This is a repository of data from self-reported patient assessments evaluating symptoms, well-being, and life satisfaction; physical, mental, and social health; as well as examiner-administered assessments measuring sensory, motor, and cognitive functions. Data from NIH-funded initiatives include PROMIS®, NIH Toolbox, Neuro-QoL, and ASCQ-Me.

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41 to 50 of 260 Results
Linking study final data set.tab
Jun 18, 2021 - PROMIS Pediatrics - Linking Pediatric and Adult Item Banks
Tabular Data - 526.3 KB - 295 Variables, 897 Observations - UNF:6:K6l405pC07ppbl1V08IO4w==
Demographic information and PROMIS item responses
PediatricAdultLinking_PROMISscores.tab
Jun 18, 2021 - PROMIS Pediatrics - Linking Pediatric and Adult Item Banks
Tabular Data - 92.7 KB - 17 Variables, 874 Observations - UNF:6:wdNC/0TXuNDO11Qlf4mTsg==
PROMIS scores
PROMIS 2 SCD Parent Study codebook.xlsx
Jun 18, 2021 - PROMIS Pediatrics Longitudinal Validation in SCD
MS Excel Spreadsheet - 30.4 KB - MD5: 790bca2ff38b0acfbd2f7b119f9b6a81
SCD All Child Data Stacked_3.12.2015.tab
Jun 18, 2021 - PROMIS Pediatrics Longitudinal Validation in SCD
Tabular Data - 163.1 KB - 270 Variables, 295 Observations - UNF:6:sIonW/cJtxmAAOTfloZ31Q==
SCD Child Data Codebook.tab
Jun 18, 2021 - PROMIS Pediatrics Longitudinal Validation in SCD
Tabular Data - 41.1 KB - 5 Variables, 270 Observations - UNF:6:yjSyjvsyZQG5vC2u6OVNmw==
SCD Parent Study_07.22.2015.tab
Jun 18, 2021 - PROMIS Pediatrics Longitudinal Validation in SCD
Tabular Data - 31.6 KB - 89 Variables, 177 Observations - UNF:6:T42wHT+xt74H9lLipdQYcg==
PROMIS-2 Cancer all items and domain scores_7.16.2015.tab
Jun 18, 2021 - PROMIS-II Pediatric Cancer Study
Tabular Data - 173.9 KB - 283 Variables, 266 Observations - UNF:6:XlT4xKpcnEWlCQg1LNllbw==
PROMIS-2 Pediatric Cancer Codebook.xlsx
Jun 18, 2021 - PROMIS-II Pediatric Cancer Study
MS Excel Spreadsheet - 22.1 KB - MD5: 8745e044c719436c1f30e217ab984f20
PROMIS II Pediatric Cancer Missing Data Notes_8.8.2013.tab
Jun 18, 2021 - PROMIS-II Pediatric Cancer Study
Tabular Data - 3.4 KB - 3 Variables, 27 Observations - UNF:6:/DmTqQ88QL+oqEm1MmiYYw==
PROMIS 2 Nephrotic Syndrome data_corrected.tab
Jun 18, 2021 - PROMIS-II Pediatric Nephrotic Syndrome
Tabular Data - 128.3 KB - 160 Variables, 329 Observations - UNF:6:D0E9JEWD/yylIJd8SakJHg==
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