:

Variable Format: character

Notes: UNF:6:7Osh0MqMOGppFa2KjlhP3w==

t30_va_insur

f6445408 Location:

Variable Format: character

Notes: UNF:6:Fux6v8DA7p8Ptv0FKhdomQ==

t30_tricare

f6445408 Location:

Variable Format: character

Notes: UNF:6:9tDeePbOA1FIdqmKDL3piw==

t30_medicaid

f6445408 Location:

Variable Format: character

Notes: UNF:6:bukVhpd/062qyvorMRk/ag==

t30_employer

f6445408 Location:

Variable Format: character

Notes: UNF:6:R7u6OxXLx/aDCIKhky4J4g==

t30_private

f6445408 Location:

Variable Format: character

Notes: UNF:6:wpVxqeNV1atMxgKpNH1DiQ==

t30_tribal

f6445408 Location:

Summary Statistics: StDev NaN; Max. NaN; Mean NaN; Min. NaN; Valid 0.0

Variable Format: numeric

Notes: UNF:6:b/+PIekA6a7UcH7p9kqwdQ==

t30_insur_other

f6445408 Location:

Variable Format: character

Notes: UNF:6:k8qFTVDuzZYH3yTzJvj0YA==

t30_insur_none

f6445408 Location:

Variable Format: character

Notes: UNF:6:pUEinOf7bFvNuHIw97j+1Q==

t30_insur_dk

f6445408 Location:

Variable Format: character

Notes: UNF:6:wTc5e1kK+JKUd4d5TkZ+Gw==

t30_insur_oe

f6445408 Location:

Variable Format: character

Notes: UNF:6:tizm8QlJeAwQyYlsdQY7YQ==

t31_feeforservice

f6445408 Location:

Variable Format: character

Notes: UNF:6:chHS/97SdiP2O42SajEv9A==

t31_part_d

f6445408 Location:

Variable Format: character

Notes: UNF:6:3hnARciuB46KFIrrIabjxQ==

t31_supplement

f6445408 Location:

Variable Format: character

Notes: UNF:6:8nSkv5t4rAPOoAfQf/6Uvw==

t31_advantage

f6445408 Location:

Variable Format: character

Notes: UNF:6:lowNb9gINcdHQgVnmCMsoA==

t31_dk

f6445408 Location:

Variable Format: character

Notes: UNF:6:YTgdVUGKLFN9KJlrhC++Lw==

Other Study-Related Materials

Label:

ALSFocusWave4_DataDictionary.xlsx

Text:

This is the data dictionary for surveys fielded in ALS Focus Wave 4.

Notes:

application/vnd.openxmlformats-officedocument.spreadsheetml.sheet

Other Study-Related Materials

Label:

ALSFocusWave4_FilesDescription.docx

Text:

Description of Public Data Files

Notes:

application/vnd.openxmlformats-officedocument.wordprocessingml.document