NeuroVERSE

NeuroVERSE - Supports distribution and sharing of datasets related to neurological research.

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1 to 7 of 7 Results

ALS Focus Wave 8 – Clinical Trials and Treatment Needs Survey May 23, 2025 The ALS Association, 2025, "ALS Focus Wave 8 – Clinical Trials and Treatment Needs Survey", https://doi.org/10.7910/DVN/XE1SKQ, Harvard Dataverse, V1, UNF:6:hoWVymNP4mW15I0+FXJazw== [fileUNF] The NeuroVERSE record contains the following files: ALSFocus_Demographics_Survey_Public – ALS Focus Demographics Survey written questions. ALSFocus_CTTN_Survey_Public – ALS Focus Clinical Trials and Treatment Needs Survey written questions. ALSFocus_HealthStatus_Survey_Public – ALS Focus Health Status Survey written questions. ALSFocus_Demographics...
ALS Focus Wave 5 – Mobility Survey May 21, 2025 The ALS Association, 2025, "ALS Focus Wave 5 – Mobility Survey", https://doi.org/10.7910/DVN/MDS4GJ, Harvard Dataverse, V1, UNF:6:Dx7TAbIPwgx54nrsSlSUBA== [fileUNF] The NeuroVERSE record contains the following files: ALSFocusWave5_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 5. ALSFocusWave5_Mobility.dta – This Stata file contains responses to the ALS Mobility survey for people with ALS, current caregivers, and past caregivers. This survey was available in Wave 5. ALS...
ALS Focus Wave 4 – Telehealth Survey Sep 6, 2022 The ALS Association, 2022, "ALS Focus Wave 4 – Telehealth Survey", https://doi.org/10.7910/DVN/RMBES9, Harvard Dataverse, V1, UNF:6:FTk27cD93UByLgbMwh6O6A== [fileUNF] The NeuroVERSE record contains the following files: ALSFocusWave4_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 4. ALSFocusWave4_Telehealth.csv – This file contains responses to the Telehealth survey for people with ALS and current caregivers. This survey was available in Wave 4. This file contains a new ‘d...
ALS Focus Wave 3 – Caregiver Needs Survey Jan 21, 2022 The ALS Association, 2022, "ALS Focus Wave 3 – Caregiver Needs Survey", https://doi.org/10.7910/DVN/KLJPJL, Harvard Dataverse, V1, UNF:6:158A3MLuSx9o9o5oJhnSLg== [fileUNF] The NeuroVERSE record contains the following files: ALSFocusWave3_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 3. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns). ALSFocusWa...
ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey Jan 18, 2022 The ALS Association, 2021, "ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey", https://doi.org/10.7910/DVN/J9TLXT, Harvard Dataverse, V2, UNF:6:WPfeqPPGCzCXc0z3zFFllQ== [fileUNF] This NeuroVERSE record contains two files: ALSFocus_Wave1_Public.csv – This data file contains responses from both the Demographics survey and the survey on Insurance Needs and Financial Burdens, which were fielded in Wave 1 of ALS Focus. This file includes responses collected from February 13, 2020 through April 3, 2020, the launch date and close...
ALS Focus Wave 2 - What Matters Most Survey Nov 2, 2021 The ALS Association, 2021, "ALS Focus Wave 2 - What Matters Most Survey", https://doi.org/10.7910/DVN/JZ5DZQ, Harvard Dataverse, V1, UNF:6:7F0Tb6g8rb/GGvpKMMRQxQ== [fileUNF] This Dataverse record contains the following files: ALSFocusWave2_DataDictionary.xlsx – This is the data dictionary for all surveys fielded in ALS Focus Wave 2. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns). ALSFoc...
IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS Oct 28, 2019 The ALS Association, 2019, "IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS", https://doi.org/10.7910/DVN/HG3MYW, Harvard Dataverse, V2 IMPACT ALS Survey questionnaires and raw data

ALS Focus Wave 8 – Clinical Trials and Treatment Needs Survey

May 23, 2025

The ALS Association, 2025, "ALS Focus Wave 8 – Clinical Trials and Treatment Needs Survey", https://doi.org/10.7910/DVN/XE1SKQ, Harvard Dataverse, V1, UNF:6:hoWVymNP4mW15I0+FXJazw== [fileUNF]

The NeuroVERSE record contains the following files: ALSFocus_Demographics_Survey_Public – ALS Focus Demographics Survey written questions. ALSFocus_CTTN_Survey_Public – ALS Focus Clinical Trials and Treatment Needs Survey written questions. ALSFocus_HealthStatus_Survey_Public – ALS Focus Health Status Survey written questions. ALSFocus_Demographics...

ALS Focus Wave 5 – Mobility Survey

May 21, 2025

The ALS Association, 2025, "ALS Focus Wave 5 – Mobility Survey", https://doi.org/10.7910/DVN/MDS4GJ, Harvard Dataverse, V1, UNF:6:Dx7TAbIPwgx54nrsSlSUBA== [fileUNF]

The NeuroVERSE record contains the following files: ALSFocusWave5_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 5. ALSFocusWave5_Mobility.dta – This Stata file contains responses to the ALS Mobility survey for people with ALS, current caregivers, and past caregivers. This survey was available in Wave 5. ALS...

ALS Focus Wave 4 – Telehealth Survey

Sep 6, 2022

The ALS Association, 2022, "ALS Focus Wave 4 – Telehealth Survey", https://doi.org/10.7910/DVN/RMBES9, Harvard Dataverse, V1, UNF:6:FTk27cD93UByLgbMwh6O6A== [fileUNF]

The NeuroVERSE record contains the following files: ALSFocusWave4_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 4. ALSFocusWave4_Telehealth.csv – This file contains responses to the Telehealth survey for people with ALS and current caregivers. This survey was available in Wave 4. This file contains a new ‘d...

ALS Focus Wave 3 – Caregiver Needs Survey

Jan 21, 2022

The ALS Association, 2022, "ALS Focus Wave 3 – Caregiver Needs Survey", https://doi.org/10.7910/DVN/KLJPJL, Harvard Dataverse, V1, UNF:6:158A3MLuSx9o9o5oJhnSLg== [fileUNF]

The NeuroVERSE record contains the following files: ALSFocusWave3_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 3. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns). ALSFocusWa...

ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey

Jan 18, 2022

The ALS Association, 2021, "ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey", https://doi.org/10.7910/DVN/J9TLXT, Harvard Dataverse, V2, UNF:6:WPfeqPPGCzCXc0z3zFFllQ== [fileUNF]

This NeuroVERSE record contains two files: ALSFocus_Wave1_Public.csv – This data file contains responses from both the Demographics survey and the survey on Insurance Needs and Financial Burdens, which were fielded in Wave 1 of ALS Focus. This file includes responses collected from February 13, 2020 through April 3, 2020, the launch date and close...

ALS Focus Wave 2 - What Matters Most Survey

Nov 2, 2021

The ALS Association, 2021, "ALS Focus Wave 2 - What Matters Most Survey", https://doi.org/10.7910/DVN/JZ5DZQ, Harvard Dataverse, V1, UNF:6:7F0Tb6g8rb/GGvpKMMRQxQ== [fileUNF]

This Dataverse record contains the following files: ALSFocusWave2_DataDictionary.xlsx – This is the data dictionary for all surveys fielded in ALS Focus Wave 2. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns). ALSFoc...

IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS

Oct 28, 2019

The ALS Association, 2019, "IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS", https://doi.org/10.7910/DVN/HG3MYW, Harvard Dataverse, V2

IMPACT ALS Survey questionnaires and raw data

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