This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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31 to 40 of 305 Results
Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
Jun 30, 2021
DeWitt, Esi Morgan, 2021, "Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research", https://doi.org/10.7910/DVN/XX4LEG, Harvard Dataverse, V1
To evaluate the validity and responsiveness of the PROMIS pediatric item banks with longitudinal assessments in 120 children ages 8-18 with JIA. Concurrent validity will be assessed by measuring correlations between the PROMIS measures and legacy scales intended to measure the same health trait. Responsiveness of the PROMIS measures will be studied...
did_all_jia_012013.sas7bdat
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
SAS Data - 3.9 MB - MD5: ea672c2f21dec1cec778112472ea8fc0
Self-reported legacy and clinical assessment data
PROMIS 2 JIA Data Dictionary.pdf
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
Adobe PDF - 156.0 KB - MD5: da037db41fc3db5bd1cc02f373daf6fe
Code book for CAT and short form data
promis_JIA_bank.sas7bdat
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
SAS Data - 33.0 KB - MD5: a289a27917e2fde2cff10a90578b5e44
PROMIS CAT data
promis_JIA_sf.sas7bdat
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
SAS Data - 33.0 KB - MD5: 081ab80df4a30397e3885d27ec03399a
PROMIS short form data
Redcap data_dic.pdf
Jun 30, 2021 - Enhancing PROMIS in Pediatric Pain, Rheumatology, and Rehabilitation Research
Adobe PDF - 70.2 KB - MD5: 8affed6506d4a7148a2318ed93d17540
Code book for assessment data
PROMIS Pediatric Asthma Study
Jun 30, 2021
Huang, I-Chan, 2021, "PROMIS Pediatric Asthma Study", https://doi.org/10.7910/DVN/MCSRLN, Harvard Dataverse, V1
This study aimed to compare the responsiveness to change of the Patient-Reported Outcomes Measurement Information System (PROMIS®) asthma impact and generic scales to a legacy scale, the Paediatric Asthma Quality of Life Questionnaire (PAQLQ). 229 child-parent dyads in public insurance programs were enrolled. PROMIS Pediatric Short Forms and the PA...
PROMIS_PAS_DataArchive_Codebook_Demographics.IH.docx
Jun 30, 2021 - PROMIS Pediatric Asthma Study
MS Word - 36.6 KB - MD5: 25e55bca3e2a7e5ffec4046601ff603e
Code book for demographic data
PROMIS_PAS_DataArchive_Codebook_PRO.IH.docx
Jun 30, 2021 - PROMIS Pediatric Asthma Study
MS Word - 65.7 KB - MD5: bc78bf9804cb6012c9f7a3b64ed9a70b
Code book for PRO data
promis_pas_demo_IH.sas7bdat
Jun 30, 2021 - PROMIS Pediatric Asthma Study
SAS Data - 81.0 KB - MD5: d1c327d87e707f96e899e257753ca068
Demographic data
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