HealthMeasures Dataverse

This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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21 to 30 of 45 Results

Representative PROMIS Profile 29 and EQ-5D Data from France, UK, and Germany Feb 2, 2021 Fischer, Felix, 2021, "Representative PROMIS Profile 29 and EQ-5D Data from France, UK, and Germany", https://doi.org/10.7910/DVN/FNYYQR, Harvard Dataverse, V1, UNF:6:By07sYjTnv8zV7dtqLuM6A== [fileUNF] This dataset of 4512 participants (UK N = 1509, France N = 1501, and Germany N = 1502) contains sociodemographic information, as well as PROMIS Profile 29 data, and EQ-5D data. Data were collected by an independent polling company (Ipsos) through their internet panel. There were no missing data as participants had to respond to each question in ord...
PROMIS 2: Development and Validation of PROMIS pediatric item banks for physical activity, subjective well‐being, family relations, and stress experiences Aug 23, 2018 Forrest MD PhD, Christopher, 2018, "PROMIS 2: Development and Validation of PROMIS pediatric item banks for physical activity, subjective well‐being, family relations, and stress experiences", https://doi.org/10.7910/DVN/RJ9PQC, Harvard Dataverse, V1, UNF:6:se8rdiUScDuqFCktHUAlFQ== [fileUNF] Cross sectional data collection from school, clinic and internet panel settings for representativeness. Some subjects are included in more than 1 data set as they answered questions from multiple subdomains. The main objectives were to: To evaluate the psychometric properties of each bank, including testing the item response theory assumptions for...
PROMIS Neuropathic Pain Dataset Jul 20, 2018 Cella, Dave, 2018, "PROMIS Neuropathic Pain Dataset", https://doi.org/10.7910/DVN/TJ9MNM, Harvard Dataverse, V4, UNF:6:RheCLnap0rvIyuzzXXzOow== [fileUNF] Neuropathic pain (NP) is a consequence of many chronic conditions. This study aimed to develop an unidimensional NP scale with scores that represent levels of NP and distinguish between individuals with NP and non-NP conditions.
PROMIS Substance Use Item Banks Apr 8, 2018 Pilkonis, Paul, 2018, "PROMIS Substance Use Item Banks", https://doi.org/10.7910/DVN/VLCJUE, Harvard Dataverse, V1, UNF:6:RUH7SSnf++2f2C7B+tig0w== [fileUNF] Two item banks for substance use were developed as part of PROMIS(®): severity of substance use and positive appeal of substance use. The calibration used in validating these measures consists of 1,336 respondents included 875 individuals from the general population (ascertained through an internet panel) and 461 patients from addiction treatment c...
Nausea and Vomiting Management Barriers Questionnaire Dataset Apr 6, 2018 Cella, Dave, 2018, "Nausea and Vomiting Management Barriers Questionnaire Dataset", https://doi.org/10.7910/DVN/Y8ICVZ, Harvard Dataverse, V1, UNF:6:+lQVgFRWo9IZmkIRQ2XJDw== [fileUNF] Observational, descriptive study of patient perceptions of chemotherapy related nausea and vomiting. The patient sample consists of N=299 who completed socio-demographic and clinical items as well as a Nausea and Vomiting Management Barriers Questionnaire (NVMBQ).
PROsetta Stone Wave 1Deaccessioned Aug 26, 2017 Cella, David, 2017, "PROsetta Stone Wave 1", https://doi.org/10.7910/DVN/JAFPNA, Harvard Dataverse, V2, UNF:6:rgmadecmwqISv1z9ipD+6Q== [fileUNF] The primary aim of PROsetta Stone Wave 1 was to establish linking relationships between PROMIS measures (Anxiety, Depression, Fatigue, Global, and Profile) and other related instruments (BDI, HADS, PANAS, NeuroQOL Fatigue, and Vitality scale) to expand the range of PRO assessment options within a common, standardized metric and to aid interpretatio...
NIH Toolbox Norming Study Mar 15, 2017 Richard Gershon, 2016, "NIH Toolbox Norming Study", https://doi.org/10.7910/DVN/FF4DI7, Harvard Dataverse, V4, UNF:6:bOqMnZEEG/rBz6SQyN4t2g== [fileUNF] The NIH Toolbox normative study was conducted in 2011. The sample consisted of community-dwelling children and adults ages 3–85 years old recruited at 10 U.S. testing sites. PLEASE review README file for important descriptive information about the data files.
PROsetta Stone Wave 2Deaccessioned Mar 9, 2017 Cella, David, 2017, "PROsetta Stone Wave 2", https://doi.org/10.7910/DVN/WZVYZI, Harvard Dataverse, V1, UNF:6:Qg6Y7gTvy4LVtQsS3fuE9Q== [fileUNF] The primary aim of PROsetta Stone Wave 2 was to establish linking relationships between PROMIS measures in the Social, Sleep, Cognition and Psychological Well Being subdomains and related instruments from Toolbox and Neuro-QOL, as well as between the PROMIS Global and VR-12 forms, to expand the range of PRO assessment options within a common, stand...
NIH Toolbox Cognition Validation Mar 9, 2017 Gershon, Richard, 2017, "NIH Toolbox Cognition Validation", https://doi.org/10.7910/DVN/DQNWCH, Harvard Dataverse, V1, UNF:6:LKkXSUeQMul+iUdidCYxkw== [fileUNF] The objectives of the NIH Toolbox Cognition Validation study were: 1. To assess whether proposed experimental measures meet minimum acceptable reliability and validity criteria; 2. To shorten, condense or remove overlapping measures in order to meet Toolbox timing criteria.
CaPS + SyMon1 MID Combined Mar 9, 2017 Cella, David, 2017, "CaPS + SyMon1 MID Combined", https://doi.org/10.7910/DVN/3KI0QS, Harvard Dataverse, V1, UNF:6:fCGf/yc8axciVbZTc/JQGA== [fileUNF] Identify minimally important differences (MIDs) for cancer-related banks to be adopted into PROMIS and provide coordination and methodological expertise to PRSs developing MIDs for other patient-reported outcomes. Combination of two datasets known as CaPS MID and SyMon1 MID.

Representative PROMIS Profile 29 and EQ-5D Data from France, UK, and Germany

Feb 2, 2021

Fischer, Felix, 2021, "Representative PROMIS Profile 29 and EQ-5D Data from France, UK, and Germany", https://doi.org/10.7910/DVN/FNYYQR, Harvard Dataverse, V1, UNF:6:By07sYjTnv8zV7dtqLuM6A== [fileUNF]

This dataset of 4512 participants (UK N = 1509, France N = 1501, and Germany N = 1502) contains sociodemographic information, as well as PROMIS Profile 29 data, and EQ-5D data. Data were collected by an independent polling company (Ipsos) through their internet panel. There were no missing data as participants had to respond to each question in ord...

PROMIS 2: Development and Validation of PROMIS pediatric item banks for physical activity, subjective well‐being, family relations, and stress experiences

Aug 23, 2018

Forrest MD PhD, Christopher, 2018, "PROMIS 2: Development and Validation of PROMIS pediatric item banks for physical activity, subjective well‐being, family relations, and stress experiences", https://doi.org/10.7910/DVN/RJ9PQC, Harvard Dataverse, V1, UNF:6:se8rdiUScDuqFCktHUAlFQ== [fileUNF]

Cross sectional data collection from school, clinic and internet panel settings for representativeness. Some subjects are included in more than 1 data set as they answered questions from multiple subdomains. The main objectives were to: To evaluate the psychometric properties of each bank, including testing the item response theory assumptions for...

PROMIS Neuropathic Pain Dataset

Jul 20, 2018

Cella, Dave, 2018, "PROMIS Neuropathic Pain Dataset", https://doi.org/10.7910/DVN/TJ9MNM, Harvard Dataverse, V4, UNF:6:RheCLnap0rvIyuzzXXzOow== [fileUNF]

Neuropathic pain (NP) is a consequence of many chronic conditions. This study aimed to develop an unidimensional NP scale with scores that represent levels of NP and distinguish between individuals with NP and non-NP conditions.

PROMIS Substance Use Item Banks

Apr 8, 2018

Pilkonis, Paul, 2018, "PROMIS Substance Use Item Banks", https://doi.org/10.7910/DVN/VLCJUE, Harvard Dataverse, V1, UNF:6:RUH7SSnf++2f2C7B+tig0w== [fileUNF]

Two item banks for substance use were developed as part of PROMIS(®): severity of substance use and positive appeal of substance use. The calibration used in validating these measures consists of 1,336 respondents included 875 individuals from the general population (ascertained through an internet panel) and 461 patients from addiction treatment c...

Nausea and Vomiting Management Barriers Questionnaire Dataset

Apr 6, 2018

Cella, Dave, 2018, "Nausea and Vomiting Management Barriers Questionnaire Dataset", https://doi.org/10.7910/DVN/Y8ICVZ, Harvard Dataverse, V1, UNF:6:+lQVgFRWo9IZmkIRQ2XJDw== [fileUNF]

Observational, descriptive study of patient perceptions of chemotherapy related nausea and vomiting. The patient sample consists of N=299 who completed socio-demographic and clinical items as well as a Nausea and Vomiting Management Barriers Questionnaire (NVMBQ).

PROsetta Stone Wave 1Deaccessioned

Aug 26, 2017

Cella, David, 2017, "PROsetta Stone Wave 1", https://doi.org/10.7910/DVN/JAFPNA, Harvard Dataverse, V2, UNF:6:rgmadecmwqISv1z9ipD+6Q== [fileUNF]

The primary aim of PROsetta Stone Wave 1 was to establish linking relationships between PROMIS measures (Anxiety, Depression, Fatigue, Global, and Profile) and other related instruments (BDI, HADS, PANAS, NeuroQOL Fatigue, and Vitality scale) to expand the range of PRO assessment options within a common, standardized metric and to aid interpretatio...

NIH Toolbox Norming Study

Mar 15, 2017

Richard Gershon, 2016, "NIH Toolbox Norming Study", https://doi.org/10.7910/DVN/FF4DI7, Harvard Dataverse, V4, UNF:6:bOqMnZEEG/rBz6SQyN4t2g== [fileUNF]

The NIH Toolbox normative study was conducted in 2011. The sample consisted of community-dwelling children and adults ages 3–85 years old recruited at 10 U.S. testing sites. PLEASE review README file for important descriptive information about the data files.

PROsetta Stone Wave 2Deaccessioned

Mar 9, 2017

Cella, David, 2017, "PROsetta Stone Wave 2", https://doi.org/10.7910/DVN/WZVYZI, Harvard Dataverse, V1, UNF:6:Qg6Y7gTvy4LVtQsS3fuE9Q== [fileUNF]

The primary aim of PROsetta Stone Wave 2 was to establish linking relationships between PROMIS measures in the Social, Sleep, Cognition and Psychological Well Being subdomains and related instruments from Toolbox and Neuro-QOL, as well as between the PROMIS Global and VR-12 forms, to expand the range of PRO assessment options within a common, stand...

NIH Toolbox Cognition Validation

Mar 9, 2017

Gershon, Richard, 2017, "NIH Toolbox Cognition Validation", https://doi.org/10.7910/DVN/DQNWCH, Harvard Dataverse, V1, UNF:6:LKkXSUeQMul+iUdidCYxkw== [fileUNF]

The objectives of the NIH Toolbox Cognition Validation study were: 1. To assess whether proposed experimental measures meet minimum acceptable reliability and validity criteria; 2. To shorten, condense or remove overlapping measures in order to meet Toolbox timing criteria.

CaPS + SyMon1 MID Combined

Mar 9, 2017

Cella, David, 2017, "CaPS + SyMon1 MID Combined", https://doi.org/10.7910/DVN/3KI0QS, Harvard Dataverse, V1, UNF:6:fCGf/yc8axciVbZTc/JQGA== [fileUNF]

Identify minimally important differences (MIDs) for cancer-related banks to be adopted into PROMIS and provide coordination and methodological expertise to PRSs developing MIDs for other patient-reported outcomes. Combination of two datasets known as CaPS MID and SyMon1 MID.

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