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Part 1: Document Description
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Citation |
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Title: |
Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research |
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Identification Number: |
doi:10.7910/DVN/XX4LEG |
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Distributor: |
Harvard Dataverse |
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Date of Distribution: |
2021-06-30 |
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Version: |
1 |
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Bibliographic Citation: |
DeWitt, Esi Morgan, 2021, "Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research", https://doi.org/10.7910/DVN/XX4LEG, Harvard Dataverse, V1 |
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Citation |
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Title: |
Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research |
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Identification Number: |
doi:10.7910/DVN/XX4LEG |
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Authoring Entity: |
DeWitt, Esi Morgan (Cincinnati Children's Hospital Medical Center) |
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Distributor: |
Harvard Dataverse |
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Access Authority: |
Shen, Shu-En |
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Depositor: |
Shen, Shu-En |
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Date of Deposit: |
2021-06-30 |
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Holdings Information: |
https://doi.org/10.7910/DVN/XX4LEG |
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Study Scope |
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Keywords: |
Medicine, Health and Life Sciences |
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Abstract: |
To evaluate the validity and responsiveness of the PROMIS pediatric item banks with longitudinal assessments in 120 children ages 8-18 with JIA. Concurrent validity will be assessed by measuring correlations between the PROMIS measures and legacy scales intended to measure the same health trait. Responsiveness of the PROMIS measures will be studied by evaluating longitudinal changes in PROMIS scores within subjects as compared to other clinical measures. It will also be assessed as between subject change, in those who by other clinical measures and legacy scales have stable clinical status compared to those with change in clinical status (improvement or deterioration). Items will be administered at three time points at 3-6 month intervals, depending on the timing of clinic visits. |
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Methodology and Processing |
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Sources Statement |
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Data Access |
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Notes: |
<a href="http://creativecommons.org/publicdomain/zero/1.0">CC0 1.0</a> |
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Other Study Description Materials |
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Label: |
did_all_jia_012013.sas7bdat |
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Text: |
Self-reported legacy and clinical assessment data |
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Notes: |
application/x-sas-data |
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Label: |
PROMIS 2 JIA Data Dictionary.pdf |
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Text: |
Code book for CAT and short form data |
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Notes: |
application/pdf |
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Label: |
promis_JIA_bank.sas7bdat |
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Text: |
PROMIS CAT data |
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Notes: |
application/x-sas-data |
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Label: |
promis_JIA_sf.sas7bdat |
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Text: |
PROMIS short form data |
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Notes: |
application/x-sas-data |
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Label: |
Redcap data_dic.pdf |
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Text: |
Code book for assessment data |
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Notes: |
application/pdf |