This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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31 to 40 of 260 Results
A.C. Data Dictionary 1_Clinical Study.pdf
A.C. Data Dictionary 1_Clinical Study.pdf
Jun 22, 2021 - Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue
Adobe PDF - 114.2 KB - MD5: 5da8828d5ae22f9fb57b34080e5c9af4
Code book 1 for complete data
A.C. Data Dictionary 2_Clinical Study.pdf
A.C. Data Dictionary 2_Clinical Study.pdf
Jun 22, 2021 - Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue
Adobe PDF - 410.2 KB - MD5: 2187f724ddf347459bc715769bc14f1a
Code book 2 for complete data
Clinical Data Code Book_9-11-14.docx
Jun 22, 2021 - Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue
MS Word - 21.1 KB - MD5: 7f41299fe74fb86808ceedcb417de828
Code book for fatigue scores file and SCCA data
de_identified dataset promis reliability measured chg in fatigue_9-11-14.tab
Jun 22, 2021 - Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue
Tabular Data - 49.5 KB - 7 Variables, 904 Observations - UNF:6:8ov8Wf6Gr0Old43JdcGsjA==
Calculated scores for fatigue measures
SCCA_Clinical Data.tab
Jun 22, 2021 - Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue
Tabular Data - 6.3 KB - 10 Variables, 133 Observations - UNF:6:TRZQXTnZkNlP0LRGVuCHGw==
Patient data from Seattle Cancer Care Alliance (SCCA)
ST 1 & 2_Clinical_Study_Measuring_Change_in_Fatigue_8-15-2014.tab
Jun 22, 2021 - Validation of PROMIS in Diverse Populations/Clinical Study: Measuring Change in Fatigue
Tabular Data - 15.4 KB - 13 Variables, 214 Observations - UNF:6:VAtcD1WHN6uTIhPkhpTPoQ==
Complete patient data
Mode of Administration_10.16.2015 with PROMIS scores.tab
Jun 18, 2021 - Mode of Administration Effects in the Pediatric PROMIS Measures
Tabular Data - 252.5 KB - 279 Variables, 400 Observations - UNF:6:gwvJAZbr43cTMme4D7QQyw==
Mode of Administration study codebook.tab
Jun 18, 2021 - Mode of Administration Effects in the Pediatric PROMIS Measures
Tabular Data - 10.6 KB - 2 Variables, 355 Observations - UNF:6:3jCgJ8o8mvlBY7cWqByYKA==
Codebook Linking Study PROMIS scores.tab
Jun 18, 2021 - PROMIS Pediatrics - Linking Pediatric and Adult Item Banks
Tabular Data - 915 B - 3 Variables, 17 Observations - UNF:6:VV7RtGflsBRhdSuoTHo+2A==
Codebook Linking Study.tab
Jun 18, 2021 - PROMIS Pediatrics - Linking Pediatric and Adult Item Banks
Tabular Data - 112.6 KB - 13 Variables, 1336 Observations - UNF:6:N7U5m522W0lomy0RPe3Ygw==
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