This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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41 to 45 of 45 Results
PROMIS 1 Pediatric Supplement
Mar 4, 2016
DeWalt, Darren, 2016, "PROMIS 1 Pediatric Supplement", https://doi.org/10.7910/DVN/IBWSUD, Harvard Dataverse, V1, UNF:6:Md4mWb1lYEHIfweaOowxiA== [fileUNF]
The PROMIS 1 Pediatric Supplement data includes the data used to calibrate PROMIS pediatric measures. The sample includes children from age 5 to 17, children from the general population as well as those with chronic diseases, and parent-proxy dyad data.
PROMIS 1 Wave 2 Depression
Mar 3, 2016
Paul Pilkonis, 2016, "PROMIS 1 Wave 2 Depression", https://doi.org/10.7910/DVN/ZDIITC, Harvard Dataverse, V1
A study to assess the psychometric properties of PROMIS in a sample of people with depression.
PROMIS 1 Wave 2 Chronic Heart Failure (CHF)
Mar 3, 2016
Kevin Weinfurt, 2016, "PROMIS 1 Wave 2 Chronic Heart Failure (CHF)", https://doi.org/10.7910/DVN/DS90RB, Harvard Dataverse, V1, UNF:6:/U4HCXosBs4z7D4WxCZPBA== [fileUNF]
This study is designed to evaluate the validity (including responsiveness) of selected PROMIS domains for patients with severe heart failure who receive a heart transplant. Heart transplantation tends to create large changes in cardiac functioning over a relatively short time period (i.e., 8-12 weeks). This study assessed patients at two time point...
PROMIS 1 Wave 2 Mode of Administration (MOA)
Mar 3, 2016
2016, "PROMIS 1 Wave 2 Mode of Administration (MOA)", https://doi.org/10.7910/DVN/EWC1YO, Harvard Dataverse, V1, UNF:6:9+yPzKDOoUsfcqm15T67OA== [fileUNF]
PROMIS 1 Wave 2 Arthritis
PROMIS 1 Wave 2 Arthritis
Jan 11, 2016
Fries, James, 2016, "PROMIS 1 Wave 2 Arthritis", https://doi.org/10.7910/DVN/CYJ7NG, Harvard Dataverse, V1, UNF:6:TJvUEHANBF6bNkViHx48xA== [fileUNF]
Validation studies of the PROMIS physical function, fatigue, and pain impact short forms in patients with rheumatoid arthritis (RA).
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