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Part 1: Document Description
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Citation |
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Title: |
PROMIS 2 MY Health |
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Identification Number: |
doi:10.7910/DVN/XD1A6B |
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Distributor: |
Harvard Dataverse |
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Date of Distribution: |
2016-03-04 |
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Version: |
1 |
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Bibliographic Citation: |
Potosky, Arnold L.; Moinpour, Carol, 2016, "PROMIS 2 MY Health", https://doi.org/10.7910/DVN/XD1A6B, Harvard Dataverse, V1, UNF:6:No/Ha2bxUBEO7nsiGeazsg== [fileUNF] |
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Citation |
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Title: |
PROMIS 2 MY Health |
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Identification Number: |
doi:10.7910/DVN/XD1A6B |
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Authoring Entity: |
Potosky, Arnold L. (Georgetown University) |
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Moinpour, Carol (Georgetown University) |
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Distributor: |
Harvard Dataverse |
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Access Authority: |
Wortman, Katy |
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Depositor: |
Wortman, Katy |
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Date of Deposit: |
2015-10-23 |
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Holdings Information: |
https://doi.org/10.7910/DVN/XD1A6B |
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Study Scope |
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Keywords: |
Medicine, Health and Life Sciences, Social Sciences, PROMIS, PRO, PROMIS Physical Function SF, PROMIS Pain Interference SF, PROMIS Fatigue SF, PROMIS Sleep Disturbance SF, PROMIS Anxiety SF, PROMIS Depression SF, PROMIS Ability to Participate in Social Roles and Activities SF, FACT-G Physical Well-Being, FACT SP-12, PROMIS Applied Cognition - General Concerns, Physical Function, Pain, Fatigue, Sleep Disturbance, Anxiety, Depression, Social Well-Being, Physical Well-Being, Spiritual Well-Being, Cognitive Function, Cancer |
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Abstract: |
<p>MY-Health is a cross sectional study where a population-based sample of 5,500 adult cancer patients were be recruited for a mailed survey (with telephone follow-up of non-responders) to evaluate the equivalence of PROMIS measures across socio-demographic and clinical sub-groups. Patients diagnosed with any of seven cancers were eligible (female breast cancer, uterine and cervical cancers, prostate cancer, colorectal cancer, non- small cell lung cancer (NSCLC) and non-Hodgkin’s Lymphoma) to ensure a wide age range of adults (ages 21-84) with varying treatment experiences and potential symptoms. MY-Health focused on seven domains that are important to cancer outcomes and that are relevant to other chronic diseases: pain, depression, anxiety, sleep disturbance, fatigue, social function, and physical function. Since MY-Health is a “validation” study focusing on minorities and the underserved, racial/ethnic minorities drawn from 4 registries in 3 states (California, New Jersey, Louisiana) were oversampled </p> <b>Study Aims</b> <ul><li>Use item-response theory (analysis of Differential Item Function (DIF)) to evaluate the measurement properties of PROMIS item banks across age and race/ethnic groups from a population-based sample of cancer patients.</li> <li>Evaluate the ability of PROMIS measures to detect differences in population-based patient outcomes across age, race-ethnicity, and cancer sub-groups defined by type, stage/severity, comorbidity, treatments, and disease phase (known-groups, construct validity).</li> <li>Evaluate the responsiveness of measures to detect clinically meaningful changes in selected health-related quality of life domains. </li> <li>To estimate cancer-specific population norms by patient age, severity, and other clinically important characteristics.</li> </ul> |
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Kind of Data: |
Survey |
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Methodology and Processing |
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Sources Statement |
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Data Access |
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Notes: |
Please provide an explanation on what you plan to do with the requested data, and a study overview if applicable. |
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<a href="http://creativecommons.org/publicdomain/zero/1.0">CC0 1.0</a> |
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Other Study Description Materials |
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Related Publications |
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Citation |
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Title: |
Jensen RE, Potosky AL, Reeve BB, et al. Validation of the PROMIS Physical Function Measures in a Diverse U.S. Population-Based Cohort of Cancer Patients. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2015;24(10):2333-2344. doi:10.1007/s11136-015-0992-9. |
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Bibliographic Citation: |
Jensen RE, Potosky AL, Reeve BB, et al. Validation of the PROMIS Physical Function Measures in a Diverse U.S. Population-Based Cohort of Cancer Patients. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2015;24(10):2333-2344. doi:10.1007/s11136-015-0992-9. |
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File Description--f2718687 |
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File: myhealth_dv.tab |
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Notes: |
UNF:6:No/Ha2bxUBEO7nsiGeazsg== |
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Label: |
Jensen_PF_presentation_Final.ppt |
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Notes: |
application/vnd.ms-powerpoint |
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Label: |
myhealth_dv data dictionary.xlsx |
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Notes: |
application/vnd.openxmlformats-officedocument.spreadsheetml.sheet |
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Label: |
Release Notes 1.1_09302015.docx |
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Notes: |
application/vnd.openxmlformats-officedocument.wordprocessingml.document |