Extracted Data From: National Childhood Cancer Registry Explorer

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National Cancer Institute, 2025, "Extracted Data From: National Childhood Cancer Registry Explorer", https://doi.org/10.7910/DVN/KVJUQ2, Harvard Dataverse, V1

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Description	This submission includes publicly available data extracted in its original form. Please reference the Related Publication listed here for source and citation information: NCCR*Explorer: An interactive website for NCCR cancer statistics [Internet]. National Cancer Institute; 2024 Sep 26. [cited 2025 Apr 23]. Available from: https://nccrexplorer.ccdi.cancer.gov. "Childhood, adolescent and young adult cancer statistics from NCCR data, ages 0-39, covering 75% of the U.S. population, and using International Classification of Childhood Cancer (ICCC). The National Childhood Cancer Registry (NCCR) was developed under the NCI Childhood Cancer Data Initiative (CCDI) to leverage the nation's existing, primarily adult, cancer registries to identify and follow childhood cancer cases in the United States." [Quote from: (https://seer.cancer.gov/statistics-network)] (2023-12-31)
Subject	Medicine, Health and Life Sciences
Related Publication	NCCR*Explorer: An interactive website for NCCR cancer statistics [Internet]. National Cancer Institute; 2024 Sep 26. [cited 2025 Apr 23]
Notes	“National Childhood Cancer Registry” data was downloaded by Varun Punnam on 2025-02-18.
License/Data Use Agreement	CC BY-NC-SA 4.0

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	National Childhood Cancer Registry Documentation.pdf Adobe PDF - 115.5 KB Published Apr 23, 2025 6 Downloads MD5: 6a09ba4ddfc9c6cd1099e58da1534143 Documentation	Preview "National Childhood Cancer Registry Documentation.pdf" Access File File Access Public Download Options Adobe PDF Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Incidence by Age 2001-2021.csv Comma Separated Values - 5.1 KB Published Apr 23, 2025 7 Downloads MD5: 67051634c4b1554d82d6f88c22f27287 Data	Ingest in progress... Preview "NCCR Cancer Incidence by Age 2001-2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Incidence by Race 2001-2021.csv Comma Separated Values - 4.9 KB Published Apr 23, 2025 6 Downloads MD5: 36c617e40e62130de847a9df4e129241 Data	Ingest in progress... Preview "NCCR Cancer Incidence by Race 2001-2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Incidence by Sex 2001-2021.csv Comma Separated Values - 3.8 KB Published Apr 23, 2025 4 Downloads MD5: 1a80403b64589dec4430bbfcb255beca Data	Ingest in progress... Preview "NCCR Cancer Incidence by Sex 2001-2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Incidence by Site 2001-2021.csv Comma Separated Values - 6.9 KB Published Apr 23, 2025 5 Downloads MD5: be99bccb5be72bc6bf5de3a4e9f6b0cf Data	Ingest in progress... Preview "NCCR Cancer Incidence by Site 2001-2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Prevalence by Sex 2021.csv Comma Separated Values - 1.8 KB Published Apr 23, 2025 7 Downloads MD5: e7ff0f55051f06c660df5a36e57c4f6c Data	Ingest in progress... Preview "NCCR Cancer Prevalence by Sex 2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Prevalence by Site 2021.csv Comma Separated Values - 2.1 KB Published Apr 23, 2025 4 Downloads MD5: 9d4a5f657e033a2e51a4838f5a6f16a8 Data	Ingest in progress... Preview "NCCR Cancer Prevalence by Site 2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Survival by Age 2001-2021.csv Comma Separated Values - 2.5 KB Published Apr 23, 2025 7 Downloads MD5: 4da9d57e8542986855a54df136d8ddbf Data	Ingest in progress... Preview "NCCR Cancer Survival by Age 2001-2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Survival by Race 2001-2021.csv Comma Separated Values - 2.5 KB Published Apr 23, 2025 6 Downloads MD5: b6f49d2550519a891adf1c35af75d086 Data	Ingest in progress... Preview "NCCR Cancer Survival by Race 2001-2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX
	NCCR Cancer Survival by Sex 2001-2021.csv Comma Separated Values - 2.3 KB Published Apr 23, 2025 4 Downloads MD5: 842fc42d32568fcbb04b1ba8d9389425 Data	Ingest in progress... Preview "NCCR Cancer Survival by Sex 2001-2021.csv" Access File File Access Public Download Options Comma Separated Values Download Metadata Data File Citation Download EndNote XML Download RIS Download BibTeX

Citation Metadata

Persistent Identifier	doi:10.7910/DVN/KVJUQ2
Publication Date	2025-04-23
Title	Extracted Data From: National Childhood Cancer Registry Explorer
Author	National Cancer InstituteNational Institutes of Health
Point of Contact	Use email button above to contact. CAFE
Description	This submission includes publicly available data extracted in its original form. Please reference the Related Publication listed here for source and citation information: NCCR*Explorer: An interactive website for NCCR cancer statistics [Internet]. National Cancer Institute; 2024 Sep 26. [cited 2025 Apr 23]. Available from: https://nccrexplorer.ccdi.cancer.gov. "Childhood, adolescent and young adult cancer statistics from NCCR data, ages 0-39, covering 75% of the U.S. population, and using International Classification of Childhood Cancer (ICCC). The National Childhood Cancer Registry (NCCR) was developed under the NCI Childhood Cancer Data Initiative (CCDI) to leverage the nation's existing, primarily adult, cancer registries to identify and follow childhood cancer cases in the United States." [Quote from: (https://seer.cancer.gov/statistics-network)] (2023-12-31)
Subject	Medicine, Health and Life Sciences
Related Publication	NCCR*Explorer: An interactive website for NCCR cancer statistics [Internet]. National Cancer Institute; 2024 Sep 26. [cited 2025 Apr 23]
Notes	“National Childhood Cancer Registry” data was downloaded by Varun Punnam on 2025-02-18.
Distributor	Allison James (Boston University)
Depositor	Punnam, Varun
Deposit Date	2025-02-18
Time Period	Start Date: 2001-01-01; End Date: 2021-12-31
Data Type	Extracted Data
Series	Statistics in NCCRExplorer: "NCCRExplorer provides incidence and survival statistics for cancers in children and adolescent and young adults, ages 0-39, diagnosed from 2001 forward, using data from the National Childhood Cancer Registry (NCCR). It provides detailed statistics for a cancer site by sex, race/ethnicity, and age, and allows for comparison across cancer sites and subsites."
Related Material	Data from Cancer in North America (CiNA) (North American Association of Central Cancer Registries (NAACCR) 1995-2021 and the NCI's Surveillance, Epidemiology and End Results (SEER) Registries), submitted December 2023). Registries include: California (Greater Bay, Greater California, Los Angeles), Colorado, Connecticut, Florida, Georgia, Hawaii, Idaho, Illinois, Iowa, Kentucky, Louisiana, Massachusetts, Michigan, Missouri, New Jersey, New Mexico, New York, Ohio, Oregon, Pennsylvania, Seattle (Puget Sound), Texas, Utah, Wisconsin. These 26 NCCR registries represent 72% of all U.S. children, adolescents, and young adults ages 0-39 based on 2021 U.S. Populations.; Rates for American Indians/Alaska Natives only include cases that are in a Purchased/Referred Care Delivery Area (PRCDA). See SEER Race Recode Documentation for American Indian/Alaskan Native Statistics.; Incidence data for Hispanics and Non-Hispanics are based on the NAACCR Hispanic Latino Identification Algorithm (NHIA). See SEER Race Recode Documentation for Spanish-Hispanic-Latino Ethnicity.; Cancer sites are defined using International Classification for Childhood Cancer (ICCC), more specifically the ICCC Recode Third Edition ICD-O-3/IARC 2017 definitions based on site and morphology coded according to ICD-O-2 or ICD-O-3.
Documentation and Access to Sources	Terms and conditions were captured directly from NCI and are pasted below: Unless otherwise indicated, all text within National Cancer Institute (NCI) products is free of copyright and may be reused without our permission. Credit the National Cancer Institute as the source. In the case of digital reproduction, please link to the original NCI product using the original product's title; for example, "Targeted Therapy to Treat Cancer was originally published by the National Cancer Institute." Consider linking directly to our content rather than reproducing it, as our content may be updated over time. Some of our content is also available for syndication (more about our syndication services).

Geospatial Metadata

Geographic Coverage	United States

Metadata About Data Sources

Derived from Another Dataset	Yes
Source Dataset	Source Dataset Title: National Childhood Cancer Registry; Source Dataset Institution: National Cancer Institute; https://nccrexplorer.ccdi.cancer.gov/data-products.html#analysis; Source Dataset Last Modified Date: 2023-12-31; Source Dataset Date Obtained: 2025-02-18; Source Dataset Type: Observational data (incl. wx stations and AQ monitors); Source Dataset Timestep: Annual

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Includes a Geospatial File	No

Additional Metadata About Dataset

CCH Terms	Cancer

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Our Community Norms as well as good scientific practices expect that proper credit is given via citation. Please use the data citation shown on the dataset page.

CC BY-NC-SA 4.0

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