This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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11 to 20 of 260 Results
ibd_deidentified.tab
Aug 16, 2021 - Evaluation of PROMIS Measures for Pediatric Inflammatory Bowel Disease (IBD)
Tabular Data - 411.2 KB - 156 Variables, 1049 Observations - UNF:6:vOIgSopp6elHQGM1zr6qbA==
CHOP Norming Codebook and Frequencies.xlsx
Aug 13, 2021 - PROMIS Pediatric General Population Survey
MS Excel Spreadsheet - 367.6 KB - MD5: 32bbdab5929cb5829b619ce027848c30
CHOP_NormingStudy_Client_WEIGHTED_Derived_w_Thetas_public.tab
Aug 13, 2021 - PROMIS Pediatric General Population Survey
Tabular Data - 21.7 MB - 946 Variables, 5206 Observations - UNF:6:0u9wOuGEFzpGacD+3SByAA==
GfK_report.pdf
GfK_report.pdf
Aug 13, 2021 - PROMIS Pediatric General Population Survey
Adobe PDF - 740.6 KB - MD5: 4487a0ddb6da4c4c6339ef4f3315abaa
PROsetta Stone Wave 3 Data Dictionary 11.15.2012.xlsx
Aug 11, 2021 - PROsetta Stone Wave 3
MS Excel Spreadsheet - 21.8 KB - MD5: 5b4e0e66898ed232d2cb5f242bcb67f5
prosetta_wave3.sas7bdat
Aug 11, 2021 - PROsetta Stone Wave 3
SAS Data - 849.0 KB - MD5: 7d84fdf7dc8183ee585280c866a90d1d
CHOP Norming Codebook and Frequencies.xlsx
Jul 30, 2021 - PROMIS Pediatric General Population Survey
MS Excel Spreadsheet - 367.6 KB - MD5: 32bbdab5929cb5829b619ce027848c30
COPD_Data_Dictionary.rtf
Jul 14, 2021 - FACIT Dyspnea (PROMIS Dyspnea)
MS Word - 378.6 KB - MD5: 6beb8f4a7800510195907a2ba6453438
Yount et al. study code book
did_all_tables.sas7bdat
Jul 14, 2021 - FACIT Dyspnea (PROMIS Dyspnea)
SAS Data - 1.8 MB - MD5: e304e9b73116e6a9c45c69776376b58b
Yount et al. study data
NWHR0004_CODEBOOK.pdf
NWHR0004_CODEBOOK.pdf
Jul 14, 2021 - FACIT Dyspnea (PROMIS Dyspnea)
Adobe PDF - 264.9 KB - MD5: 5660a2da731bafe51f95c5db503370f5
Choi et al. study code book
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