31 to 40 of 45 Results
Mar 8, 2017
Cella, David, 2017, "NeuroQOL Clinical Validation Study (aka Wave II)", https://doi.org/10.7910/DVN/WLFEUV, Harvard Dataverse, V1, UNF:6:HV5PjssX0BBCZs4zkAOgYA== [fileUNF]
From January 15, 2009 to January 30, 2010 Wave II short form testing in clinical samples was conducted to increase the sample size for some of the instrument calibration analyses and to conduct validation studies. Wave II participants were recruited from Cleveland Clinic Foundation, Dartmouth-Hitchcock Medical Center, NorthShore University HealthSy... |
Mar 7, 2017
Cella, David, 2017, "NeuroQOL Wave 1b", https://doi.org/10.7910/DVN/TLCDRX, Harvard Dataverse, V1, UNF:6:YeaDxd3H4qygJHJv3AlAoQ== [fileUNF]
Neuro-QoL measures were developed through a collaborative, multisite NINDS-sponsored research initiative to construct a psychometrically-sound, and clinically-relevant, health-related quality of life measurement tools for individuals with neurological conditions such as stroke, multiple sclerosis, amyotrophic lateral sclerosis, Parkinson’s disease,... |
Jan 13, 2017
Cella, David, 2017, "FKSI General Population", https://doi.org/10.7910/DVN/BTLQOK, Harvard Dataverse, V1, UNF:6:J5FFiHZ+sQZasx7piTvM9Q== [fileUNF]
Normative data for the National Comprehensive Cancer Network-Functional Assessment of Cancer Therapy–Kidney Symptom Index (NFKSI). All 2000 survey respondents completed the 19-item NFKSI-19, as well as the SF-36 (Short Form 36-item instrument) and the PROMIS-29 (29-item Patient Reported Outcomes Measurement Information System), both general health... |
DeWalt, Darren, 2016, "PROMIS 1 Wave 2 Chronic Obstructive Pulmonary Disease (COPD)", https://doi.org/10.7910/DVN/UOQNJF, Harvard Dataverse, V1, UNF:6:7/2BeUMgnlgfPDHdJzwEwQ== [fileUNF]
This is a prospective, longitudinal study of adult patients with Chronic Obstructive Pulmonary Disease (COPD). Patients were enrolled when their COPD was considered clinically stable or during an acute exacerbation. This design allowed both within-person and between person comparisons by exacerbation experience. Comprehensive clinical and patient-r... |
Nov 2, 2016
Dagmar Amtmann, 2016, "PROMIS 1 Wave 2 Pain", https://doi.org/10.7910/DVN/ESOAH5, Harvard Dataverse, V1, UNF:6:TYzYcoNorGguhqSjkVdL2Q== [fileUNF]
The pain subsample of the PROMIS 1 Wave 2 Pain and Depression study was developed to test the utility of computer adaptive tests (CATs) with individuals diagnosed with back and leg pain. Patients were recruited and treated with epidural steroid injections. This protocol was aimed at comparing the psychometric properties of the PROMIS item banks wit... |
Sep 19, 2016
Keller, San, 2016, "ASCQ-Me", https://doi.org/10.7910/DVN/8OFSL3, Harvard Dataverse, V1, UNF:6:+sKs18LZQZaWKHwNa1nOOA== [fileUNF]
ASCQ-MeSM (Adult Sickle Cell Quality of Life Measurement Information System) is a patient-reported outcome measurement system that evaluates and monitors the physical, mental, and social well-being of adults with sickle cell disease. ASCQ-Me was developed to answer a need identified in sickle cell disease (SCD) working groups conducted by the Natio... |
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 2016, "Toolbox Motor Validation", https://doi.org/10.7910/DVN/28860, Harvard Dataverse, V1, UNF:6:O7EMqLl2hmSI6f0dS6VqmA== [fileUNF]
Five sub-domains of motor function have been identified for inclusion in the NIH Toolbox dexterity, strength, locomotion, endurance, and non-vestibular balance based on literature and expert interviews. Non-vestibular balance efforts have merged with vestibular balance and measures are being led by the balance team within the sensory domain. Candid... |
Mar 4, 2016
Potosky, Arnold L.; Moinpour, Carol, 2016, "PROMIS 2 MY Health", https://doi.org/10.7910/DVN/XD1A6B, Harvard Dataverse, V1, UNF:6:No/Ha2bxUBEO7nsiGeazsg== [fileUNF]
MY-Health is a cross sectional study where a population-based sample of 5,500 adult cancer patients were be recruited for a mailed survey (with telephone follow-up of non-responders) to evaluate the equivalence of PROMIS measures across socio-demographic and clinical sub-groups. Patients diagnosed with any of seven cancers were eligible (female bre... |
Mar 4, 2016
Pilkonis, Paul, 2016, "PROMIS 2 Sleep Wake", https://doi.org/10.7910/DVN/XESLRZ, Harvard Dataverse, V1, UNF:6:UQTfDOX6WZCtXetjr1lB3w== [fileUNF]
Data from the PROMIS Sleep-Wake supplement study |
Mar 4, 2016
DeVellis, Robert, 2016, "PROMIS 1 Social Supplement", https://doi.org/10.7910/DVN/RKNXL9, Harvard Dataverse, V1, UNF:6:3hrGHsrZEd99BoBzleFVqQ== [fileUNF]
Data collected to calibrate the PROMIS Satisfaction with Social Roles and Activities bank. |
