NeuroVERSE

NeuroVERSE - Supports distribution and sharing of datasets related to neurological research.

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21 to 30 of 47 Results

ALSFocusWave4_Demographics.tab Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey Tabular Data - 666.0 KB - 70 Variables, 1545 Observations - UNF:6:hk+aUDDMTninlo6LPZvU6Q== his file contains responses to the Demographics survey since ALS Focus launched in February 2020. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.
ALSFocusWave4_FilesDescription.docx Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey MS Word - 26.1 KB - MD5: aa36d9265dcbd3ea5ff83a21970eef44 Description of Public Data Files
ALSFocusWave4_HealthStatus.tab Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey Tabular Data - 232.7 KB - 29 Variables, 778 Observations - UNF:6:9mNDL+sEgLqw+JVxH7KBFA== This data file contains responses to the Health Status survey since Wave 2 when the Health Status survey opened. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.
ALSFocusWave4_Telehealth.tab Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey Tabular Data - 675.9 KB - 217 Variables, 386 Observations - UNF:6:uiv0uxYieEVcDdAr7LemQQ== This file contains responses to the Telehealth survey for people with ALS and current caregivers. This survey was available in Wave 4. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.
ALS Focus Wave 3 – Caregiver Needs Survey Jan 21, 2022 The ALS Association, 2022, "ALS Focus Wave 3 – Caregiver Needs Survey", https://doi.org/10.7910/DVN/KLJPJL, Harvard Dataverse, V1, UNF:6:158A3MLuSx9o9o5oJhnSLg== [fileUNF] The NeuroVERSE record contains the following files: ALSFocusWave3_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 3. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns). ALSFocusWa...
ALSFocusWave3_ALSFRSandVC.tab Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey Tabular Data - 69.2 KB - 18 Variables, 642 Observations - UNF:6:HMSxkidxCSONjTfJ3pzidA== This data file contains responses to questions on ALSFRS-R and Vital Capacity scores, which opened in Wave 1 for participants with ALS. Starting in Wave 2, participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.
ALSFocusWave3_CaregiverNeeds.tab Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey Tabular Data - 1.0 MB - 138 Variables, 620 Observations - UNF:6:Z43QrsBGaer2IS8T9JQ7Ew== This file contains responses to the Caregiver Needs survey for current and past caregivers. This survey was available in Wave 3.
ALSFocusWave3_DataDictionary.tab Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey Tabular Data - 9.3 KB - 9 Variables, 71 Observations - UNF:6:YHmPeRGv/hPpTCeeo56A4g== This is the data dictionary for surveys fielded in ALS Focus Wave 3. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns).
ALSFocusWave3_Demographics.tab Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey Tabular Data - 592.5 KB - 69 Variables, 1420 Observations - UNF:6:ELs4OXJiJ1XtAu5QfcGBuQ== This file contains responses to the About Me demographics survey since ALS Focus launched in February 2020. This survey is designed for current caregivers, past caregivers, and participants with ALS.
ALSFocusWave3_FilesDescription.docx Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey MS Word - 38.5 KB - MD5: f01812d44b68faad0e988beb63eeddda Description of Public Data Files

ALSFocusWave4_Demographics.tab

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

Tabular Data - 666.0 KB - 70 Variables, 1545 Observations -

his file contains responses to the Demographics survey since ALS Focus launched in February 2020. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.

ALSFocusWave4_FilesDescription.docx

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

MS Word - 26.1 KB -

Description of Public Data Files

ALSFocusWave4_HealthStatus.tab

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

Tabular Data - 232.7 KB - 29 Variables, 778 Observations -

This data file contains responses to the Health Status survey since Wave 2 when the Health Status survey opened. Participants with ALS could answer these questions on a repeated basis, but not more than once per calendar day.

ALSFocusWave4_Telehealth.tab

Sep 6, 2022 - ALS Focus Wave 4 – Telehealth Survey

Tabular Data - 675.9 KB - 217 Variables, 386 Observations -

This file contains responses to the Telehealth survey for people with ALS and current caregivers. This survey was available in Wave 4. This file contains a new ‘dyad’ variable indicating which people with ALS and caregiver participants are linked.

ALS Focus Wave 3 – Caregiver Needs Survey

Jan 21, 2022

The ALS Association, 2022, "ALS Focus Wave 3 – Caregiver Needs Survey", https://doi.org/10.7910/DVN/KLJPJL, Harvard Dataverse, V1, UNF:6:158A3MLuSx9o9o5oJhnSLg== [fileUNF]

The NeuroVERSE record contains the following files: ALSFocusWave3_DataDictionary.xlsx – This is the data dictionary for surveys fielded in ALS Focus Wave 3. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns). ALSFocusWa...

ALSFocusWave3_ALSFRSandVC.tab

Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey

Tabular Data - 69.2 KB - 18 Variables, 642 Observations -

This data file contains responses to questions on ALSFRS-R and Vital Capacity scores, which opened in Wave 1 for participants with ALS. Starting in Wave 2, participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.

ALSFocusWave3_CaregiverNeeds.tab

Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey

Tabular Data - 1.0 MB - 138 Variables, 620 Observations -

This file contains responses to the Caregiver Needs survey for current and past caregivers. This survey was available in Wave 3.

ALSFocusWave3_DataDictionary.tab

Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey

Tabular Data - 9.3 KB - 9 Variables, 71 Observations -

This is the data dictionary for surveys fielded in ALS Focus Wave 3. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns).

ALSFocusWave3_Demographics.tab

Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey

Tabular Data - 592.5 KB - 69 Variables, 1420 Observations -

This file contains responses to the About Me demographics survey since ALS Focus launched in February 2020. This survey is designed for current caregivers, past caregivers, and participants with ALS.

ALSFocusWave3_FilesDescription.docx

Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey

MS Word - 38.5 KB -

Description of Public Data Files

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