HealthMeasures Dataverse

This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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11 to 20 of 45 Results

PROMIS Pediatric Asthma Study Jun 30, 2021 Huang, I-Chan, 2021, "PROMIS Pediatric Asthma Study", https://doi.org/10.7910/DVN/MCSRLN, Harvard Dataverse, V1 This study aimed to compare the responsiveness to change of the Patient-Reported Outcomes Measurement Information System (PROMIS®) asthma impact and generic scales to a legacy scale, the Paediatric Asthma Quality of Life Questionnaire (PAQLQ). 229 child-parent dyads in public insurance programs were enrolled. PROMIS Pediatric Short Forms and the PA...
Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue Jun 22, 2021 Moinpour, Carol M, 2021, "Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue", https://doi.org/10.7910/DVN/BWKB4W, Harvard Dataverse, V1, UNF:6:ecEZ4wZUWK40LXdzn7x0Gw== [fileUNF] Evaluate how well three different patient-reported outcomes (PROs) measure individual change. 214 patients (from two sites) initiating first or new chemotherapy for any stage of breast or gastrointestinal cancer participated. The 13-item FACIT–Fatigue scale, a 7-item PROMIS® Fatigue Short-Form (PROMIS 7a), and the PROMIS® Fatigue computer adaptive...
Mode of Administration Effects in the Pediatric PROMIS Measures Jun 18, 2021 Reeve, Bryce, 2021, "Mode of Administration Effects in the Pediatric PROMIS Measures", https://doi.org/10.7910/DVN/J7CNMN, Harvard Dataverse, V1, UNF:6:wVjrZHCRZI8Gv6WCZACbDw== [fileUNF] To test equivalence of scores obtained with the PROMIS® pediatric Depressive Symptoms, Fatigue, and Mobility measures across two modes of administration: computer self-administration and telephone interviewer-administration. If mode effects are found, to estimate the magnitude and direction of the mode effects. Respondents from an internet survey p...
PROMIS Pediatrics - Linking Pediatric and Adult Item Banks Jun 18, 2021 DeWalt, Darren A.; Reeve, Bryce; Huang, I-Chan, 2021, "PROMIS Pediatrics - Linking Pediatric and Adult Item Banks", https://doi.org/10.7910/DVN/QDMEYE, Harvard Dataverse, V1, UNF:6:IflehMq3xW4WSPt4HIpxwg== [fileUNF] Having independent versions of the PROMIS® scales (for Pediatric and Adults) is problematic as scores cannot be evaluated longitudinally as individuals move from childhood into adulthood. The primary aim of this research project is to use item response theory (IRT) to develop a transitional scoring link (or “crosswalk”) between the PROMIS adult and...
PROMIS Pediatrics Longitudinal Validation in SCD Jun 18, 2021 Dampier, Carlton, 2021, "PROMIS Pediatrics Longitudinal Validation in SCD", https://doi.org/10.7910/DVN/LLXNJY, Harvard Dataverse, V1, UNF:6:RbCBuB2Mrp6z7AtPgQgcXQ== [fileUNF] The Patient-Reported Outcomes Measurement Information System® (PROMIS®) created pediatric self-report scales measuring a variety of health attributes (domains), but their responsiveness to changes in health status has not yet been determined in children with sickle cell disease (SCD). A convenience cohort of symptomatic SCD children, aged 8-17 year...
PROMIS-II Pediatric Cancer Study Jun 18, 2021 Hinds, Pamela S., 2021, "PROMIS-II Pediatric Cancer Study", https://doi.org/10.7910/DVN/M5WXZY, Harvard Dataverse, V1, UNF:6:Q8tNbUFv9Jk1ActSEP0xsg== [fileUNF] This study assessed the responsiveness to change over time and theorized associations of Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric measures in children and adolescents in treatment for cancer to determine measure readiness for use in cancer clinical trials. We administered eight PROMIS (three symptom, two psycholog...
PROMIS-II Pediatric Nephrotic Syndrome Jun 18, 2021 Gipson, Debbie, 2021, "PROMIS-II Pediatric Nephrotic Syndrome", https://doi.org/10.7910/DVN/IE6BUJ, Harvard Dataverse, V1, UNF:6:D0E9JEWD/yylIJd8SakJHg== [fileUNF] Nephrotic syndrome represents a condition in pediatric nephrology typified by a relapsing and remitting course, proteinuria and the presence of edema. The PROMIS measures have previously been studied and validated in cross-sectional studies of children with nephrotic syndrome. This study was designed to longitudinally validate the PROMIS measures i...
Development and Validation of a Self-Efficacy Item Bank Jun 17, 2021 Shulman, Lisa, 2021, "Development and Validation of a Self-Efficacy Item Bank", https://doi.org/10.7910/DVN/TGWZQJ, Harvard Dataverse, V1, UNF:6:OLEU92b6zbmpG9ZAp3aDwA== [fileUNF] The Patient-Reported Outcomes Measurement Information System® (PROMIS®) was designed to develop, validate, and standardize item banks to measure key domains of physical, mental and social health in chronic conditions. This paper reports the calibration and validation testing of the PROMIS Self-Efficacy for Managing Chronic Conditions measures. PROM...
Ecological Validity of PROMIS Instruments Jun 17, 2021 Stone, Arthur A.; Broderick, Joan E., 2021, "Ecological Validity of PROMIS Instruments", https://doi.org/10.7910/DVN/G4E2SR, Harvard Dataverse, V1 This is a 4-week longitudinal (repeated measures) protocol with 5 separate samples:(1) a general community sample, (2) a sample of patients with osteoarthritis, (3) a sample of women reporting premenstrual symptoms (PMS/PMDD), (4) a sample of men undergoing hernia surgery, (5) a sample of women with breast cancer undergoing chemotherapy. In each sa...
Assessment of Physical Function in Health and Disease (Floor and Ceiling) Jun 17, 2021 Krishnan, Eswar, 2021, "Assessment of Physical Function in Health and Disease (Floor and Ceiling)", https://doi.org/10.7910/DVN/UDMFYV, Harvard Dataverse, V1, UNF:6:A8eS41nDQaDtD5oOUxByow== [fileUNF] The objective of the current study was to improve the assessment of physical function by improving the precision of assessment at the floor (extremely poor function) and at the ceiling (extremely good health) of the health continuum. Under the NIH PROMIS program, we developed new physical function floor and ceiling items to supplement the existing...

PROMIS Pediatric Asthma Study

Jun 30, 2021

Huang, I-Chan, 2021, "PROMIS Pediatric Asthma Study", https://doi.org/10.7910/DVN/MCSRLN, Harvard Dataverse, V1

This study aimed to compare the responsiveness to change of the Patient-Reported Outcomes Measurement Information System (PROMIS®) asthma impact and generic scales to a legacy scale, the Paediatric Asthma Quality of Life Questionnaire (PAQLQ). 229 child-parent dyads in public insurance programs were enrolled. PROMIS Pediatric Short Forms and the PA...

Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue

Jun 22, 2021

Moinpour, Carol M, 2021, "Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue", https://doi.org/10.7910/DVN/BWKB4W, Harvard Dataverse, V1, UNF:6:ecEZ4wZUWK40LXdzn7x0Gw== [fileUNF]

Evaluate how well three different patient-reported outcomes (PROs) measure individual change. 214 patients (from two sites) initiating first or new chemotherapy for any stage of breast or gastrointestinal cancer participated. The 13-item FACIT–Fatigue scale, a 7-item PROMIS® Fatigue Short-Form (PROMIS 7a), and the PROMIS® Fatigue computer adaptive...

Mode of Administration Effects in the Pediatric PROMIS Measures

Jun 18, 2021

Reeve, Bryce, 2021, "Mode of Administration Effects in the Pediatric PROMIS Measures", https://doi.org/10.7910/DVN/J7CNMN, Harvard Dataverse, V1, UNF:6:wVjrZHCRZI8Gv6WCZACbDw== [fileUNF]

To test equivalence of scores obtained with the PROMIS® pediatric Depressive Symptoms, Fatigue, and Mobility measures across two modes of administration: computer self-administration and telephone interviewer-administration. If mode effects are found, to estimate the magnitude and direction of the mode effects. Respondents from an internet survey p...

PROMIS Pediatrics - Linking Pediatric and Adult Item Banks

Jun 18, 2021

DeWalt, Darren A.; Reeve, Bryce; Huang, I-Chan, 2021, "PROMIS Pediatrics - Linking Pediatric and Adult Item Banks", https://doi.org/10.7910/DVN/QDMEYE, Harvard Dataverse, V1, UNF:6:IflehMq3xW4WSPt4HIpxwg== [fileUNF]

Having independent versions of the PROMIS® scales (for Pediatric and Adults) is problematic as scores cannot be evaluated longitudinally as individuals move from childhood into adulthood. The primary aim of this research project is to use item response theory (IRT) to develop a transitional scoring link (or “crosswalk”) between the PROMIS adult and...

PROMIS Pediatrics Longitudinal Validation in SCD

Jun 18, 2021

Dampier, Carlton, 2021, "PROMIS Pediatrics Longitudinal Validation in SCD", https://doi.org/10.7910/DVN/LLXNJY, Harvard Dataverse, V1, UNF:6:RbCBuB2Mrp6z7AtPgQgcXQ== [fileUNF]

The Patient-Reported Outcomes Measurement Information System® (PROMIS®) created pediatric self-report scales measuring a variety of health attributes (domains), but their responsiveness to changes in health status has not yet been determined in children with sickle cell disease (SCD). A convenience cohort of symptomatic SCD children, aged 8-17 year...

PROMIS-II Pediatric Cancer Study

Jun 18, 2021

Hinds, Pamela S., 2021, "PROMIS-II Pediatric Cancer Study", https://doi.org/10.7910/DVN/M5WXZY, Harvard Dataverse, V1, UNF:6:Q8tNbUFv9Jk1ActSEP0xsg== [fileUNF]

This study assessed the responsiveness to change over time and theorized associations of Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric measures in children and adolescents in treatment for cancer to determine measure readiness for use in cancer clinical trials. We administered eight PROMIS (three symptom, two psycholog...

PROMIS-II Pediatric Nephrotic Syndrome

Jun 18, 2021

Gipson, Debbie, 2021, "PROMIS-II Pediatric Nephrotic Syndrome", https://doi.org/10.7910/DVN/IE6BUJ, Harvard Dataverse, V1, UNF:6:D0E9JEWD/yylIJd8SakJHg== [fileUNF]

Nephrotic syndrome represents a condition in pediatric nephrology typified by a relapsing and remitting course, proteinuria and the presence of edema. The PROMIS measures have previously been studied and validated in cross-sectional studies of children with nephrotic syndrome. This study was designed to longitudinally validate the PROMIS measures i...

Development and Validation of a Self-Efficacy Item Bank

Jun 17, 2021

Shulman, Lisa, 2021, "Development and Validation of a Self-Efficacy Item Bank", https://doi.org/10.7910/DVN/TGWZQJ, Harvard Dataverse, V1, UNF:6:OLEU92b6zbmpG9ZAp3aDwA== [fileUNF]

The Patient-Reported Outcomes Measurement Information System® (PROMIS®) was designed to develop, validate, and standardize item banks to measure key domains of physical, mental and social health in chronic conditions. This paper reports the calibration and validation testing of the PROMIS Self-Efficacy for Managing Chronic Conditions measures. PROM...

Ecological Validity of PROMIS Instruments

Jun 17, 2021

Stone, Arthur A.; Broderick, Joan E., 2021, "Ecological Validity of PROMIS Instruments", https://doi.org/10.7910/DVN/G4E2SR, Harvard Dataverse, V1

This is a 4-week longitudinal (repeated measures) protocol with 5 separate samples:(1) a general community sample, (2) a sample of patients with osteoarthritis, (3) a sample of women reporting premenstrual symptoms (PMS/PMDD), (4) a sample of men undergoing hernia surgery, (5) a sample of women with breast cancer undergoing chemotherapy. In each sa...

Assessment of Physical Function in Health and Disease (Floor and Ceiling)

Jun 17, 2021

Krishnan, Eswar, 2021, "Assessment of Physical Function in Health and Disease (Floor and Ceiling)", https://doi.org/10.7910/DVN/UDMFYV, Harvard Dataverse, V1, UNF:6:A8eS41nDQaDtD5oOUxByow== [fileUNF]

The objective of the current study was to improve the assessment of physical function by improving the precision of assessment at the floor (extremely poor function) and at the ceiling (extremely good health) of the health continuum. Under the NIH PROMIS program, we developed new physical function floor and ceiling items to supplement the existing...

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