Representative PROMIS Profile 29 and EQ-5D Data from France, UK, and Germany

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Representative PROMIS Profile 29 and EQ-5D Data from France, UK, and Germany
Fischer, Felix, 2021, "Representative PROMIS Profile 29 and EQ-5D Data from France, UK, and Germany", https://doi.org/10.7910/DVN/FNYYQR, Harvard Dataverse, V1, UNF:6:By07sYjTnv8zV7dtqLuM6A== [fileUNF]
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Description
This dataset of 4512 participants (UK N = 1509, France N = 1501, and Germany N = 1502) contains sociodemographic information, as well as PROMIS Profile 29 data, and EQ-5D data. Data were collected by an independent polling company (Ipsos) through their internet panel. There were no missing data as participants had to respond to each question in order to proceed with the survey. Sociodemographic information collected include: gender, age, education, income, occupation, marital status, and household size. The PROMIS Profile 29 is a generic patient-reported outcome measure. It combines short forms with 4 items each from seven PROMIS domains (depression, anxiety, physical function, pain interference, fatigue, sleep disturbance, and ability to participate in social roles and activities) and a single item on pain intensity. Except for the latter, which employs a numerical rating scale with 11 response categories (0–10), all items come with 5 response categories. Labels of the response categories vary over the domains. The item banks for each of the domains have been developed following state-of-the-art methods, and a growing body of evidence shows their clinical usefulness. Specifically, the PROMIS Profile 29 has been sufficiently sensitive to detect differences in quality of life across different samples of patients. We used the language versions of the PROMIS Profile 29 for the UK, France, and Germany as distributed by the PROMIS Health Organization. The translations of the respective underlying item banks have been conducted according to PROMIS scientific standards, including forward and backward translation, expert review, cognitive debriefing, and final approval by PROMIS US.
Subject Medicine, Health and Life Sciences
Keyword Patient-reported outcomes, Self-reported health, General population, Reference data
Related Publication Fischer, F., Gibbons, C., Coste, J., Valderas, J. M., Rose, M., & Leplège, A. (2018). Measurement invariance and general population reference values of the PROMIS Profile 29 in the UK, France, and Germany. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 27(4), 999–1014.doi: https://doi.org/10.1007/s11136-018-1785-8
Notes The collection was supported by The Centre Virchow-Villermé for Public Health Paris-Berlin (https://iph.charite.de/en/centre_virchow_villerme/).
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7 Variables, 77 Observations UNF:6:i5o3RZbJo+ZzcmGUKnSb9g==
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Published Feb 2, 2021
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