This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

If you would like to add your data to the HealthMeasures Dataverse, please review the instructions on the HealthMeasures Forum here.

Featured Dataverses

In order to use this feature you must have at least one published or linked dataverse.

Publish Dataverse

Are you sure you want to publish your dataverse? Once you do so it must remain published.

Publish Dataverse

This dataverse cannot be published because the dataverse it is in has not been published.

Delete Dataverse

Are you sure you want to delete your dataverse? You cannot undelete this dataverse.

Advanced Search

21 to 30 of 260 Results
NWHR0004_FINAL_OUTPUT.tab
Jul 14, 2021 - FACIT Dyspnea (PROMIS Dyspnea)
Tabular Data - 812.0 KB - 613 Variables, 608 Observations - UNF:6:92iWO0lCj/LjVjEYn6rQlg==
Choi et al. study data
did_all_jia_012013.sas7bdat
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
SAS Data - 3.9 MB - MD5: ea672c2f21dec1cec778112472ea8fc0
Self-reported legacy and clinical assessment data
PROMIS 2 JIA Data Dictionary.pdf
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
Adobe PDF - 156.0 KB - MD5: da037db41fc3db5bd1cc02f373daf6fe
Code book for CAT and short form data
promis_JIA_bank.sas7bdat
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
SAS Data - 33.0 KB - MD5: a289a27917e2fde2cff10a90578b5e44
PROMIS CAT data
promis_JIA_sf.sas7bdat
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
SAS Data - 33.0 KB - MD5: 081ab80df4a30397e3885d27ec03399a
PROMIS short form data
Redcap data_dic.pdf
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
Adobe PDF - 70.2 KB - MD5: 8affed6506d4a7148a2318ed93d17540
Code book for assessment data
PROMIS_PAS_DataArchive_Codebook_Demographics.IH.docx
Jun 30, 2021 - PROMIS Pediatric Asthma Study
MS Word - 36.6 KB - MD5: 25e55bca3e2a7e5ffec4046601ff603e
Code book for demographic data
PROMIS_PAS_DataArchive_Codebook_PRO.IH.docx
Jun 30, 2021 - PROMIS Pediatric Asthma Study
MS Word - 65.7 KB - MD5: bc78bf9804cb6012c9f7a3b64ed9a70b
Code book for PRO data
promis_pas_demo_IH.sas7bdat
Jun 30, 2021 - PROMIS Pediatric Asthma Study
SAS Data - 81.0 KB - MD5: d1c327d87e707f96e899e257753ca068
Demographic data
PROMIS_pas_pro_IH.sas7bdat
Jun 30, 2021 - PROMIS Pediatric Asthma Study
SAS Data - 1.9 MB - MD5: 61be98161a82bc307478805e533bc9dc
PRO data
Add Data

Sign up or log in to create a dataverse or add a dataset.

Sign Up Log In
Share Dataverse

Share this dataverse on your favorite social media networks.

Link Dataverse
Reset Modifications

Are you sure you want to reset the selected metadata fields? If you do this, any customizations (hidden, required, optional) you have done will no longer appear.