This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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1 to 10 of 305 Results
PROMIS EC Wave 2
May 29, 2025
Blackwell, Courtney, 2023, "PROMIS EC Wave 2", https://doi.org/10.7910/DVN/BO7Y5M, Harvard Dataverse, V3
These data are from Wave 2 data collection for the PROMIS Early Childhood (EC) Parent Report measure development and validation study (see Cella, Blackwell, & Wakschlag, 2022 for overview). Wave 2 data were collected via Ipsos using their probability-based nationally representative online survey panel. The overall aim of Wave 2 data collection was...
codebook_Wave2_scored.xlsx
May 29, 2025 - PROMIS EC Wave 2
MS Excel Spreadsheet - 62.6 KB - MD5: ab1400727c49925db06b2fd5f75a5b2b
PROMIS_EC_Wave2_SCORED.xlsx
May 29, 2025 - PROMIS EC Wave 2
MS Excel Spreadsheet - 1.4 MB - MD5: df7773eedcd675ff6e56e32dbf2509a4
PROMIS 1 American Chronic Pain Association (ACPA) Supplement
Oct 11, 2024
Cella, David, 2016, "PROMIS 1 American Chronic Pain Association (ACPA) Supplement", https://doi.org/10.7910/DVN/5JAACI, Harvard Dataverse, V2
In order to increase the number of participants experiencing pain in the calibration sample, individuals with chronic pain were recruited through the American Chronic Pain Association (ACPA). An invitation to complete the PROMIS pain survey was posted on the ACPA website. To be eligible, participants had to be 21 years of age or older and have at l...
p1w1painsupplement.sas7bdat
Oct 11, 2024 - PROMIS 1 American Chronic Pain Association (ACPA) Supplement
SAS Data - 1.3 MB - MD5: cd8ebc9a2f43fab6df8af0414b47236e
codebook_Wave2.xlsx
Jan 19, 2023 - PROMIS EC Wave 2
MS Excel Spreadsheet - 61.2 KB - MD5: 88bc4b13577f347da29a2d962ff458eb
Codebook for PROMIS EC Wave 2 data
PROMIS_EC_Wave2.xlsx
Jan 19, 2023 - PROMIS EC Wave 2
MS Excel Spreadsheet - 972.1 KB - MD5: 07e4906880d247012905f429882ea8ae
PROMIS EC Wave 2 data
PROMIS II Restore GI
Nov 16, 2022
Jackson, Kathryn L, 2022, "PROMIS II Restore GI", https://doi.org/10.7910/DVN/TOAOE8, Harvard Dataverse, V1
GI Distress: Phase III (Quantitative Psychometric Testing)
score_all_pt_012113f.sas7bdat
Nov 16, 2022 - PROMIS II Restore GI
SAS Data - 2.4 MB - MD5: d050433a366c3c380be0ca35f169fb42
SAS Dataset
Updated_README.docx
Nov 16, 2022 - PROMIS II Restore GI
MS Word - 18.6 KB - MD5: 86f9b4361141c7909c8dc1b8fe27773f
Codebook
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