This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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1 to 10 of 260 Results
codebook_Wave2_scored.xlsx
May 29, 2025 - PROMIS EC Wave 2
MS Excel Spreadsheet - 62.6 KB - MD5: ab1400727c49925db06b2fd5f75a5b2b
PROMIS_EC_Wave2_SCORED.xlsx
May 29, 2025 - PROMIS EC Wave 2
MS Excel Spreadsheet - 1.4 MB - MD5: df7773eedcd675ff6e56e32dbf2509a4
p1w1painsupplement.sas7bdat
Oct 11, 2024 - PROMIS 1 American Chronic Pain Association (ACPA) Supplement
SAS Data - 1.3 MB - MD5: cd8ebc9a2f43fab6df8af0414b47236e
codebook_Wave2.xlsx
Jan 19, 2023 - PROMIS EC Wave 2
MS Excel Spreadsheet - 61.2 KB - MD5: 88bc4b13577f347da29a2d962ff458eb
Codebook for PROMIS EC Wave 2 data
PROMIS_EC_Wave2.xlsx
Jan 19, 2023 - PROMIS EC Wave 2
MS Excel Spreadsheet - 972.1 KB - MD5: 07e4906880d247012905f429882ea8ae
PROMIS EC Wave 2 data
score_all_pt_012113f.sas7bdat
Nov 16, 2022 - PROMIS II Restore GI
SAS Data - 2.4 MB - MD5: d050433a366c3c380be0ca35f169fb42
SAS Dataset
Updated_README.docx
Nov 16, 2022 - PROMIS II Restore GI
MS Word - 18.6 KB - MD5: 86f9b4361141c7909c8dc1b8fe27773f
Codebook
PROMIS W1 readme codebook v4.doc
May 20, 2022 - PROMIS 1 Wave 1
MS Word - 1.2 MB - MD5: c9f6a80f8d378255de66fe73094a2aa8
PROMIS 1 Wave 1.tab
May 19, 2022 - PROMIS 1 Wave 1
Tabular Data - 25.5 MB - 1068 Variables, 21133 Observations - UNF:6:sXYqKDzGWfX7QuTXNGpjGQ==
ibd_deidentified_codebook.tab
Aug 16, 2021 - Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD)
Tabular Data - 9.8 KB - 3 Variables, 157 Observations - UNF:6:dhN/O0Ou4la6UgWJOrMXBA==
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