NeuroVERSE

NeuroVERSE - Supports distribution and sharing of datasets related to neurological research.

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11 to 20 of 40 Results

ALSFocusWave5_DataDictionary.xlsx May 21, 2025 - ALS Focus Wave 5 – Mobility Survey MS Excel Spreadsheet - 100.7 KB - MD5: c90040f1b92b225cb49a6b437132c6b4 This is the data dictionary for surveys fielded in ALS Focus Wave 5.
ALSFocusWave5_Demographics.tab May 21, 2025 - ALS Focus Wave 5 – Mobility Survey Tabular Data - 274.6 KB - 71 Variables, 1665 Observations - UNF:6:UQ9wKSSklFs1bpowbq1byQ== This Stata file contains responses to the Demographics survey since ALS Focus launched in February 2020.
ALSFocusWave5_FilesDescription.docx May 21, 2025 - ALS Focus Wave 5 – Mobility Survey MS Word - 36.1 KB - MD5: 8ce1fdf12f5d0381bdbd7669ee0e5523 Description of Sponsor Data Files
ALSFocusWave5_HealthStatus.tab May 21, 2025 - ALS Focus Wave 5 – Mobility Survey Tabular Data - 248.3 KB - 33 Variables, 791 Observations - UNF:6:BKoP1vLtUnY3L+RxJBcqeQ== This Stata file contains responses to remaining questions in the Health Status survey, which opened in Wave 2. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day, on the NeuroPRO platform.
ALSFocusWave5_Mobility.tab May 21, 2025 - ALS Focus Wave 5 – Mobility Survey Tabular Data - 142.6 KB - 195 Variables, 460 Observations - UNF:6:yStTUQ/v3c8g3/kBPGAC6w== This Stata file contains responses to the ALS Mobility survey for people with ALS, current caregivers, and past caregivers. This survey was available in Wave 5.
ALSFocusWave4_ALSFRSandVC.tab Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey Tabular Data - 95.8 KB - 18 Variables, 892 Observations - UNF:6:yp6uMUCj9aoy1tygpjoWZw== This data file contains responses to questions on ALSFRS-R and Vital Capacity scores since Wave 1. Starting in Wave 2, participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.
ALSFocusWave4_DataDictionary.xlsx Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey MS Excel Spreadsheet - 95.4 KB - MD5: d80bfe2bf037dbac22f106cffbec8314 This is the data dictionary for surveys fielded in ALS Focus Wave 4.
ALSFocusWave4_Demographics.tab Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey Tabular Data - 666.0 KB - 70 Variables, 1545 Observations - UNF:6:hk+aUDDMTninlo6LPZvU6Q== his file contains responses to the Demographics survey since ALS Focus launched in February 2020. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.
ALSFocusWave4_FilesDescription.docx Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey MS Word - 26.1 KB - MD5: aa36d9265dcbd3ea5ff83a21970eef44 Description of Public Data Files
ALSFocusWave4_HealthStatus.tab Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey Tabular Data - 232.7 KB - 29 Variables, 778 Observations - UNF:6:9mNDL+sEgLqw+JVxH7KBFA== This data file contains responses to the Health Status survey since Wave 2 when the Health Status survey opened. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.

ALSFocusWave5_DataDictionary.xlsx

May 21, 2025 - ALS Focus Wave 5 – Mobility Survey

MS Excel Spreadsheet - 100.7 KB -

This is the data dictionary for surveys fielded in ALS Focus Wave 5.

ALSFocusWave5_Demographics.tab

May 21, 2025 - ALS Focus Wave 5 – Mobility Survey

Tabular Data - 274.6 KB - 71 Variables, 1665 Observations -

This Stata file contains responses to the Demographics survey since ALS Focus launched in February 2020.

ALSFocusWave5_FilesDescription.docx

May 21, 2025 - ALS Focus Wave 5 – Mobility Survey

MS Word - 36.1 KB -

Description of Sponsor Data Files

ALSFocusWave5_HealthStatus.tab

May 21, 2025 - ALS Focus Wave 5 – Mobility Survey

Tabular Data - 248.3 KB - 33 Variables, 791 Observations -

This Stata file contains responses to remaining questions in the Health Status survey, which opened in Wave 2. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day, on the NeuroPRO platform.

ALSFocusWave5_Mobility.tab

May 21, 2025 - ALS Focus Wave 5 – Mobility Survey

Tabular Data - 142.6 KB - 195 Variables, 460 Observations -

This Stata file contains responses to the ALS Mobility survey for people with ALS, current caregivers, and past caregivers. This survey was available in Wave 5.

ALSFocusWave4_ALSFRSandVC.tab

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

Tabular Data - 95.8 KB - 18 Variables, 892 Observations -

This data file contains responses to questions on ALSFRS-R and Vital Capacity scores since Wave 1. Starting in Wave 2, participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.

ALSFocusWave4_DataDictionary.xlsx

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

MS Excel Spreadsheet - 95.4 KB -

This is the data dictionary for surveys fielded in ALS Focus Wave 4.

ALSFocusWave4_Demographics.tab

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

Tabular Data - 666.0 KB - 70 Variables, 1545 Observations -

his file contains responses to the Demographics survey since ALS Focus launched in February 2020. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.

ALSFocusWave4_FilesDescription.docx

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

MS Word - 26.1 KB -

Description of Public Data Files

ALSFocusWave4_HealthStatus.tab

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

Tabular Data - 232.7 KB - 29 Variables, 778 Observations -

This data file contains responses to the Health Status survey since Wave 2 when the Health Status survey opened. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.

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