NeuroVERSE

NeuroVERSE - Supports distribution and sharing of datasets related to neurological research.

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31 to 40 of 47 Results

ALSFocusWave3_HealthStatus.tab Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey Tabular Data - 147.3 KB - 29 Variables, 496 Observations - UNF:6:GxdBWJtDQHTgHEEH8vtVxg== This data file contains responses to the Health Status survey, which opened for participants with ALS in Wave 2. Participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.
ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey Jan 18, 2022 The ALS Association, 2021, "ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey", https://doi.org/10.7910/DVN/J9TLXT, Harvard Dataverse, V2, UNF:6:WPfeqPPGCzCXc0z3zFFllQ== [fileUNF] This NeuroVERSE record contains two files: ALSFocus_Wave1_Public.csv – This data file contains responses from both the Demographics survey and the survey on Insurance Needs and Financial Burdens, which were fielded in Wave 1 of ALS Focus. This file includes responses collected from February 13, 2020 through April 3, 2020, the launch date and close...
ALSFocus_Wave1_Public.tab Jan 18, 2022 - ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey Tabular Data - 897.1 KB - 382 Variables, 529 Observations - UNF:6:S6UD5mVYy2MbkFdqh7qoGw== This data file contains responses from both the Demographics survey and the survey on Insurance Needs and Financial Burdens, which were fielded in Wave 1 of ALS Focus. This file includes responses collected from February 13, 2020 through April 3, 2020, the launch date and close date of Wave 1, respectively. The file uses a ‘flattened’ format with o...
Wave 1_Data Files Description.docx Jan 18, 2022 - ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey MS Word - 36.2 KB - MD5: c77d32577291f28787faeb3dfbde29cc This file describes the content of two data files in this dataset
ALS Focus Wave 2 - What Matters Most Survey Nov 2, 2021 The ALS Association, 2021, "ALS Focus Wave 2 - What Matters Most Survey", https://doi.org/10.7910/DVN/JZ5DZQ, Harvard Dataverse, V1, UNF:6:7F0Tb6g8rb/GGvpKMMRQxQ== [fileUNF] This Dataverse record contains the following files: ALSFocusWave2_DataDictionary.xlsx – This is the data dictionary for all surveys fielded in ALS Focus Wave 2. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns). ALSFoc...
ALSFocusWave2_ALSFRSandVC.tab Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey Tabular Data - 61.9 KB - 18 Variables, 576 Observations - UNF:6:Ioajnyd0B4c93potdH0MwQ== This data file contains responses to questions on ALSFRS-R and Vital Capacity scores, which opened in Wave 1. Starting in Wave 2, participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.
ALSFocusWave2_DataDictionary.tab Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey Tabular Data - 9.3 KB - 9 Variables, 71 Observations - UNF:6:mx5Tw0ceRVnLCzXQwGrWIA== This is the data dictionary for all surveys fielded in ALS Focus Wave 2. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns).
ALSFocusWave2_Demographics.tab Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey Tabular Data - 433.7 KB - 69 Variables, 1006 Observations - UNF:6:WBEupwmycCQmACb9LuG/Cg== This data file contains demographic and disease history responses to the About Me survey which opened in Wave 1.
ALSFocusWave2_FilesDescription.docx Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey MS Word - 22.9 KB - MD5: 365c4e861407347080d2388eaddd81ad This file describes the content of the data files in this dataset.
ALSFocusWave2_HealthStatus.tab Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey Tabular Data - 122.2 KB - 29 Variables, 414 Observations - UNF:6:z1s9GXNC5meIIrzeZvtUtQ== This data file contains responses to the Health Status survey, which opened in Wave 2. Participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.

ALSFocusWave3_HealthStatus.tab

Jan 21, 2022 - ALS Focus Wave 3 – Caregiver Needs Survey

Tabular Data - 147.3 KB - 29 Variables, 496 Observations -

This data file contains responses to the Health Status survey, which opened for participants with ALS in Wave 2. Participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.

ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey

Jan 18, 2022

The ALS Association, 2021, "ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey", https://doi.org/10.7910/DVN/J9TLXT, Harvard Dataverse, V2, UNF:6:WPfeqPPGCzCXc0z3zFFllQ== [fileUNF]

This NeuroVERSE record contains two files: ALSFocus_Wave1_Public.csv – This data file contains responses from both the Demographics survey and the survey on Insurance Needs and Financial Burdens, which were fielded in Wave 1 of ALS Focus. This file includes responses collected from February 13, 2020 through April 3, 2020, the launch date and close...

ALSFocus_Wave1_Public.tab

Jan 18, 2022 - ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey

Tabular Data - 897.1 KB - 382 Variables, 529 Observations -

This data file contains responses from both the Demographics survey and the survey on Insurance Needs and Financial Burdens, which were fielded in Wave 1 of ALS Focus. This file includes responses collected from February 13, 2020 through April 3, 2020, the launch date and close date of Wave 1, respectively. The file uses a ‘flattened’ format with o...

Wave 1_Data Files Description.docx

Jan 18, 2022 - ALS Focus Wave 1 - Insurance Needs and Financial Burdens Survey

MS Word - 36.2 KB -

This file describes the content of two data files in this dataset

ALS Focus Wave 2 - What Matters Most Survey

Nov 2, 2021

The ALS Association, 2021, "ALS Focus Wave 2 - What Matters Most Survey", https://doi.org/10.7910/DVN/JZ5DZQ, Harvard Dataverse, V1, UNF:6:7F0Tb6g8rb/GGvpKMMRQxQ== [fileUNF]

This Dataverse record contains the following files: ALSFocusWave2_DataDictionary.xlsx – This is the data dictionary for all surveys fielded in ALS Focus Wave 2. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns). ALSFoc...

ALSFocusWave2_ALSFRSandVC.tab

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

Tabular Data - 61.9 KB - 18 Variables, 576 Observations -

This data file contains responses to questions on ALSFRS-R and Vital Capacity scores, which opened in Wave 1. Starting in Wave 2, participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.

ALSFocusWave2_DataDictionary.tab

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

Tabular Data - 9.3 KB - 9 Variables, 71 Observations -

This is the data dictionary for all surveys fielded in ALS Focus Wave 2. This file has been updated to include a new layout, revised variable names to improve consistency, and greater detail on survey questions and programming logic (e.g., skip patterns).

ALSFocusWave2_Demographics.tab

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

Tabular Data - 433.7 KB - 69 Variables, 1006 Observations -

This data file contains demographic and disease history responses to the About Me survey which opened in Wave 1.

ALSFocusWave2_FilesDescription.docx

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

MS Word - 22.9 KB -

This file describes the content of the data files in this dataset.

ALSFocusWave2_HealthStatus.tab

Nov 2, 2021 - ALS Focus Wave 2 - What Matters Most Survey

Tabular Data - 122.2 KB - 29 Variables, 414 Observations -

This data file contains responses to the Health Status survey, which opened in Wave 2. Participants with ALS may answer these questions on a repeated basis, but not more than once per calendar day.

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