NeuroVERSE

NeuroVERSE - Supports distribution and sharing of datasets related to neurological research.

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31 to 40 of 40 Results

ALSFocusWave2_DataDictionary.tab Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey Tabular Data - 9.3 KB - 9 Variables, 71 Observations - UNF:6:mx5Tw0ceRVnLCzXQwGrWIA== This is the data dictionary for all surveys fielded in ALS Focus Wave 2. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns).
ALSFocusWave2_Demographics.tab Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey Tabular Data - 433.7 KB - 69 Variables, 1006 Observations - UNF:6:WBEupwmycCQmACb9LuG/Cg== This data file contains demographic and disease history responses to the About Me survey which opened in Wave 1.
ALSFocusWave2_FilesDescription.docx Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey MS Word - 22.9 KB - MD5: 365c4e861407347080d2388eaddd81ad This file describes the content of the data files in this dataset.
ALSFocusWave2_HealthStatus.tab Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey Tabular Data - 122.2 KB - 29 Variables, 414 Observations - UNF:6:z1s9GXNC5meIIrzeZvtUtQ== This data file contains responses to the Health Status survey, which opened in Wave 2. Participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.
ALSFocusWave2_WMM.tab Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey Tabular Data - 52.4 KB - 6 Variables, 683 Observations - UNF:6:klt4cgZYxMHiqtdlfzfHCw== This data file contains total scores generated from responses to the ALS Health Index Short Form (ALS-HI-SF) in the What Matters Most survey. After Wave 2 closed, the total ALS-HI-SF scores were calculated by staff at the University of Rochester where the ALS-HI-SF was developed by Dr. Chad Heatwole, MD, MS-CI. The Wave 2 data dictionary contains m...
Wave 1_Data Dictionary_Public.tab Mar 18, 2021 - ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey Tabular Data - 104.9 KB - 11 Variables, 1044 Observations - UNF:6:fomR0BBqFk6fIpV2EomhqQ== This file is the data dictionary for surveys fielded in ALS Focus Wave 1, including the Demographics survey and the survey on Insurance Needs and Financial Burdens.
IMPACT ALS Survey_Raw Data.xlsx Oct 28, 2019 - IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS MS Excel Spreadsheet - 1.0 MB - MD5: 3f975cdf2c3faaedc5761ed34dbc4ccd IMPACT ALS Survey - Raw Data
ALS Survey Questions D7 caregiver_FINAL.pdf Oct 25, 2019 - IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS Adobe PDF - 140.6 KB - MD5: 0a7d5549494cc794697251671d66510d Questions that were administered to caregivers
ALS Survey Questions D7 patient_FINAL.pdf Oct 25, 2019 - IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS Adobe PDF - 134.9 KB - MD5: b2e0b85791d44d3a62f0dfc5e4e1bf77 Full survey that was administered online to patients
README.txt Oct 25, 2019 - IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS Plain Text - 3.7 KB - MD5: 87b6a61c6e45a3ba1afcc5b80ed8bfa7

ALSFocusWave2_DataDictionary.tab

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

Tabular Data - 9.3 KB - 9 Variables, 71 Observations -

This is the data dictionary for all surveys fielded in ALS Focus Wave 2. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns).

ALSFocusWave2_Demographics.tab

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

Tabular Data - 433.7 KB - 69 Variables, 1006 Observations -

This data file contains demographic and disease history responses to the About Me survey which opened in Wave 1.

ALSFocusWave2_FilesDescription.docx

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

MS Word - 22.9 KB -

This file describes the content of the data files in this dataset.

ALSFocusWave2_HealthStatus.tab

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

Tabular Data - 122.2 KB - 29 Variables, 414 Observations -

This data file contains responses to the Health Status survey, which opened in Wave 2. Participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.

ALSFocusWave2_WMM.tab

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

Tabular Data - 52.4 KB - 6 Variables, 683 Observations -

This data file contains total scores generated from responses to the ALS Health Index Short Form (ALS-HI-SF) in the What Matters Most survey. After Wave 2 closed, the total ALS-HI-SF scores were calculated by staff at the University of Rochester where the ALS-HI-SF was developed by Dr. Chad Heatwole, MD, MS-CI. The Wave 2 data dictionary contains m...

Wave 1_Data Dictionary_Public.tab

Mar 18, 2021 - ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey

Tabular Data - 104.9 KB - 11 Variables, 1044 Observations -

This file is the data dictionary for surveys fielded in ALS Focus Wave 1, including the Demographics survey and the survey on Insurance Needs and Financial Burdens.

IMPACT ALS Survey_Raw Data.xlsx

Oct 28, 2019 - IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS

MS Excel Spreadsheet - 1.0 MB -

IMPACT ALS Survey - Raw Data

ALS Survey Questions D7 caregiver_FINAL.pdf

Oct 25, 2019 - IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS

Adobe PDF - 140.6 KB -

Questions that were administered to caregivers

ALS Survey Questions D7 patient_FINAL.pdf

Oct 25, 2019 - IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS

Adobe PDF - 134.9 KB -

Full survey that was administered online to patients

README.txt

Oct 25, 2019 - IMPACT ALS - Investigation and Measuring Patient and Caregiver Trends About ALS

Plain Text - 3.7 KB -

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