HealthMeasures Dataverse

This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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11 to 20 of 305 Results

PROMIS 1 Wave 1 May 20, 2022 Cella, David, 2015, "PROMIS 1 Wave 1", https://doi.org/10.7910/DVN/0NGAKG, Harvard Dataverse, V3, UNF:6:sXYqKDzGWfX7QuTXNGpjGQ== [fileUNF] Calibration data for the majority of PROMIS item banks and short forms. From July 2006 to March 2007, data were collected from the U.S. general population and multiple disease populations. The sampling plan was developed for collecting responses to the candidate items from the targeted PROMIS domains and was designed to accommodate multiple objecti...
PROMIS W1 readme codebook v4.doc May 20, 2022 - PROMIS 1 Wave 1 MS Word - 1.2 MB - MD5: c9f6a80f8d378255de66fe73094a2aa8
PROMIS 1 Wave 1.tab May 19, 2022 - PROMIS 1 Wave 1 Tabular Data - 25.5 MB - 1068 Variables, 21133 Observations - UNF:6:sXYqKDzGWfX7QuTXNGpjGQ==
Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD) Aug 16, 2021 Forrest, Christopher, 2021, "Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD)", https://doi.org/10.7910/DVN/MZITNT, Harvard Dataverse, V1, UNF:6:FwAagsMszz8nJ03ETiBVng== [fileUNF] The NIH-sponsored Patient-Reported Outcomes Measurement Information System (PROMIS) network has developed 20 pediatric instruments, both child-report and parent-proxy editions. Concurrent validity evaluations of the instruments have established that they are ready for integration into clinical research. The next step is to determine the clinical va...
ibd_deidentified_codebook.tab Aug 16, 2021 - Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD) Tabular Data - 9.8 KB - 3 Variables, 157 Observations - UNF:6:dhN/O0Ou4la6UgWJOrMXBA==
ibd_deidentified.tab Aug 16, 2021 - Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD) Tabular Data - 411.2 KB - 156 Variables, 1049 Observations - UNF:6:vOIgSopp6elHQGM1zr6qbA==
PROMIS Pediatric General Population Survey Aug 13, 2021 Forrest, Christopher, 2021, "PROMIS Pediatric General Population Survey", https://doi.org/10.7910/DVN/FBXOOZ, Harvard Dataverse, V1, UNF:6:0u9wOuGEFzpGacD+3SByAA== [fileUNF] The purpose of this study was to establish age-based norms for all pediatric PROMIS measures (a total of 20 measures), and to assess the concurrent validity and relative precision of 9 newly developed pediatric PROMIS measures. The GfK Group (GfK, formerly Knowledge Networks) conducted the survey in 2014 on behalf of The Children’s Hospital of Phil...
CHOP Norming Codebook and Frequencies.xlsx Aug 13, 2021 - PROMIS Pediatric General Population Survey MS Excel Spreadsheet - 367.6 KB - MD5: 32bbdab5929cb5829b619ce027848c30
CHOP_NormingStudy_Client_WEIGHTED_Derived_w_Thetas_public.tab Aug 13, 2021 - PROMIS Pediatric General Population Survey Tabular Data - 21.7 MB - 946 Variables, 5206 Observations - UNF:6:0u9wOuGEFzpGacD+3SByAA==
GfK_report.pdf Aug 13, 2021 - PROMIS Pediatric General Population Survey Adobe PDF - 740.6 KB - MD5: 4487a0ddb6da4c4c6339ef4f3315abaa

PROMIS 1 Wave 1

May 20, 2022

Cella, David, 2015, "PROMIS 1 Wave 1", https://doi.org/10.7910/DVN/0NGAKG, Harvard Dataverse, V3, UNF:6:sXYqKDzGWfX7QuTXNGpjGQ== [fileUNF]

Calibration data for the majority of PROMIS item banks and short forms. From July 2006 to March 2007, data were collected from the U.S. general population and multiple disease populations. The sampling plan was developed for collecting responses to the candidate items from the targeted PROMIS domains and was designed to accommodate multiple objecti...

PROMIS W1 readme codebook v4.doc

May 20, 2022 - PROMIS 1 Wave 1

MS Word - 1.2 MB -

PROMIS 1 Wave 1.tab

May 19, 2022 - PROMIS 1 Wave 1

Tabular Data - 25.5 MB - 1068 Variables, 21133 Observations -

Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD)

Aug 16, 2021

Forrest, Christopher, 2021, "Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD)", https://doi.org/10.7910/DVN/MZITNT, Harvard Dataverse, V1, UNF:6:FwAagsMszz8nJ03ETiBVng== [fileUNF]

The NIH-sponsored Patient-Reported Outcomes Measurement Information System (PROMIS) network has developed 20 pediatric instruments, both child-report and parent-proxy editions. Concurrent validity evaluations of the instruments have established that they are ready for integration into clinical research. The next step is to determine the clinical va...

ibd_deidentified_codebook.tab

Aug 16, 2021 - Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD)

Tabular Data - 9.8 KB - 3 Variables, 157 Observations -

ibd_deidentified.tab

Aug 16, 2021 - Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD)

Tabular Data - 411.2 KB - 156 Variables, 1049 Observations -

PROMIS Pediatric General Population Survey

Aug 13, 2021

Forrest, Christopher, 2021, "PROMIS Pediatric General Population Survey", https://doi.org/10.7910/DVN/FBXOOZ, Harvard Dataverse, V1, UNF:6:0u9wOuGEFzpGacD+3SByAA== [fileUNF]

The purpose of this study was to establish age-based norms for all pediatric PROMIS measures (a total of 20 measures), and to assess the concurrent validity and relative precision of 9 newly developed pediatric PROMIS measures. The GfK Group (GfK, formerly Knowledge Networks) conducted the survey in 2014 on behalf of The Children’s Hospital of Phil...

CHOP Norming Codebook and Frequencies.xlsx

Aug 13, 2021 - PROMIS Pediatric General Population Survey

MS Excel Spreadsheet - 367.6 KB -

CHOP_NormingStudy_Client_WEIGHTED_Derived_w_Thetas_public.tab

Aug 13, 2021 - PROMIS Pediatric General Population Survey

Tabular Data - 21.7 MB - 946 Variables, 5206 Observations -

GfK_report.pdf

Aug 13, 2021 - PROMIS Pediatric General Population Survey

Adobe PDF - 740.6 KB -

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